Blood Cancers & Disorders: Discussions | Page 1

My wife just tested positive for JAK2 on Dec 15th, after blood work on Dec 8th...

https://connect.mayoclinic.org/comment/994115/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Jan 8 10:47pm

I was diagnosed with ET and put on 500 mg a day to lower platelets from...

https://connect.mayoclinic.org/comment/1081405/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 5 2:56pm

@juniperjgin Thank you so much! Yes it's true that the extra long wait time is simply...

https://connect.mayoclinic.org/comment/1113190/

Discussion: 2 weeks for BMB results now Pathology is adding several weeks more

Support Group: Blood Cancers & Disorders

Posted: Jul 28 9:54am

The problem is skinney doesn't stop. My wife usually wears a size 8 and now finds...

https://connect.mayoclinic.org/comment/132652/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2020

Good questions. I’m not a medical doctor. My career was at the diagnostic end (lab). Therefore,...

https://connect.mayoclinic.org/comment/981500/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

hello. I was diagnosed with ET over 25 years ago, while young and in the Service...

https://connect.mayoclinic.org/comment/890151/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Reply by @missypurtee THANK YOU FOR YOUR LOVE AND CONCERN; 1.Cold Induced urticaria, 2. Cold Anaphylaxis...

https://connect.mayoclinic.org/comment/804071/

Discussion: Newly Diagnosed CLL Patients: Do you struggle with symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2023

Posted by wiggins32 @wiggins32, Nov 28, 2022 My heat goes out to you. I have Polycythmia/...

https://connect.mayoclinic.org/comment/799630/

Discussion: Need Help - Hematology won't do testing

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Hi @sap21981, from my research and understanding, a stem cell transplant for PV is rarely used....

https://connect.mayoclinic.org/comment/893527/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Dear Tokyolin: I am “flynnconn” and you can check out my specifics in 2 previous posts...

https://connect.mayoclinic.org/comment/882771/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2023

Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene...

https://connect.mayoclinic.org/comment/969785/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

Welcome to Connect @kwmotley Reading through your comments it looks like you’re taking a daily aspirin...

https://connect.mayoclinic.org/comment/974721/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2023

Also, I might add that a few years ago they thought it may have morphed into...

https://connect.mayoclinic.org/comment/1051289/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 15 2:24pm

I was just diagnosed last week with ET (CALR mutation) as a result of a marrow...

https://connect.mayoclinic.org/comment/776073/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2022

Hi, Vicky, I am 70, CALR+, have had ET for about 15 years. Doing OK, no...

https://connect.mayoclinic.org/comment/1103555/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 11 9:23am

Not sure if this is the place to write a follow up note. I have written...

https://connect.mayoclinic.org/comment/194314/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2019

Hello Colleen, Thank you for your reply. Looking forward to msg someone who has used this...

https://connect.mayoclinic.org/comment/969263/

Discussion: VonJo (pacritinib) effects

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2023

My father passed away from a battle of myelofibrosis (MF), over 10 years after being diagnosed...

https://connect.mayoclinic.org/comment/646343/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2021

Thanks. I am new to this and definitely want to see the amin discussion so you...

https://connect.mayoclinic.org/comment/203951/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2019

Hello @akeytoo, I don’t think anyone is fond of chemo treatments but they can be absolutely...

https://connect.mayoclinic.org/comment/911908/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

Blood Cancers & Disorders Support Group