Blood Cancers & Disorders: Discussions | Page 9

Lori, did you see the report on Robin Roberts GMA on MDS. I didn’t realize she...

https://connect.mayoclinic.org/comment/815302/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

I’ve wondered the same thing. Last December my husband had open heart surgery. I experienced stress...

https://connect.mayoclinic.org/comment/1312441/

Discussion: What Caused MDS in My Case?

Support Group: Blood Cancers & Disorders

Posted: May 25 10:17am

Hi Howard, @tyson1221. It’s been quite a few months and I just wanted to check in...

https://connect.mayoclinic.org/comment/986044/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Go to the MDS Research Foundation website and the MPN Research Foundation website. They have some...

https://connect.mayoclinic.org/comment/284524/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2019

Hello @joeliliacv Welcome to Connect. MDS can impact the production of certain blood products such as...

https://connect.mayoclinic.org/comment/1255600/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 1:24pm

Hello @barbwsm! I imagine you are not feeling great. You do not mention whether your physician...

https://connect.mayoclinic.org/comment/1099071/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

I too have been diagnosed with MDS. I was actually donating platelets before 2021. In June...

https://connect.mayoclinic.org/comment/1052788/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024

Thanks posting on the subject of Qunol. I have an over load of iron in my...

https://connect.mayoclinic.org/comment/1247973/

Discussion: Curcumin and Turmeric causing anemia?

Support Group: Blood Cancers & Disorders

Posted: Mar 1 10:32am

My husband has MDs. Low platelets. They were at 28k. I started him on papaya and...

https://connect.mayoclinic.org/comment/1211664/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Jan 14 9:03pm

Hi @1pearl, There are a number of different blood conditions and cancers with subsets to each....

https://connect.mayoclinic.org/comment/1348374/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

Like you my doc has told me stem cell was not an option for my MDs...

https://connect.mayoclinic.org/comment/823332/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2023

Same thing happened to me. I was diagnosed with low risk MDS in 2017. My platelets...

https://connect.mayoclinic.org/comment/909755/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2023

I was on Revlimid for MDS and it about did me in. I was so weak...

https://connect.mayoclinic.org/comment/794489/

Discussion: Myeloma: Revlimid and steroids: How quickly do side effects subside?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2023

Hi @njjwjj Welcome to Connect. It’s very encouraging to hear that the Vidaza (Azacitidine) treatment you’re...

https://connect.mayoclinic.org/comment/952899/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023

I have MDS and am experiencing cognitive decline. Still working a very stressful job and wish...

https://connect.mayoclinic.org/comment/870090/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

@bromlj1 - I’m deeply sorry you’re navigating a high-risk MDS diagnosis—it’s a lot to take in....

https://connect.mayoclinic.org/comment/1313015/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 26 6:12am

I am on my 11th cycle of viadaza and ventoclox with astounding results. Hemoglobin has lingered...

https://connect.mayoclinic.org/comment/1171184/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2024

That’s excellent news! There have been so many positive changes in the advancement for treating MDS...

https://connect.mayoclinic.org/comment/1250925/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 5 10:32am

I have MDS, Myelodysplastic syndrome, refractory anemia with ring sideroblast. SF3B1 mutation positive. I receive Epoetin...

https://connect.mayoclinic.org/comment/1255124/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 9:42pm

My husband was diagnosed with MDS in Dec 2023. Labs are declining. Just found a donor....

https://connect.mayoclinic.org/comment/1054559/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

Blood Cancers & Disorders Support Group