Blood Cancers & Disorders Support Group

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Comments (697)

I too have been diagnosed with MDS. I was actually donating platelets before 2021. In June...

https://connect.mayoclinic.org/comment/1052788/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024

Like you my doc has told me stem cell was not an option for my MDs...

https://connect.mayoclinic.org/comment/823332/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2023

I have MDS and am experiencing cognitive decline. Still working a very stressful job and wish...

https://connect.mayoclinic.org/comment/870090/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Same thing happened to me. I was diagnosed with low risk MDS in 2017. My platelets...

https://connect.mayoclinic.org/comment/909755/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2023

I was on Revlimid for MDS and it about did me in. I was so weak...

https://connect.mayoclinic.org/comment/794489/

Discussion: Myeloma: Revlimid and steroids: How quickly do side effects subside?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2023

Hi @njjwjj Welcome to Connect. It’s very encouraging to hear that the Vidaza (Azacitidine) treatment you’re...

https://connect.mayoclinic.org/comment/952899/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023

I am on my 11th cycle of viadaza and ventoclox with astounding results. Hemoglobin has lingered...

https://connect.mayoclinic.org/comment/1171184/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2024

Hi @gothman. It’s been several months since our last conversation and I wanted to check in...

https://connect.mayoclinic.org/comment/1266769/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 25 5:30pm

I have MDS IB2. My blast count was 10% when diagnosed. After 3 rounds of vidaza...

https://connect.mayoclinic.org/comment/1273246/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 3 10:41am

My husband was diagnosed with MDS in Dec 2023. Labs are declining. Just found a donor....

https://connect.mayoclinic.org/comment/1054559/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

Thankyou for your kind words, I started antibiotics yesterday but still feel very sick. I saw...

https://connect.mayoclinic.org/comment/756073/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

Hi Brenda, You need to ask your hematologist if the kind of MDS you have is...

https://connect.mayoclinic.org/comment/961334/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023

Hi I have MDS with 5Q and started taking Lenalidomide about 2 1/2 weeks ago. I...

https://connect.mayoclinic.org/comment/1256422/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 3:50pm

I have had MDS for a year now. On chemo also. Hopefully the chemo will continue...

https://connect.mayoclinic.org/comment/1180377/

Discussion: MDS in a 75 year old male

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2024

I have ET with the JAK2 mutation as well as MDS. I am taking 500mg of...

https://connect.mayoclinic.org/comment/930458/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

I take papaya leaf extract to Raise my platelets. It comes in capsules as well From...

https://connect.mayoclinic.org/comment/821155/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

@dstraus @colleenyoung I’m so sorry! I completely missed the MDS reference. Of course, now I understand...

https://connect.mayoclinic.org/comment/597810/

Discussion: High ferritin levels and post shoulder tendon operation pain/Exhausted

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2021

Hi @kally38 and welcome to Connect. You’re right, 70 is still young! I just turned 70...

https://connect.mayoclinic.org/comment/1027929/

Discussion: Will soon have a Bone Marrow Transplant: What can I expect?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 5, 2024

I've had 6 Biopsy (in pelvic) over 10 months. MDS went to AML with 26% blasts...

https://connect.mayoclinic.org/comment/1172761/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2024

Hello--my last bone-marrow biopsy was very promising--white cells coming back and no blasts. Now I am...

https://connect.mayoclinic.org/comment/856598/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023