Blood Cancers & Disorders Support Group

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Comments (1,109)

Welcome to Connect @stevefenton. Thank you for sharing your experience with Vidaza/Venetoclax for AML. Sounds like...

https://connect.mayoclinic.org/comment/1155582/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2024

Hi @bmarkable. Myelofibrosis (MF) and Myelodyplastic syndrome are two different blood conditons. Myelofibrosis (MF) is disorder...

https://connect.mayoclinic.org/comment/1084232/

Discussion: Is Myelofibrosis (MF) the same as Myelodyplastic syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2024

That is what I am thinking. Did they have the right diagnosis if MDS or was...

https://connect.mayoclinic.org/comment/910881/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2023

Hi @jps01, from my experience with leukemia and hundreds of blood tests over the past 4...

https://connect.mayoclinic.org/comment/928445/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Snakebite, are you saying Dacogen and Vonjo are used for your MDS and MF.... or are...

https://connect.mayoclinic.org/comment/1032491/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2024

Well I’m at your beginning point with MDS and will see wat treatment they suggest an...

https://connect.mayoclinic.org/comment/819397/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

I have MDS and I went to Dr Mariano Garcia at MD Anderson in Houston. He...

https://connect.mayoclinic.org/comment/665480/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2021

My husband was recently diagnosed with MDS. Does anyone know of reasonable townhomes/apartments/condos rentals close to...

https://connect.mayoclinic.org/comment/1015500/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2024

Got bone marrow back an it’s MDS seein doc on Friday for treatment options any thoughts...

https://connect.mayoclinic.org/comment/819445/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

My husband was diagnosed with MDS 5 yrs ago. After his last bone marrow biopsy in...

https://connect.mayoclinic.org/comment/994964/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2024

That’s wat happen to me I had chemo in 2015 an got my MDs 6 months...

https://connect.mayoclinic.org/comment/896400/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2023

Bad news have MDS high grade need treatment lookin for any info out there but still...

https://connect.mayoclinic.org/comment/819239/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

I have been taking Hydroxy for two years for MDS/MPN-RS-T. Not aware of any side effects.

https://connect.mayoclinic.org/comment/146317/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2020

I have the same mutations with my MDS. I am about to try Immetelstat. Any information...

https://connect.mayoclinic.org/comment/1493175/

Discussion: Does anyone have MDS with the SF3B1 mutation?

Support Group: Blood Cancers & Disorders

Posted: Jan 29 8:14am

Again, I'm no physician. It could very likely be MDS. Your numbers are similar to mine...

https://connect.mayoclinic.org/comment/1395370/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2025

Hello @mtksnider I was looking through some discussions on MDS and found your posting. I too...

https://connect.mayoclinic.org/comment/1075616/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: May 27, 2024

My husband was diagnosed with MDS not even 2 years ago and he passed away June...

https://connect.mayoclinic.org/comment/1098766/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Hello @jonkerri and welcome to Mayo Connect. I appreciate you posting an encouraging message to @yellowlab123...

https://connect.mayoclinic.org/comment/1180912/

Discussion: MDS in a 75 year old male

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

Perhaps there is already a comment string for this issue. I was diagnosed with MDS. It...

https://connect.mayoclinic.org/comment/810235/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2023

The chemo u had could have gotten into your bone marrow an destroyed it which happen...

https://connect.mayoclinic.org/comment/880781/

Discussion: Low wbc count

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2023

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