Blood Cancers & Disorders Support Group

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Comments (1,023)

I have been taking Hydroxy for two years for MDS/MPN-RS-T. Not aware of any side effects.

https://connect.mayoclinic.org/comment/146317/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2020

Hello @jonkerri and welcome to Mayo Connect. I appreciate you posting an encouraging message to @yellowlab123...

https://connect.mayoclinic.org/comment/1180912/

Discussion: MDS in a 75 year old male

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

My husband was diagnosed with MDS 5 yrs ago. After his last bone marrow biopsy in...

https://connect.mayoclinic.org/comment/994964/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2024

My husband was diagnosed with MDS not even 2 years ago and he passed away June...

https://connect.mayoclinic.org/comment/1098766/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Hello @mtksnider I was looking through some discussions on MDS and found your posting. I too...

https://connect.mayoclinic.org/comment/1075616/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: May 27, 2024

The chemo u had could have gotten into your bone marrow an destroyed it which happen...

https://connect.mayoclinic.org/comment/880781/

Discussion: Low wbc count

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2023

I just saw the pathology report from the 2nd hospital. They noted DDX41 (R525H) (3% vax)...

https://connect.mayoclinic.org/comment/1388935/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2025

No , my team of hematologists think it might be MDS disease but want a third...

https://connect.mayoclinic.org/comment/1322993/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2025

I am sure someone will post. I am going to look up what you have as...

https://connect.mayoclinic.org/comment/1540760/

Discussion: Anyone have Mixed Phenotype Acute Leukemia (MPAL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 1 10:48pm

Perhaps there is already a comment string for this issue. I was diagnosed with MDS. It...

https://connect.mayoclinic.org/comment/810235/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2023

@barbwsm Hi. I was diagnosed with MDS with anemia a year ago. My doctor told me...

https://connect.mayoclinic.org/comment/1526768/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Mar 14 12:10pm

I was recently diagnosed with MDS/MPN-RS-T with Jak2 mutation also. My doctor recommended this site. It...

https://connect.mayoclinic.org/comment/328593/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021

So I will be on Inqovi either injectable or pill just like to hear how this...

https://connect.mayoclinic.org/comment/821492/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

@janetlen Interesting. I too had heart & lungs tested to no avail. I don’t understand why...

https://connect.mayoclinic.org/comment/1463300/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2025

Hi @callahan I provided a link for you in my previous reply for one of many...

https://connect.mayoclinic.org/comment/1219949/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

I was originally diagnosed with ET based on a positive JAK2 bloid test. I asked the...

https://connect.mayoclinic.org/comment/194320/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

Until MDS, my body produced my blood. Relying on someone else to produce my blood for...

https://connect.mayoclinic.org/comment/1374898/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2025

I came across an article that stated MDS can come from having stomach or intestinal surgery....

https://connect.mayoclinic.org/comment/1054259/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

I don’t know anything about MDS but my hubby (who has multiple myeloma) has taken revlomid...

https://connect.mayoclinic.org/comment/1397869/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2025

I have had MDS/AML IN December 2023 with 26% blasts, admitted to hospital for month leaving...

https://connect.mayoclinic.org/comment/1250749/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025