Blood Cancers & Disorders Support Group

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Comments (993)

No , my team of hematologists think it might be MDS disease but want a third...

https://connect.mayoclinic.org/comment/1322993/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2025

The chemo u had could have gotten into your bone marrow an destroyed it which happen...

https://connect.mayoclinic.org/comment/880781/

Discussion: Low wbc count

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2023

Hello @mtksnider I was looking through some discussions on MDS and found your posting. I too...

https://connect.mayoclinic.org/comment/1075616/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: May 27, 2024

My husband was diagnosed with MDS not even 2 years ago and he passed away June...

https://connect.mayoclinic.org/comment/1098766/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Perhaps there is already a comment string for this issue. I was diagnosed with MDS. It...

https://connect.mayoclinic.org/comment/810235/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2023

I was recently diagnosed with MDS/MPN-RS-T with Jak2 mutation also. My doctor recommended this site. It...

https://connect.mayoclinic.org/comment/328593/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021

So I will be on Inqovi either injectable or pill just like to hear how this...

https://connect.mayoclinic.org/comment/821492/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

@janetlen Interesting. I too had heart & lungs tested to no avail. I don’t understand why...

https://connect.mayoclinic.org/comment/1463300/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2025

Hi @callahan I provided a link for you in my previous reply for one of many...

https://connect.mayoclinic.org/comment/1219949/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

I was originally diagnosed with ET based on a positive JAK2 bloid test. I asked the...

https://connect.mayoclinic.org/comment/194320/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

Until MDS, my body produced my blood. Relying on someone else to produce my blood for...

https://connect.mayoclinic.org/comment/1374898/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2025

I don’t know anything about MDS but my hubby (who has multiple myeloma) has taken revlomid...

https://connect.mayoclinic.org/comment/1397869/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2025

I have had MDS/AML IN December 2023 with 26% blasts, admitted to hospital for month leaving...

https://connect.mayoclinic.org/comment/1250749/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

I came across an article that stated MDS can come from having stomach or intestinal surgery....

https://connect.mayoclinic.org/comment/1054259/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

Well had bone marrow biopsy today so waitin for results in few days will be lookin...

https://connect.mayoclinic.org/comment/815158/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2023

Ftom a MDS/AML patient...What a text. I just read comments from several warriors about other warriors....

https://connect.mayoclinic.org/comment/1183083/

Discussion: Saying Goodbye

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024

Yes have results it’s MDS now lookin into treatments they feel I need at this juncture...

https://connect.mayoclinic.org/comment/819391/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

I have discussed this with my hematologist/oncologist. The problem is that I'm concerned about his comment...

https://connect.mayoclinic.org/comment/622086/

Discussion: Use of Neupogen (or similar) prior to minor surgery

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2021

I’m so sorry to hear about your friend and the seriousness of his late stage MDS....

https://connect.mayoclinic.org/comment/1120623/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

Hi @desertjulie. There are other drugs used to treat MDS, but your husband's physician probably recommended...

https://connect.mayoclinic.org/comment/88394/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2017