Blood Cancers & Disorders Support Group | Page 9

I cannot find anywhere that Jakafi has that ability. The friends I have shared it with...

https://connect.mayoclinic.org/comment/1552787/

Discussion: Has anyone had the Jakifi box test? My Blood % is 0!

Support Group: Blood Cancers & Disorders

Posted: Apr 17 11:18am

I've been on Jakafi since December 2022 and I've not had any bad side effects. Initially...

https://connect.mayoclinic.org/comment/912758/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Jakafi is not chemo medicine as such. It is treatment targeted for PV and myelofibrosis; it...

https://connect.mayoclinic.org/comment/889987/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

It’s been two years now since I started being treated for a skin problem. I have...

https://connect.mayoclinic.org/comment/855281/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2023

@jak2mpnpositive I had ET MPN for many years and now have myelofibrosis due to the JAK2...

https://connect.mayoclinic.org/comment/1489467/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 12:36pm

As noted in another post it may be gout. When I was on HU I was...

https://connect.mayoclinic.org/comment/1392821/

Discussion: Is foot/toe pain a symptom of increasing platelets in ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2025

I'm 5 years post SCT. I'm currently dealing with skin GVHD: scleroderma, rash, dark pigmentation. I...

https://connect.mayoclinic.org/comment/633002/

Discussion: Chronic GVHD ~ Let’s talk about it!

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 5, 2021

I cannot find anywhere that Jakafi has that ability. The friends I have shared it with...

https://connect.mayoclinic.org/comment/1552723/

Discussion: Has anyone had the Jakifi box test? My Blood % is 0!

Support Group: Blood Cancers & Disorders

Posted: Apr 17 10:18am

I have been on Jakafi 15 ml for 3 years stop working had to be move...

https://connect.mayoclinic.org/comment/1466862/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2025

Hello, so far I am on five mg. of prednisone and 400 mg of Hydroxychloroquine ....

https://connect.mayoclinic.org/comment/855572/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2023

I have had PV with JAK2 for over 4 years. Started with phlebotomies and Hydrea, now...

https://connect.mayoclinic.org/comment/783004/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2022

Thank you for responding, John! I just want to make sure @deb913 sees this reply so...

https://connect.mayoclinic.org/comment/998978/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2024

Thank you for the comments--I will check out the article. The clinical study I'm on is...

https://connect.mayoclinic.org/comment/1215478/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2025

I had Polycythemia Vera almost 20 years. Was taking Hydrea and it was working for me....

https://connect.mayoclinic.org/comment/1114732/

Discussion: Been struggling with Polycythemia Vera for 2 years

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024

Sorry you have been diagnosed with this. I was in 2018, a few things that are...

https://connect.mayoclinic.org/comment/1553051/

Discussion: Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?

Support Group: Blood Cancers & Disorders

Posted: Apr 17 6:16pm

Thanks for the info Colleen. His wife signed him up for the U of MI center...

https://connect.mayoclinic.org/comment/698511/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2022

I was diagnosed with ET around 2002 and it transitioned to myelofibrosis 10 years ago. I've...

https://connect.mayoclinic.org/comment/1416511/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2025

I can relate to the low adrenal function. I am 48, diagnosed with PV last year,...

https://connect.mayoclinic.org/comment/1126529/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2024

https://connect.mayoclinic.org/comment/1402745/

Discussion: Anyone experiencing chest pain due to anemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2025

@samlupowitz I saw on your profile that you joined this group 3 years ago, so I...

https://connect.mayoclinic.org/comment/1503414/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 5:04pm