Blood Cancers & Disorders Support Group

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Comments (486)

@joaniech2004 Hello MF FRIENDS ! At this point I have secondary HIGH RISK MF AFTER HAVING...

https://connect.mayoclinic.org/comment/1538861/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

I have been itching on my face especially, my neck arms, belly and head. Just found...

https://connect.mayoclinic.org/comment/924980/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2023

Thank You for your reply, I do not have Hashimotos, I go from hypo to hper...

https://connect.mayoclinic.org/comment/818256/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2023

@sme225 Thank you so much for that helpful information!! Do you have a diagnosis of Primary...

https://connect.mayoclinic.org/comment/1432114/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2025

Hello resilient! I suffered with brutal burning / itching for years ! I still do if...

https://connect.mayoclinic.org/comment/1363069/

Discussion: Severe itching with PV

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2025

Glad it helped! I hate adding more pills to my daily routine, but that itching can...

https://connect.mayoclinic.org/comment/1203737/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2025

Hello @susanflower and welcome to Mayo Clinic Connect. I am sorry to hear your itching and...

https://connect.mayoclinic.org/comment/764257/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2022

So, we don’t even 100% know yet. Because it’s early stage. No itching. Just a faint...

https://connect.mayoclinic.org/comment/1111588/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Sorry to hear about your condition.I too have itching burning all over, but I do have...

https://connect.mayoclinic.org/comment/1177636/

Discussion: High Eosinophils with pain in left side under ribs and very itchy

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2024

I have taken hydroxyurea (started at 500, went to 1000) for a year. I am 78....

https://connect.mayoclinic.org/comment/851807/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

@becky1024 I am a member of the same club, IgM light chain MGUS, that morphed into...

https://connect.mayoclinic.org/comment/731465/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2022

I was really surprised to find out that my primary doctor, dermatologist , ENT, eye doctor...

https://connect.mayoclinic.org/comment/1086360/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Agree with the itching...this article made me chuckle because I asked my kid to get me...

https://connect.mayoclinic.org/comment/1315205/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 28, 2025

Thank you for your response. I had to take Hydrea for 18 months before I was...

https://connect.mayoclinic.org/comment/821980/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

I have PCV with Jak 2 . I take 2 baby aspirin a day and phlebotomy...

https://connect.mayoclinic.org/comment/919662/

Discussion: PV with high blood pressure and now edema??

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Fatigue is a major complaint. I nap almost every day. Taking 1000mg of hydroxyurea and baby...

https://connect.mayoclinic.org/comment/869738/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Hi @littlebluebird I’m so sorry your mom is having the nasty itchiness associated with MDS. As...

https://connect.mayoclinic.org/comment/1202303/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2025

I too experience chronic itching, primarily on my back and in the evening. I understand that...

https://connect.mayoclinic.org/comment/819136/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

For me itch is always worse when anything rubs against my skin, after I dress or...

https://connect.mayoclinic.org/comment/1378234/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2025

For me it was the hemoglobin always within range (17-19) , I also feel tired most...

https://connect.mayoclinic.org/comment/1022926/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2024