Blood Cancers & Disorders Support Group

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Comments (362)

@colleenyoung thank you for this really helpful information. It does does sound like my doctor may...

https://connect.mayoclinic.org/comment/328622/

Discussion: Newly diagnosed with “Thick Blood”. Should I be concerned?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

Do you have Polycythemia Vera or Polycythemia? If it’s primary, PV I would stick with your...

https://connect.mayoclinic.org/comment/1061818/

Discussion: Erythrocytosis (Polycythemia): Do I need an oncologist?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

I used to donate regularly for many many years before covid, then it started rising after...

https://connect.mayoclinic.org/comment/1038271/

Discussion: Does anyone have Hemocromatosis and??

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2024

My wife was actually diagnosed with Polycythemia Vera in 1978. Back then it wasn’t known as...

https://connect.mayoclinic.org/comment/759857/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2022

@bobala, Many people have asked a similar question when diagnosied with one of the several types...

https://connect.mayoclinic.org/comment/1318106/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2025

Hi @cherren11. I’d like to welcome you to Mayo Connect though I’m certainly sorry to hear...

https://connect.mayoclinic.org/comment/1025672/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2024

I also have been diagnosed Nov. 25th with Polycythemia my doctor is highly confident that it...

https://connect.mayoclinic.org/comment/782658/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2022

I know this is an old thread, but I saw the mention of Camp LeJeune. I...

https://connect.mayoclinic.org/comment/194352/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2020

Hi @leann1 and welcome to Mayo Connect. We have several members who are curious about purchasing...

https://connect.mayoclinic.org/comment/878028/

Discussion: Diagnosed with PV: Anyone used a home hemoglobin testing kit?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

Hello, new world. I am 47 and diagnosed yesterday with Polycythemia Vera. Headed to Mayo in...

https://connect.mayoclinic.org/comment/838030/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2023

@1pearl Hello friends! Thank you for your posts ! I am battling rare MPN CALLED MYELOFIBROSIS!!...

https://connect.mayoclinic.org/comment/1433127/

Discussion: Asked chatGPT about how long to be on treatment for Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2025

Lori, thank you very much for your comments, which are most helpful. My CT Scan was...

https://connect.mayoclinic.org/comment/840197/

Discussion: Hematocrit Continues to Drop After Stopping Hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Welcome Linda. Here you can connect with others living with Polycythemia Vera like @chadknudson @hope19 @atir...

https://connect.mayoclinic.org/comment/647644/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2021

My platelets bounce between 57 to 600 then back down to 80. I was on hydroxyurea...

https://connect.mayoclinic.org/comment/1083471/

Discussion: Which specific kind of doctor looks into thrombocytopenia?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

Hi everyone I just started taking hydroxyurea it’s only been a week. I’m on 500 one...

https://connect.mayoclinic.org/comment/1016598/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2024

Thank you for your quick response. Can you help me understand a bit more?--he said the...

https://connect.mayoclinic.org/comment/194309/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

Hi, Just diagnosed with Polycythemia Vera on Friday. Negative JAK2 test, but other genetic changes noted...

https://connect.mayoclinic.org/comment/231783/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2019

Hi @sap21981, from my research and understanding, a stem cell transplant for PV is rarely used....

https://connect.mayoclinic.org/comment/893527/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

I was diagnosed with polycythemia Vera in February 2026. Currently on 1000mg of hydroxyurea and 81...

https://connect.mayoclinic.org/comment/1548156/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 11 4:40pm

Yes, that’s exactly what I did. For two years, I had uncontrollable itching and no other...

https://connect.mayoclinic.org/comment/876352/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023

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