Blood Cancers & Disorders Support Group

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Comments (525)

Yes, I have a chronic fatigue--which is what prompted me to see my doctor 3 years...

https://connect.mayoclinic.org/comment/806066/

Discussion: Newly Diagnosed CLL Patients: Do you struggle with symptoms?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2023

Oddly enough, since my numbers are good now, I only have itching where clothing seams are...

https://connect.mayoclinic.org/comment/750195/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2022

Hi @emaddox Relentless itching is the worst, isn’t it? I can tolerate pain over itching any...

https://connect.mayoclinic.org/comment/923860/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

I was 75 and noticed severe itching after swim/bath. PC was uninterested in elevated hematocrit(57), but...

https://connect.mayoclinic.org/comment/885884/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

@carolgk Good morning? Thank you for mentioning Vonjo. I will ask my oncologist about it. I...

https://connect.mayoclinic.org/comment/1537693/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 29 7:16am

Hi again! If you read other comments about help with itching/burning , patients are taking JAKAFI...

https://connect.mayoclinic.org/comment/1363700/

Discussion: Severe itching with PV

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2025

I was diagnosed with T Cell Lymphoma (Sezary Syndrome) in 01/23. My understanding is that it’s...

https://connect.mayoclinic.org/comment/1108336/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2024

I’ve had ET for several years with a lot of itching like you. I was prescribed...

https://connect.mayoclinic.org/comment/817021/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

I use Hydroxyzine 25mg up to three times per day as needed. It's a great drug....

https://connect.mayoclinic.org/comment/1512334/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 22 6:56pm

@colleenyoung Good Morning friends , I JUST READTHIS AND OTHER POSTS WHERE FRIENDS ARE SUFFERING FROM...

https://connect.mayoclinic.org/comment/1416633/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2025

Hi Cindylb, I was diagnosed with cutaneous T-cell lymphoma in 2017. I had a hysterectomy and...

https://connect.mayoclinic.org/comment/1523568/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 9 9:28pm

@nancytrudeau. You’re so right, antihistamines can dry up more than a runny nose or relieve itching....

https://connect.mayoclinic.org/comment/1566184/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: May 4 8:40am

trillium @trillium, Uncontrollable itchy Itch (also known as pruritus) As child, use to scream all night...

https://connect.mayoclinic.org/comment/817073/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

I have been diagnosed with MDS 2016. Now I have been diagnosed with CMML. 3 yrs...

https://connect.mayoclinic.org/comment/1328601/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

@niki101, what type of chemo is your family member getting? Did they tell their cancer care...

https://connect.mayoclinic.org/comment/312760/

Discussion: Hodgkin's lymphoma and itching and other side effects

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2020

I too have itching issues. My count is in 700’s and I take 9 pills each...

https://connect.mayoclinic.org/comment/1582616/

Discussion: Is itching a normal side effect when taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: May 25 7:27am

Thank you! This is a recent development but it is everywhere mostly torso upper legs and...

https://connect.mayoclinic.org/comment/1094402/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

25 mg since March 3. 14 days on , 7 off in 21 day cycles. I...

https://connect.mayoclinic.org/comment/1286157/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2025

Thank you for sharing that bit of great news, @hlmcneely! You might just be a hero...

https://connect.mayoclinic.org/comment/1202641/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2025

@stanleykent what do you hink caused it? Were you under stress about anything? Have you had...

https://connect.mayoclinic.org/comment/1500583/

Discussion: Does anyone have splenic marginal zone lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 7 9:24pm

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