Blood Cancers & Disorders Support Group

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Comments (896)

My husband was diagnosed with CLL more than ten years ago. We are facing a secondary...

https://connect.mayoclinic.org/comment/1011809/

Discussion: CLL - Blood work Completed IGVA Mutation Analysis

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

Welcome to Connect, @triclonal. Thank you for sharing your positive experience taking Brukinsa. Messages like yours...

https://connect.mayoclinic.org/comment/1439842/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2025

@hikerny, I hope you've been following all the responses to your call for finding others who...

https://connect.mayoclinic.org/comment/1282525/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2025

Hi @david09 and welcome Mayo Connect. There are quite a few members in the forum who...

https://connect.mayoclinic.org/comment/1114765/

Discussion: Lymphoma fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024

I was diagnosed with CLL 3/4 years ago had an extremely low hemoglobin count after two...

https://connect.mayoclinic.org/comment/1515471/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Feb 27 5:55am

I met with Dr. Wang at Mayo yesterday. I asked about green tea in passing; he...

https://connect.mayoclinic.org/comment/799695/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Go see a CLL expert hematologist. Don’t mess with EGCG without expert advice.

https://connect.mayoclinic.org/comment/739086/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2022

Has anyone been told their spleen is enlarged with a tear leaking blood due to CLL?

https://connect.mayoclinic.org/comment/1320005/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2025

Welcome to Connect, @cll2020. Thank you for sharing your journey with CLL. It’s positive stories like...

https://connect.mayoclinic.org/comment/1091030/

Discussion: Is anyone taking Ibrutinib (Imbruvica)?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

@koyemah, are you being treated from CLL with Venclexta? How are you doing?

https://connect.mayoclinic.org/comment/1210137/

Discussion: To continue or stop Venclexta treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2025

This article seems to concentrate on asymptomatic patients. Have their been studies for symptomatic patients with...

https://connect.mayoclinic.org/comment/815484/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

I am 67 and was just diagnosed with CLL. Awaiting more testing and surgery. @shirlpat

https://connect.mayoclinic.org/comment/750637/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

I’m so happy to hear that Brukinsa has been effective with no side effects for 9...

https://connect.mayoclinic.org/comment/1500891/

Discussion: How are you managing Brukinsa side effects?

Support Group: Blood Cancers & Disorders

Posted: Feb 8 11:52am

Hi dimcdee, + 7 years with CLL and remain at level 0. Wishing you the best.

https://connect.mayoclinic.org/comment/764751/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2022

How is your CLL? It's been 4 years since your 2017 post.

https://connect.mayoclinic.org/comment/621793/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2021

Hi @tatayababa, I found some information for you that might help explain CLL and SLL, the...

https://connect.mayoclinic.org/comment/813986/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2023

Bone marrow biopsies are pretty rare these days; FISH test and other blood work gives sufficient...

https://connect.mayoclinic.org/comment/1395083/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2025

Yes I have, I've found some people that have some of my symptoms but are in...

https://connect.mayoclinic.org/comment/1233313/

Discussion: Anyone else experiencing these symptoms with CLL diagnosis....?

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2025

Finally :-) :-( I have a diagnosis from a Mayo CLL doc. He said I have...

https://connect.mayoclinic.org/comment/1044933/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

I see @colleenyoung’s link to Mayo Clinic hematologist, Sameer Parikh, M.B.B.S. The video is well worth...

https://connect.mayoclinic.org/comment/853727/

Discussion: New to CLL-no treatment-what to eat?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023