Blood Cancers & Disorders Support Group | Page 8

Good luck with the Besremi. I have been taking it for about a year and a...

https://connect.mayoclinic.org/comment/1235142/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2025

I was diagnosed last August with Pre Fibrotic Primary Myelofibrosis. I have a CALR mutation. My...

https://connect.mayoclinic.org/comment/1597952/

Discussion: Primary Myelofibrosis: How did you come to terms with the diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 14 2:34pm

After visiting the hematologist at Fred Hutch in Seattle, she sent me a letter informing me...

https://connect.mayoclinic.org/comment/1156023/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2024

@storm16 Good information. You would think with carnivore the iron would cause RBCs to increase a...

https://connect.mayoclinic.org/comment/1413727/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2025

Hi @eferret. Sounds like you have a good team behind you with your local hematologist and...

https://connect.mayoclinic.org/comment/1156861/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2024

Hi all, Just an update to my Besremi adventure. After a few months off Besremi, my...

https://connect.mayoclinic.org/comment/911825/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

In studies, Besremi has been successfully used for ET. It has been shown to reduce the...

https://connect.mayoclinic.org/comment/1488954/

Discussion: New study: Early treatment with interferon can delay myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jan 22 2:17pm

He just looked at my last set of labs and handed me the med sheet -...

https://connect.mayoclinic.org/comment/1321622/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

I'm 70, ET-CALR. On HU + ASA x 6 yrs. Blood counts stable in 400s. If...

https://connect.mayoclinic.org/comment/1296573/

Discussion: What’s the cost of Pegasys with good commercial insurance?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

@wlm7615 I have heard several patients report this. None of them healed up until they stopped...

https://connect.mayoclinic.org/comment/1472936/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 2 12:34pm

Hi @janem411. That first day with a new med is always a little stress inducing, isn’t...

https://connect.mayoclinic.org/comment/1154065/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2024

Hello, I have PV JAK2+ Diagnodes 3 1/2 years ago at age 55. I’ve been on...

https://connect.mayoclinic.org/comment/1628773/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Jul 25 5:08am

Just turned 67 and found I have ET and JAC2 mutation through a blood test and...

https://connect.mayoclinic.org/comment/1197829/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

I saw my haematologist today. My platelets are well within normal range after taking 100mcg Besremi...

https://connect.mayoclinic.org/comment/1345693/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2025

Hi there, I was also looking into a cooler for the same reason. I am trying...

https://connect.mayoclinic.org/comment/1328311/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

According to a study I read, HU has no benefit to middle aged ET patients unless...

https://connect.mayoclinic.org/comment/1296523/

Discussion: What’s the cost of Pegasys with good commercial insurance?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

@eferret I travel a lot and did a trial run on a short flight (2 hours)...

https://connect.mayoclinic.org/comment/1432833/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2025

My hematologist said that besremi may have the potential to shut down the jak gene. I...

https://connect.mayoclinic.org/comment/1495020/

Discussion: 71 year old female diagnosed 6 month ago with PV

Support Group: Blood Cancers & Disorders

Posted: Jan 31 12:58pm

Thank you, I am hopeful/ encouraged by the progression in medical technology and that I was...

https://connect.mayoclinic.org/comment/1210468/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2025

@cetzler I have had no side effects except constipation and very mild hair thinning. The hair...

https://connect.mayoclinic.org/comment/1638245/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 5 1:44pm