Blood Cancers & Disorders Support Group

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Comments (357)

I was diagnosed in 2013 at 42 years old. I am now 53. I was told...

https://connect.mayoclinic.org/comment/1203888/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 4 3:35pm

Thank you, Ginger. I know MGUS can lay dormant for one’s whole life. What I’m wondering...

https://connect.mayoclinic.org/comment/708550/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 15, 2022

Speaking to your need to find a new physician. Since 1980 (I just dated myself!) I...

https://connect.mayoclinic.org/comment/1046089/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2024

Thank you sstillwell for your comments on diet. Very helpful info. I have somewhat high IgM...

https://connect.mayoclinic.org/comment/654634/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2021

I read several studies on BCMA levels and MGUS progression. sBCMA levels were noticed to increase...

https://connect.mayoclinic.org/comment/672449/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2022

@loribmt Thanks, Lori. Just had my first full dose yesterday; will share my experience with folks...

https://connect.mayoclinic.org/comment/1042514/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

I have certainly had good days and bad. I think the MGUS diagnosis was easier as...

https://connect.mayoclinic.org/comment/868908/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: May 29, 2023

@psue4 Welcome to Mayo Clinic Connect. As you read through the posts here, you will find...

https://connect.mayoclinic.org/comment/823656/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2023

@henriques I will be 70 this year. I was diagnosed with MGUS November 2017, smoldering myeloma...

https://connect.mayoclinic.org/comment/811612/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

@kappaking I have Smoldering Myeloma. IgA at about 1300. Neither my Kappa Chains nor Kappa/Lamba ratio...

https://connect.mayoclinic.org/comment/1030816/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024

I had it done two weeks ago, following the suggestion of folks here to get a...

https://connect.mayoclinic.org/comment/1199440/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

I’m smoldering. Going to a neurologist in Feb (that’s how long our wait times are) but...

https://connect.mayoclinic.org/comment/1397140/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 20 9:01am

@mascot No, I did not have any fractures they can pinpoint. I had many testing procedures...

https://connect.mayoclinic.org/comment/761254/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2022

Welcome, @vera101. Sometimes when multiple myeloma doesn't cause any symptoms, treatment is not necessary right away....

https://connect.mayoclinic.org/comment/999656/

Discussion: Multiple myeloma: When to treat? When not to treat?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2024

I was diagnosed in 2005 with smoldering mgus. I see the cancer Dr twice yearly for...

https://connect.mayoclinic.org/comment/74592/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2019

@stevonmfl, I noticed that you wanted to add a URL to a video. You will be...

https://connect.mayoclinic.org/comment/676712/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2022

@omemee Please wait until the MRI is done. Images can be misleading. For now, don't do...

https://connect.mayoclinic.org/comment/720646/

Discussion: Multiple myeloma lytic lesions pelvic area. What treatments?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2022

@red7 I went from MGUS to smoldering myeloma, and then on to active multiple myeloma. I...

https://connect.mayoclinic.org/comment/654861/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2021

@anng53 Welcome to Mayo Clinic Connect, Ann! You're right that peripheral neuropathy can indeed be related...

https://connect.mayoclinic.org/comment/770262/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

Finally received the results of my BMB. Polycythemia Vera was confirmed. Additionally, my MGUS has progressed....

https://connect.mayoclinic.org/comment/714838/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2022