Blood Cancers & Disorders Support Group

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Comments (414)

I am in much the same situation. I have anemia to the point of having iron...

https://connect.mayoclinic.org/comment/978487/

Discussion: Iron deficiency anemia without an apparent cause

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2023

I have Smoldering Myeloma with high IgA and IgG which keeps on dropping. The last test...

https://connect.mayoclinic.org/comment/1016072/

Discussion: Most effective way to administer IVIG

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2024

Hi @trienbold, I found the posting @cheft had written regarding the five risk factors for smoldering...

https://connect.mayoclinic.org/comment/918484/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 25, 2023

Thank you SO much for replying, I was getting to MGUS worse case smoldering. He had...

https://connect.mayoclinic.org/comment/1188896/

Discussion: High Kappa Lamda ratio: What can affect the test?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2024

@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,...

https://connect.mayoclinic.org/comment/1041665/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

I believe right here at the Mayo Clinic you can look up hematologist oncologist based on...

https://connect.mayoclinic.org/comment/1465136/

Discussion: Experts on Smoldering Myoloma: Should I get a second opinion?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2025

Hi there, I was diagnosed with smoldering myeloma last month. I am finding it hard to...

https://connect.mayoclinic.org/comment/1210538/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2025

I am not knowledgeable about Waldenstrom’s but I live in Dayton MN and have SMM Smoldering...

https://connect.mayoclinic.org/comment/847350/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

@coynelane I echo the welcome to Mayo Clinic Connect. I just finished round 10 of Revlimid,...

https://connect.mayoclinic.org/comment/713046/

Discussion: High risk smoldering myeloma protocol after 24 cycles of Revlimid?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2022

I've had Smoldering for about 2 years now. High IgA (1300), very low IgG and IgM....

https://connect.mayoclinic.org/comment/804772/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2023

Greetings! I am checked quarterly to monitor my MGUS and see a hematologist/oncologist who specializes in...

https://connect.mayoclinic.org/comment/822862/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2023

I had a similar situation in 2018. I had smoldering myeloma. I started treatment with Revlimid...

https://connect.mayoclinic.org/comment/982709/

Discussion: How to know whether smoldering myeloma or multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

Thank you for your greeting. My status is smoldering myeloma. The purpose for stem cell collection...

https://connect.mayoclinic.org/comment/713063/

Discussion: High risk smoldering myeloma protocol after 24 cycles of Revlimid?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2022

Hi @doriskay79 There are different types of MDS, based on how many types of blood cells...

https://connect.mayoclinic.org/comment/1194231/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2024

There are numerous blood and urine tests which will be done to diagnose Multiple Myeloma. There...

https://connect.mayoclinic.org/comment/811299/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

@mguspixi25 My reply to you last night went somewhere, but not onto this forum! Multiple myeloma...

https://connect.mayoclinic.org/comment/930451/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

Yes, hip, horrible back pain, ribs and collar bone pain. Diagnosed in 2015 with Myeloma at...

https://connect.mayoclinic.org/comment/1012036/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

Hello Connie, yes I’m also testing every3 month. Haven’t tracked numbers lately ……but also in “smoldering...

https://connect.mayoclinic.org/comment/1211587/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2025

@beepoop ...I also have been diagnosed with MGUS, about 2 years ago. Also Igg kappa. It...

https://connect.mayoclinic.org/comment/81207/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

Most MGUS' do not progress any further. Some, of course, do to Smoldering (Asymetric) Myeloma (SM)...

https://connect.mayoclinic.org/comment/1170956/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2024