Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

245 total results

Comments (228)

In my Mom’s case, her doctor said the median of Vidaza treatments was an additional 5...

https://connect.mayoclinic.org/comment/1382566/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2025

He is taking the TIVSOBO daily until it doesn't work. Then the plan is to switch...

https://connect.mayoclinic.org/comment/934090/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2023

Hi @bettersleep68 Good to hear from you! It looks like slowly but surely your blast count...

https://connect.mayoclinic.org/comment/1331490/

Discussion: Looking for alternative for AML treatment with kidney failure.

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2025

Diagnosed in may 2023 with MDS/AML blasts of 26% forced me into hospital for first treatment...

https://connect.mayoclinic.org/comment/1206679/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2025

Thank you Justin , yes I have asked my Doctor and he says I,m doing fine...

https://connect.mayoclinic.org/comment/251918/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2019

Welcome to Connect, @grat1963. Oh my gosh, it’s so sad to hear about your sister and...

https://connect.mayoclinic.org/comment/1342943/

Discussion: MDS now progressing to AML and need to decide if time to start Vidaza

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2025

My husband found out in January he has myelofibrosis, it was a shock to us. He...

https://connect.mayoclinic.org/comment/1412275/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2025

Hi @doitbob How old are all these patients? Well, in this particular discussion most of the...

https://connect.mayoclinic.org/comment/1518676/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Mar 3 1:02pm

Has anyone else had problems with joint pain while taking Vidaza (Azacitidine) infusions for MDS? I...

https://connect.mayoclinic.org/comment/1548915/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 12 3:13pm

Hi Steve My case is similar to yours. I was treated with Hydroxyurea for7 yrs for...

https://connect.mayoclinic.org/comment/913626/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023

This is so encouraging. I am On venetoclax snd vidaza. I just finished my first 5...

https://connect.mayoclinic.org/comment/1408194/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2025

Hi @desertjulie. There are other drugs used to treat MDS, but your husband's physician probably recommended...

https://connect.mayoclinic.org/comment/88394/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2017

Hello! Thank you for your message, rjperk633 (@rjperk633). I relayed your words to my partner. She'll...

https://connect.mayoclinic.org/comment/1385329/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2025

Hi Elizabeth! That’s really great news about your husband’s response to the Vidaza. It has a...

https://connect.mayoclinic.org/comment/1273119/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2025

Have not heard of hearing loss after Vidaza shots . We have a problem here with...

https://connect.mayoclinic.org/comment/1419804/

Discussion: Has anyone had hearing loss after Azacitidine injections?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2025

@loribmt You are very comforting ! Thank you for being here on line . My husband...

https://connect.mayoclinic.org/comment/1524602/

Discussion: What disorders cause low red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 10:59am

I am sorry to hear about your dad. I have AML and just finished my first...

https://connect.mayoclinic.org/comment/1419669/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2025

Also looking for Rytelo information. It’s so new we may not get much for experience on...

https://connect.mayoclinic.org/comment/1199195/

Discussion: imetelstat/Rytelo MDS treatment anyone?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

Do you know what might be recommended when Revlimid for a 5q deletion patient fails? Procrit...

https://connect.mayoclinic.org/comment/856002/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: May 7, 2023

I had the itching tesllly bad and took loratadine which eventually kicked in. I was on...

https://connect.mayoclinic.org/comment/1430231/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025

1
…
5
6
7
8
9
…
12