Blood Cancers & Disorders: Discussions | Page 7

I may be oversimplifying it, but after being diagnosed with ET my doctor wanted to check...

https://connect.mayoclinic.org/comment/1132796/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Aug 29 10:29am

I, too, have a JAK2 mutation with a low hemoglobin, slight increase in WBCs and elevated...

https://connect.mayoclinic.org/comment/878925/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2023

also, to be clear.. I haven't been properly "diagnosed" yet I don't think... just my hematologist's...

https://connect.mayoclinic.org/comment/840529/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Does anyone else have severe itching and tingling all over really bad at night I have...

https://connect.mayoclinic.org/comment/1088584/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 17 11:49am

I was diagnosed with ET Jak2 over a year ago my PLTS range from 450 -...

https://connect.mayoclinic.org/comment/1146979/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 25 7:03am

Hi, Just diagnosed with Polycythemia Vera on Friday. Negative JAK2 test, but other genetic changes noted...

https://connect.mayoclinic.org/comment/231783/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2019

Interesting that Dr did a DNA analysis. I had a bunch of blood tests and a...

https://connect.mayoclinic.org/comment/812995/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2023

I believe my oncologist, a melanoma specialist, was only concerned with the melanoma and did not...

https://connect.mayoclinic.org/comment/646957/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2021

Hello @janemichele, welcome to Connect. It seems as though you have already done your research, but...

https://connect.mayoclinic.org/comment/284520/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2019

Most seem to start taking Hydroxyurea and low dose aspirin when first diagnosed with ET JAK2....

https://connect.mayoclinic.org/comment/787993/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2022

Hi, I have ET/JAK2 & Dr wants me to start Hydroxyurea 1 per day. I’m concerned...

https://connect.mayoclinic.org/comment/789840/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2022

According to my Heme doc, not all ETs are cancer. I have Jak2, which is not...

https://connect.mayoclinic.org/comment/894419/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2023

Good to know that u are doing good mam. I'm 32 and recently diagnosed with ET...

https://connect.mayoclinic.org/comment/967362/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2023

Being fatigued is the hydroxy it is a chemo medication which helps your bone marrow to...

https://connect.mayoclinic.org/comment/974124/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Hmmm I am from Canada. The HU capsules I was given are bright pink and blue....

https://connect.mayoclinic.org/comment/1161210/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Oct 22 8:20pm

Hi - I have been diagnosed with chronic eosinophilic leukemia and the test that diagnosed it...

https://connect.mayoclinic.org/comment/1062089/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: May 4 12:27pm

For everyone’s info, I messaged through the patient portal and was told up to 10 days...

https://connect.mayoclinic.org/comment/231795/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2019

I don't think anyone is telling people not to travel, just to take their meds and,...

https://connect.mayoclinic.org/comment/1089550/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 19 7:15am

I'm taking 1500mg of HU daily along and 325mg aspirin. I'm 74, have ET Jak2. My...

https://connect.mayoclinic.org/comment/861686/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

Hello and I am new to this. My brother just got his JAK2 V617F back and...

https://connect.mayoclinic.org/comment/834314/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

Blood Cancers & Disorders Support Group