Blood Cancers & Disorders Support Group

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Comments (1,381)

I will look into that with my Dr , can I ask your age? how high...

https://connect.mayoclinic.org/comment/1023672/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2024

Today I received results for the JAK2 V617F test and I am positive. A home sleep...

https://connect.mayoclinic.org/comment/783056/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2022

My Heme doc said there are basically 4 types of ET, and only one = cancer....

https://connect.mayoclinic.org/comment/877571/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

You should look at the MPN Research Foundation webpage for information regarding ET and the JAK2...

https://connect.mayoclinic.org/comment/328564/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

Yes, hemo scheduled JAK2 test. That was neg, but false negs happen, so she did the...

https://connect.mayoclinic.org/comment/1054719/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

Hello and I am new to this. My brother just got his JAK2 V617F back and...

https://connect.mayoclinic.org/comment/834309/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

Hi Linda- I’ve read studies showing vitamin D deficiency and blood clotting correlation in Jak2 mutations,...

https://connect.mayoclinic.org/comment/662205/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Yes, perfect, thanks. They found the CALR mutation on me. I still haven't figured out if...

https://connect.mayoclinic.org/comment/1102868/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Hi @hollz784 Oh golly, you have a lot going on right now and it’s understandable to...

https://connect.mayoclinic.org/comment/1442132/

Discussion: Jak2 mutations w/high WBC

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2025

Blood draw today. Platelets were down from 11/2. I know the platelets go down when I...

https://connect.mayoclinic.org/comment/973027/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2023

@1995victoria Based on this, there's no reason to think that your (or anyone else's) endometrial cancer...

https://connect.mayoclinic.org/comment/1419690/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 20, 2025

Hi @mumma, Welcome to Mayo Connect. I see you’ve been diagnosed with Polycythemia Vera and would...

https://connect.mayoclinic.org/comment/773417/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2022

I was recently diagnosed with MDS/MPN-RS-T with Jak2 mutation also. My doctor recommended this site. It...

https://connect.mayoclinic.org/comment/328593/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021

Hi @mcullen123 you may have noticed I moved your post to this existing discussion on Jak2...

https://connect.mayoclinic.org/comment/194295/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2019

I recently got diagnosed with PV Jak2 positive, thrombosis. I have had 2 phlebotomies and so...

https://connect.mayoclinic.org/comment/900498/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2023

I have ET JAK2 and was diagnosed using genetic blood tests. My doctor told me that...

https://connect.mayoclinic.org/comment/1022801/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2024

He is also Jak2 positive (which I should have stated). His blood pressure did come down...

https://connect.mayoclinic.org/comment/795695/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

My mom has mutated JAK2 and was told not changes to her medication for the Moderna...

https://connect.mayoclinic.org/comment/607450/

Discussion: Effect of COVID vaccine on Jak2 MPN

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2021

Good morning- Your comments are right on target. I need some direction as I seek clinical...

https://connect.mayoclinic.org/comment/663899/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2021

Hello, lindamarie! Others on this forum have been living with ET with the JAK2 driver for...

https://connect.mayoclinic.org/comment/1184720/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024