Blood Cancers & Disorders Support Group

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Comments (242)

Hi @suanne90. You’ve popped into a conversation in the Blood Cancers & Disorders Support Group. The...

https://connect.mayoclinic.org/comment/1166282/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2024

Hello @kapow and @winmil99. Welcome to Mayo Connect! I thought I’d include both of you in...

https://connect.mayoclinic.org/comment/887257/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Hi @healedbytheblood0119, you're right to do your research about best treatments for essential thrombocythemia. Anagrelide and...

https://connect.mayoclinic.org/comment/1010081/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

I also have ET. I need to find out if it is Essential Thrombocythemia or thrombocytosis?...

https://connect.mayoclinic.org/comment/805573/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2023

Just the hydroxy. i am still waiting to learn what the next step will be. My...

https://connect.mayoclinic.org/comment/791454/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2023

Hi, I have had Essential Thrombocythemia for over 15 years. I was on Anagrelide, and this...

https://connect.mayoclinic.org/comment/1202567/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 2 3:32pm

Hello - I have Essential Thrombocythemia but not diabetic. Have been treated with Hydroxyurea for sometime....

https://connect.mayoclinic.org/comment/1111717/

Discussion: Type 1 diabetes and essential thrombocythemia: Anyone have both?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Hi @sandy1959, while not specific to essential thrombocythemia and its treatments, I thought you might be...

https://connect.mayoclinic.org/comment/859808/

Discussion: Hair loss with ET and on hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

I have Essential Thrombocythemia. Started with 3 pills weekly of hydroxyurea, and now at once a...

https://connect.mayoclinic.org/comment/997644/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2024

Welcome to @laurenashleyy. My daughter is just a couple years older than you are and I...

https://connect.mayoclinic.org/comment/895467/

Discussion: Overwhelmed- diagnosed with Thrombocytosis & Leukocytosis

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Hi Victoria, I see that you haven't yet found answers regarding your bone pain. I merged...

https://connect.mayoclinic.org/comment/1142184/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2024

Okay, so I have a diagnosis, but it really is not that clear. The pathology report...

https://connect.mayoclinic.org/comment/806600/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2023

@platlite7, I hope you saw the helpful post from @loribmt with info from the American Diabetes...

https://connect.mayoclinic.org/comment/1111659/

Discussion: Type 1 diabetes and essential thrombocythemia: Anyone have both?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

I've seen lots of comments here about itchy, dry skin, and unfortunately I experience it too....

https://connect.mayoclinic.org/comment/1203450/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 4 6:12am

Essential thrombocythemia is an example of a myeloproliferative neoplasm. These are blood cancers that happen when...

https://connect.mayoclinic.org/comment/918211/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

I saw the following comment and it may help you understand this condition further : "...

https://connect.mayoclinic.org/comment/1102762/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

My platelets were 1094 when I was dx with Essential Thrombocythemia 4 or 5 months ago....

https://connect.mayoclinic.org/comment/923136/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2023

Saw haematologist all good. I still have essential thrombocythemia. Tests show slight scaring of the bone...

https://connect.mayoclinic.org/comment/1206674/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 8 10:08am

I have recently been diagnosed with Essential Thrombocythemia as I had slightly elevated platelets on routine...

https://connect.mayoclinic.org/comment/1260307/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Mar 17 12:00pm

Allow me to be the acronym buster (self-proclaimed :) MPN = Myeloproliferative neoplasms, a group of...

https://connect.mayoclinic.org/comment/328563/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020