Blood Cancers & Disorders Support Group

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Comments (207)

Okay, so I have a diagnosis, but it really is not that clear. The pathology report...

https://connect.mayoclinic.org/comment/806600/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2023

My platelets were 1094 when I was dx with Essential Thrombocythemia 4 or 5 months ago....

https://connect.mayoclinic.org/comment/923136/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2023

I saw the following comment and it may help you understand this condition further : "...

https://connect.mayoclinic.org/comment/1102762/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 10 8:16am

Allow me to be the acronym buster (self-proclaimed :) MPN = Myeloproliferative neoplasms, a group of...

https://connect.mayoclinic.org/comment/328563/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

Essential thrombocythemia is an example of a myeloproliferative neoplasm. These are blood cancers that happen when...

https://connect.mayoclinic.org/comment/918211/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

Hi @mtnlife, It’s wonderful news that there’s no sign of CML or other blood cancers. So...

https://connect.mayoclinic.org/comment/786698/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

Hi again. Thank you for the information. I called the mayo clinics, but not the finance...

https://connect.mayoclinic.org/comment/284521/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2019

Thanks for the question. I was diagnosed with Thrombocytosis, Essential Thrombocythemia and JAK2 gene mutation over...

https://connect.mayoclinic.org/comment/328592/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

@scnana Welcome to Mayo Clinic Connect! Getting a double diagnosis is certainly not for the faint-hearted,...

https://connect.mayoclinic.org/comment/1009127/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 3 7:55pm

I have essential thrombocythemia, with JAK2 gene. Diagnosed in 2022 after a emergency gall bladder operation....

https://connect.mayoclinic.org/comment/1020141/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Feb 21 8:12pm

Welcome, Lisa! Everyone’s story will be slightly different with a few similarities. We all have a...

https://connect.mayoclinic.org/comment/1162559/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25 10:17am

Thank you so much. My next appointment is March 13. They have been giving me a...

https://connect.mayoclinic.org/comment/808358/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Sounds like Essential Thrombocythemia (ET) which is one of the MPN diseases. I was originally diagnosed...

https://connect.mayoclinic.org/comment/328553/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2020

I have had Essential Thrombocythemia for over 8 years and been on Hydroxyurea (Hydrea) the whole...

https://connect.mayoclinic.org/comment/893493/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Triple Negative Essential Thrombocythemia hi all, I have seen my platelet counts going up over past...

https://connect.mayoclinic.org/comment/942512/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2023

I also had my platelets jump from 400 to 600 to 700 after 5 COVID shots....

https://connect.mayoclinic.org/comment/934091/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2023

Oh my - 12 BMB in 2 years! Wow. I am happy that you're experience with...

https://connect.mayoclinic.org/comment/607951/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2021

Welcome, @lourdene. There are many members here living with essential thrombocythemia with JAK2. Specifically, I believe...

https://connect.mayoclinic.org/comment/788174/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2022

Great to hear of someone doing well. Cheers. One thing I would say to consider, is...

https://connect.mayoclinic.org/comment/771273/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2022

Hi @cweible19782006 I just read through your reply and my first thought was, “Wow…with friends like...

https://connect.mayoclinic.org/comment/821825/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023