Blood Cancers & Disorders Support Group

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Comments (262)

I had my second Besremi injection last Wednesday morning. By early evening I felt very 'ordinary'....

https://connect.mayoclinic.org/comment/1266443/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2025

Hi @treeore Besremi interferon isn’t classified as an immunosuppresant but it’s intended to work by reducing...

https://connect.mayoclinic.org/comment/813117/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2023

ET-CALR x 17 years, on HU for 6, age 70. Did yr doc say why he...

https://connect.mayoclinic.org/comment/1321326/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

I had my third injection last week and saw my hematologist today for my regular three...

https://connect.mayoclinic.org/comment/1279206/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2025

Co-morbidities affect tolerance to HU, for sure. If you have side effects, you can try anagrelide...

https://connect.mayoclinic.org/comment/1239687/

Discussion: Hydroxyurea “Holidays” – How Long Have You Paused?

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2025

@lisanell Yes, I have a wonky mitral valve, and my cardiologist looked at HU vs anagrelide...

https://connect.mayoclinic.org/comment/1420909/

Discussion: Hydrea and joint pain

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2025

I too have ET and give myself injections of Besremi every two weeks. I cannot use...

https://connect.mayoclinic.org/comment/1307265/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 18, 2025

@mdramsey48 The only side effects I have on Besremi are a dry mouth (I drink a...

https://connect.mayoclinic.org/comment/1598337/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jun 15 6:28am

I would consider looking into Besremi as an alternative to hydroxyurea. It is injected every 2...

https://connect.mayoclinic.org/comment/1421654/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2025

I am Phase I (no fibrosis yet), and my Dr has recommended Interferon. There is some...

https://connect.mayoclinic.org/comment/1216238/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

@sdduan Question: I started HU and after 30 days I experienced extreme flu like symptoms, and...

https://connect.mayoclinic.org/comment/1582420/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: May 24 8:43pm

I started on HU after turning 60. My Hct shots up fast if eating iron rich...

https://connect.mayoclinic.org/comment/1224445/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2025

I am 82 and was diagnosed with ET JAK2 in 2022. I started with 500 mg...

https://connect.mayoclinic.org/comment/1645401/

Discussion: Long term medication Hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: 7 hours ago

@birgitr Ah, ok. Besremi isn't available here in Australia but Pegasys is. I see my haemo...

https://connect.mayoclinic.org/comment/1552563/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 17 8:16am

Hi Lori, Besremi did the trick on HCT and more than halved my Platelets in 6...

https://connect.mayoclinic.org/comment/865855/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

Just a thought: Have you talked to you doc about Besremi? It's an interferon injection they...

https://connect.mayoclinic.org/comment/1527292/

Discussion: ET under 50: I’m always the baby in these groups.

Support Group: Blood Cancers & Disorders

Posted: Mar 15 9:09am

@akeytoo aloha Keith! I just started on Besremi a couple weeks ago I give myself my...

https://connect.mayoclinic.org/comment/1429298/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Nov 2, 2025

I am looking at the cost for Besremi and WHOA! I may not be able to...

https://connect.mayoclinic.org/comment/1322345/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2025

@anahata1962 Just so you know, there are other drugs you can try for ET besides hydroxyurea...

https://connect.mayoclinic.org/comment/1607184/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jun 27 7:14am

@1pearl very nice to read your note. Yes, NGS testing completed in London Ontario. JAK2 V617F....

https://connect.mayoclinic.org/comment/1640049/

Discussion: Myelofibrosis: Is there an age limit for bone marrow transplant (BMT)?

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

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