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Comments (867)

My husband was recently diagnosed with Multiple Myeloma with Kidney Failure. Now waiting to see referring...

https://connect.mayoclinic.org/comment/1366455/

Discussion: Smoldering Multiple Myeloma and symptoms

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2025

@mycuppajava Welcome to Mayo Clinic Connect. Getting a diagnosis like multiple myeloma can certainly set your...

https://connect.mayoclinic.org/comment/1426123/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2025

This is information I found on the internet. Hope it helps. Causes: The exact cause of...

https://connect.mayoclinic.org/comment/1422404/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

Greetings! I am checked quarterly to monitor my MGUS and see a hematologist/oncologist who specializes in...

https://connect.mayoclinic.org/comment/822862/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2023

Heather! I love your new post/summary of your multiple-myeloma journey!! This is what Connect is all...

https://connect.mayoclinic.org/comment/903777/

Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 28, 2023

I believe you are correct. Every other disease that occurs and has progressive stages they do...

https://connect.mayoclinic.org/comment/1249581/

Discussion: Stopping Myeloma at the MGUS Stage

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2025

Welcome @coynelane. Allow me to bring fellow members @wyom1998 @cctoo @flightdeckjohnn @sylvia67 @lfevold @packgb19 @gingerw who...

https://connect.mayoclinic.org/comment/712869/

Discussion: High risk smoldering myeloma protocol after 24 cycles of Revlimid?

Support Group: Blood Cancers & Disorders

Posted: May 30, 2022

You may also be interested in these discussions related to Smoldering Multiple Myeloma: https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=smoldering&index=discussions

https://connect.mayoclinic.org/comment/1318979/

Discussion: Smoldering Multiple Myeloma and symptoms

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2025

I would like to know what to expect. I have just been diagnosed with Multiple Myeloma...

https://connect.mayoclinic.org/comment/1424748/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2025

Greetings! I’m sorry you had to join us but I’m glad you did. I think it’s...

https://connect.mayoclinic.org/comment/770689/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2022

@mguspixi25 My reply to you last night went somewhere, but not onto this forum! Multiple myeloma...

https://connect.mayoclinic.org/comment/930451/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

@hsminc Interesting. I had a titanium nickel alloy device placed in my heart 21 years ago....

https://connect.mayoclinic.org/comment/1462607/

Discussion: Smoldering Multiple Myeloma (SMM). Questions and Answers

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2025

my husband,by training, is a PhD inorganic chemist. He was a researcher and continues to be....

https://connect.mayoclinic.org/comment/965794/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

I've been meaning to post my experience - thanks for the encouragement - I've summarized it...

https://connect.mayoclinic.org/comment/903705/

Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 28, 2023

Is anyone dealing with either of these cancers? My oncologist is currently trying to rule out...

https://connect.mayoclinic.org/comment/1276256/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025

@pmm It seems the neuropathy is related to my multiple myeloma, and the spine/hip issues from...

https://connect.mayoclinic.org/comment/882571/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2023

Diagnosed (MM) Multiple Myeloma Jan '25 started Revlimid with my treatments- no side effects and my...

https://connect.mayoclinic.org/comment/1277892/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2025

Welcome @helen1313. Have you seen a doctor about the redness of your extremities, like your hands...

https://connect.mayoclinic.org/comment/738964/

Discussion: How frequently should a Multiple Myeloma patient receive urine tests?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2022

https://www.mskcc.org/news/diets-for-mgus-smoldering-myeloma-and-multiple-myeloma-q-with-msk-cancer-and-nutrition-experts Here is another link for you. Hope it helps!

https://connect.mayoclinic.org/comment/1159685/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2024

@hsminc Wow! I thought my driving 2.5 hrs each way was a lot! Fortunately, my oncologist...

https://connect.mayoclinic.org/comment/1232263/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2025