Blood Cancers & Disorders Support Group

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Comments (262)

Oh golly, @lrs1953. Life sure can feel overwhelming at times, especially when you’re under daily stress...

https://connect.mayoclinic.org/comment/1588272/

Discussion: Has anyone been on BESREMI (Interferon)?

Support Group: Blood Cancers & Disorders

Posted: Jun 1 9:53am

I have ET with JAK2. Please see my post: https://connect.mayoclinic.org/discussion/essential-thrombocythemia-treatment-with-besremi/?pg=3#comment-1321409 I am happy to answer any...

https://connect.mayoclinic.org/comment/1321411/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

I should have stuck with Hydroxyurea. The first Besremi shot in Feb. Biweekly thereafter. Starter dose...

https://connect.mayoclinic.org/comment/1386975/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2025

I have been on hydroxyurea since July. My white blood count has never been below 11...

https://connect.mayoclinic.org/comment/1243378/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

I just completed 1 yr on Besremi. I was diagnosed with PV in Dec/2023. I am...

https://connect.mayoclinic.org/comment/1429837/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025

Besremi may not be a normal ET med, 2 docs (both mpn specialists at research institutions)...

https://connect.mayoclinic.org/comment/1453474/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2025

@birgitr No, I have not taken any of the interferons. In talking with other ET patients,...

https://connect.mayoclinic.org/comment/1488678/

Discussion: New study: Early treatment with interferon can delay myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jan 22 9:47am

We are all different, bgreges, but for many of us with ET, HU works well to...

https://connect.mayoclinic.org/comment/1637116/

Discussion: Hesitant on starting Hydrea for ET Jak 2

Support Group: Blood Cancers & Disorders

Posted: Aug 4 4:32am

Thanks you for this info. My Dr sees no reason to pursue Besremi since HU is...

https://connect.mayoclinic.org/comment/1384490/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2025

@akeytoo Hi Keith, I was diagnosed with PV 5 1/2 years ago, after 2 1/2 on...

https://connect.mayoclinic.org/comment/1411878/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2025

I do have the Jak2V617F mutation. You explained alot to me and thank you. I'm happy...

https://connect.mayoclinic.org/comment/1494990/

Discussion: 71 year old female diagnosed 6 month ago with PV

Support Group: Blood Cancers & Disorders

Posted: Jan 31 12:36pm

I had my first Besremi injection yesterday at my health fund clinic. It was a painless...

https://connect.mayoclinic.org/comment/1251559/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

@sarahgault I use to take Hydroxyurea. I do know that one of the side effects is...

https://connect.mayoclinic.org/comment/1554924/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 20 5:38am

@nohrt4me I’ve Had ET two yrs Now On HU But Started Besremi two Wks Ago 50mg...

https://connect.mayoclinic.org/comment/1532502/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 22 6:37am

Update: I went off Besremi after the 6 first injections, but over these 2.5 months w/o...

https://connect.mayoclinic.org/comment/893584/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

@sunshine1983 Hi i’m on Besremi For my ET on 150mcg Started March 1st on 50mcg two...

https://connect.mayoclinic.org/comment/1566470/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: May 4 1:00pm

Glad you were able to get approval for Besremi. Please let us know how you're doing...

https://connect.mayoclinic.org/comment/1224459/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2025

That's great to hear that the besremi is working for you. My platelet count was holding...

https://connect.mayoclinic.org/comment/1472647/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 2 7:34am

Hi @leene808 I want to extend my welcome to Connect. Having no experience with these particular...

https://connect.mayoclinic.org/comment/1321402/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

@sunshine1983 Thanks for sharing your story. I am also triple negative and started taking Besremi 200mcg...

https://connect.mayoclinic.org/comment/1543316/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Apr 5 12:05pm

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