Blood Cancers & Disorders Support Group

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Comments (1,127)

I was diagnosed 3 years ago with PV and positive for Jak 2. I take 2...

https://connect.mayoclinic.org/comment/869702/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

I was diagnosed in January with jak 2 mutation and ET. I’m new to this sight...

https://connect.mayoclinic.org/comment/845004/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

My platelets have steadily increased over the last 4-5 years. Always a little high resulting in...

https://connect.mayoclinic.org/comment/833183/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2023

I am an active 82 yr old female. For 10 years I had an elevated platelet...

https://connect.mayoclinic.org/comment/796396/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2023

@eansgardengirl Hello, and welcome! I too have a new diagnosis of ET, and trying to navigate...

https://connect.mayoclinic.org/comment/778643/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

I do not have ET but I do have PV. Your ET is one of the...

https://connect.mayoclinic.org/comment/776954/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2022

I would like info on EPO value and how that relates to ET and JAk 2....

https://connect.mayoclinic.org/comment/594544/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2021

I have had Essential Thrombocytosis for almost 6 years now(with 1,250,000 platelet count) Was started on...

https://connect.mayoclinic.org/comment/146320/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2021

3 years ago I was diagnosed with ET abut after a Bone Marrow biopsy, I was...

https://connect.mayoclinic.org/comment/328569/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2020

Is JAK 2 the same as policythemia vera. My dr. said only that the test was...

https://connect.mayoclinic.org/comment/194307/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

I have had leukemia for 3 yrs before being diagnosed with Jak 2

https://connect.mayoclinic.org/comment/194292/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2019

Perhaps so. It appears to be too coincidental that my platelet count went out of control...

https://connect.mayoclinic.org/comment/1205151/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 9:13am

I have ET with JAK 2, diagnosed for a few years now. I take one hydrea...

https://connect.mayoclinic.org/comment/1205210/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 10:05am

Thank you for responding – – all of you – – very much appreciated. I found...

https://connect.mayoclinic.org/comment/1088714/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

I’m new to this group and appreciate reading both the new and older posts. The first...

https://connect.mayoclinic.org/comment/1086852/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2024

I was diagnosed right away with Essential Thrombocythemia. (ET) having 1,250,000 platelets when first diagnosed. I...

https://connect.mayoclinic.org/comment/1051269/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

I have been diagnosed with ET Jak 2 last June. I am 70 , vegetarian x...

https://connect.mayoclinic.org/comment/1016618/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2024

I have been on HU, 500 mg daily for ET, JAK 2 positive, for almost 2...

https://connect.mayoclinic.org/comment/1005395/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2024

I am 75 years old and was diagnosed three years ago with PCV and Jak 2...

https://connect.mayoclinic.org/comment/985815/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

I have the same situation and my oncologist put me on hydroxyurea 500 mg a day....

https://connect.mayoclinic.org/comment/981420/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023