Blood Cancers & Disorders Support Group

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Comments (1,102)

I’m JAK 2 positive, platelets in 700s. Started hydroxyurea 1000mg/day 2 weeks ago. Am experiencing unusually...

https://connect.mayoclinic.org/comment/848233/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2023

I have been trying to get help and told this is what I have, 2 years...

https://connect.mayoclinic.org/comment/806632/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2023

I was recently diagnosed with JAK-2 gene as well, but my hematologist was led to doing...

https://connect.mayoclinic.org/comment/796425/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2023

I was diagnosed with ET in May 2015. A good doctor in Venezuela South America diagnosed...

https://connect.mayoclinic.org/comment/792319/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

I have Jak 2 and I am taking hydroxicarbate also known as poly Vera I would...

https://connect.mayoclinic.org/comment/773381/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2022

I was diagnosed w Polycythemia Vera in 2020 when routine lab work showed HCT of 61.3....

https://connect.mayoclinic.org/comment/737723/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2022

I find your post informative because I was diagnosed with MGUS in 2019. It’s a blood...

https://connect.mayoclinic.org/comment/729097/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2022

I was diagnosed with ET and Jak 2 I was taking a baby aspirin daily though...

https://connect.mayoclinic.org/comment/598589/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 1, 2021

Myself, platelets getting higher, was told I have JAK 2 mutation - clueless as to what...

https://connect.mayoclinic.org/comment/325701/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Nov 26, 2020

Early 70's yrs, 5 mos ago annual wellness check indicated platelet count @ 600, now exceeds...

https://connect.mayoclinic.org/comment/194355/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2020

I am JAK-2 positive and I have not experienced back spasms, left side pains, left shoulder...

https://connect.mayoclinic.org/comment/194276/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2019

Here's a link to the NCCN website (National Comprehensive Cancer Network) that is full of great...

https://connect.mayoclinic.org/comment/1201848/

Discussion: Has anyone had a total knee replacement that also has JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 1 2:08pm

I can relate to the low adrenal function. I am 48, diagnosed with PV last year,...

https://connect.mayoclinic.org/comment/1126529/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2024

Hi, Vicky, I am 70, CALR+, have had ET for about 15 years. Doing OK, no...

https://connect.mayoclinic.org/comment/1103555/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2024

My platelets bounce between 57 to 600 then back down to 80. I was on hydroxyurea...

https://connect.mayoclinic.org/comment/1083471/

Discussion: Which specific kind of doctor looks into thrombocytopenia?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

How to manage the itch related to Jak-2 Mutation

https://connect.mayoclinic.org/comment/1036859/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2024

I am 73 years old. My brother also has essential throbocytosis because we inherited the same...

https://connect.mayoclinic.org/comment/1035204/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2024

I'm 69 years old and had a bone marrow biopsy last November after a blood test...

https://connect.mayoclinic.org/comment/1031862/

Discussion: What is doc looking for with a Bone Marrow Biopsy?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

I have PCV and Jak 2 positive. At the moment I am seeing two oncologist one...

https://connect.mayoclinic.org/comment/1018723/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2024

I totally agree, I myself just started on Hydroxyurea , first, it was every day, but...

https://connect.mayoclinic.org/comment/993687/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024