Blood Cancers & Disorders Support Group | Page 5

I was diagnosed with Waldenstrom Syndrome in 2013 . I received 2 years of chemo ....

https://connect.mayoclinic.org/comment/672571/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2022

Welcome to Mayo Connect. I was diagnosed with WM in 2014. I am an IWMF (International...

https://connect.mayoclinic.org/comment/624405/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2021

@jproctor Welcome to Mayo Clinic Connect. Have you been diagnosed with Waldenstroms? There are several discussions...

https://connect.mayoclinic.org/comment/615496/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2021

Hi again. Thank you for the information. I called the mayo clinics, but not the finance...

https://connect.mayoclinic.org/comment/284521/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2019

Hi @brewmaster, welcome to Connect. I moved your message to this existing discussion about Waldenstrom macroglobulinemia...

https://connect.mayoclinic.org/comment/256249/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2019

@sstouten, while we wait for other members to join this discussion, I'd encourage you to view...

https://connect.mayoclinic.org/comment/169958/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

He has autonomic neuropathy caused by his Waldenstroms (non-Hodgkins lymphoma). Not diagnosed until recently so pretty...

https://connect.mayoclinic.org/comment/113908/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2016

Hi joplin, I also had debilitating muscle spasms - especially at night which is caused by...

https://connect.mayoclinic.org/comment/1485701/

Discussion: Does anyone with Myelofibrosis suffer musscle spasm?

Support Group: Blood Cancers & Disorders

Posted: Jan 18 1:29pm

@danaufkes The neurologist I saw seemed to connect my PN and my Waldenstroms lymphoma. My H/O...

https://connect.mayoclinic.org/comment/1460857/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2025

It’s been a blessing to connect daily with others who share similar concerns. I was diagnosed...

https://connect.mayoclinic.org/comment/1452770/

Discussion: Thanks: Just want to say thank you

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025

Does anyone have Waldenström's macroglobulinemia. Are you taking the medication Brukinska. Is it working OK for...

https://connect.mayoclinic.org/comment/1450629/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2025

The short answers are "diagnosed about two years ago and active surveillance until last month". But...

https://connect.mayoclinic.org/comment/1442191/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2025

@loribmt also in googling my blood test results showed probability dx of either Waldenström macroglobulinemia (WM)...

https://connect.mayoclinic.org/comment/1435921/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2025

@zeedee1, I added your question to the Brain Tumor support group here: https://connect.mayoclinic.org/group/brain-tumor-support-group/ Use the group...

https://connect.mayoclinic.org/comment/1429389/

Discussion: Waldenstroms patient diagnosed with brain menigioma: What to expect?

Support Group: Blood Cancers & Disorders

Posted: Nov 2, 2025

Navigating all of these issues is trying. I’m staying optimistic for family but every once in...

https://connect.mayoclinic.org/comment/1425917/

Discussion: Waldenstroms patient diagnosed with brain menigioma: What to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2025

What are some of the symptoms to watch for? My Dad had Waldenstroms. I understand it...

https://connect.mayoclinic.org/comment/1374443/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2025

Been on Brukinsa, Ruxience And ivg infusions on along with dexamethosone for Waldenstroms. Bad reactions to...

https://connect.mayoclinic.org/comment/1366291/

Discussion: Treatment for CLL: Any experiences with Brukinsa (zanobrutinib)?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2025

I am on Brukinsa and infusions of Ruxience, octigam and dexamethosone. The Brukinsa was giving me...

https://connect.mayoclinic.org/comment/1357489/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2025

I-am on Brukinsa , Ruxience and octigam for Waldenstroms. Severe diarrhea with Brukinsa . New side...

https://connect.mayoclinic.org/comment/1347909/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2025

Currently diagnosed with Waldenstrum ( blood & bone), taking Burkinsa & seems to be helping..wondering if...

https://connect.mayoclinic.org/comment/1347179/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025