Blood Cancers & Disorders: Discussions | Page 5

@vasu11, you may also be interested in these related discussions: - Is anyone taking Ibrutinib (Imbruvica)?...

https://connect.mayoclinic.org/comment/909770/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2023

Don't fixate too much on this at this point. I went to neurologist for tingling toes....

https://connect.mayoclinic.org/comment/898502/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2023

Hi @nandita9009 The best way to initiate an appointment request would be to go directly to...

https://connect.mayoclinic.org/comment/891236/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

I was diagnosed and treated for Waldenstrom in Jun2018. Do you or anyone else know at...

https://connect.mayoclinic.org/comment/866061/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

I’m not sure if you’ve been to this site or not but there’s some good information...

https://connect.mayoclinic.org/comment/863823/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2023

Brukinsa is also known as Zanubrutinib. There are few members in the forum who have experience...

https://connect.mayoclinic.org/comment/845063/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

Hello @marymoreau1948, Welcome to Mayo Connect. There are several other members in our support group who...

https://connect.mayoclinic.org/comment/844573/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 17, 2023

Thank you for reaching out for help. No doubt you are overwhelmed right now. Mayo Clinic...

https://connect.mayoclinic.org/comment/828678/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2023

I was diagnosed with MGUS over a year ago while my primary doctor was testing me...

https://connect.mayoclinic.org/comment/1288052/

Discussion: M-Spike and Lambda light chain increasing while KL ratio decreasing

Support Group: Blood Cancers & Disorders

Posted: Apr 23 9:14am

I've been diagonosed with Waldenstrum in my blood & bones & currently taking Brukinsa meds. I...

https://connect.mayoclinic.org/comment/1289645/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Apr 25 11:41am

I was diagnosed in 2023. Bone Marrow biopsy showed MYD88 gene mutation thus diagnosed with Waldenstrom’s...

https://connect.mayoclinic.org/comment/1186920/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2024

What symptoms should I be looking for with Waldenstroms? After three years I am still preety...

https://connect.mayoclinic.org/comment/1311248/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 23 2:21pm

Welcome @breathernow. Having a fatigue as your travel companion is a real drag…though there are plenty...

https://connect.mayoclinic.org/comment/1311658/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 24 8:08am

Hi @loribmt , my name is Mike and I am from Australia, I am 68 and...

https://connect.mayoclinic.org/comment/1346868/

Discussion: Lymphoma doc at Mayo Rochester

Support Group: Blood Cancers & Disorders

Posted: Jul 12 10:31pm

Currently diagnosed with Waldenstrum ( blood & bone), taking Burkinsa & seems to be helping..wondering if...

https://connect.mayoclinic.org/comment/1347179/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Jul 13 11:29am

I-am on Brukinsa , Ruxience and octigam for Waldenstroms. Severe diarrhea with Brukinsa . New side...

https://connect.mayoclinic.org/comment/1347909/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Jul 14 9:57am

Been on Brukinsa, Ruxience And ivg infusions on along with dexamethosone for Waldenstroms. Bad reactions to...

https://connect.mayoclinic.org/comment/1366291/

Discussion: Treatment for CLL: Any experiences with Brukinsa (zanobrutinib)?

Support Group: Blood Cancers & Disorders

Posted: Aug 8 10:16am

I am on Brukinsa and infusions of Ruxience, octigam and dexamethosone. The Brukinsa was giving me...

https://connect.mayoclinic.org/comment/1357489/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Jul 27 10:03am

This is an update to my previous comment on Oct 14. My labs last week indicated...

https://connect.mayoclinic.org/comment/1178624/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2024

Diagnosed with Waldenstroms disease. Thank you for the information. I confess I know very little about...

https://connect.mayoclinic.org/comment/1169803/

Discussion: Does plant-based eating lower chances of MGUS progressing to myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2024

Blood Cancers & Disorders Support Group