Blood Cancers & Disorders Support Group

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Comments (310)

Hi Tracy. I'm Amanda and I was diagnosed last spring at age 56. My MGUS was...

https://connect.mayoclinic.org/comment/793921/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

Kappa light chain IgM- MGUS Anyone else suffering from MGUS? Mine is slowly progressing and at...

https://connect.mayoclinic.org/comment/731433/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2022

Thank you- much appreciated. I have some bone pain, but nothing to scream about. Multiple myeloma...

https://connect.mayoclinic.org/comment/728026/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2022

Thank you so much for your reply. I had elevated kappa light chains, and was diagnosed...

https://connect.mayoclinic.org/comment/720463/

Discussion: Multiple myeloma lytic lesions pelvic area. What treatments?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2022

I am being monitored yearly for MGUS and possibly coincidentally I am osteoporotic in my femur...

https://connect.mayoclinic.org/comment/698850/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2022

Thank you for your words of encouragement. I'm not really fearful about the MGUS or CAD....

https://connect.mayoclinic.org/comment/660169/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2021

Hi again. Thank you for the information. I called the mayo clinics, but not the finance...

https://connect.mayoclinic.org/comment/284521/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2019

I too have MGUS diagnosed about 7 years ago. Canker sore started about 1 year ago....

https://connect.mayoclinic.org/comment/1144136/

Discussion: Recurring severe mouth ulcers and MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2024

Since the MGUS labs and the rheumatology labs are both twice a year, it would be...

https://connect.mayoclinic.org/comment/1132883/

Discussion: MGUS Bloodwork Frequency

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2024

You have a busy life, and losing your mom is it's own journey. My husband's diagnosis...

https://connect.mayoclinic.org/comment/1114527/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024

I was diagnosed with MGUS after having severe back pain from a thoracic vertebral compression fracture...

https://connect.mayoclinic.org/comment/1068531/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: May 15, 2024

Same Same Same Ridiculous fatigue. Cannot even keep up with the mundane anymore. Pain problems. Recovery...

https://connect.mayoclinic.org/comment/1036770/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2024

Hi Jeannie. You have a number of tests coming up so I do hope you find...

https://connect.mayoclinic.org/comment/1019977/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

Hi, I was diagnosed this past January with MGUS. I do have the fatigue which is...

https://connect.mayoclinic.org/comment/1019678/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

I have bone pain as well. It’s not to the point where I can’t walk but...

https://connect.mayoclinic.org/comment/1013148/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2024

Yes, hip, horrible back pain, ribs and collar bone pain. Diagnosed in 2015 with Myeloma at...

https://connect.mayoclinic.org/comment/1012036/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

Hi everyone. My name is Jeannie and I am 48 years old. I was recently diagnosed...

https://connect.mayoclinic.org/comment/1008040/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024

@gingerw , thank you for your helpful reply. Last night I got 2 more results, one...

https://connect.mayoclinic.org/comment/974185/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2023

I also have leg and joint pain. The knees and hips. It’s not a bone on...

https://connect.mayoclinic.org/comment/970678/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2023

It seems all that registers is waiting and getting the worst answer of all, it sounds...

https://connect.mayoclinic.org/comment/958987/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023