Blood Cancers & Disorders Support Group

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Comments (115)

Hi Lori. If I have already answered you please bear with me. lol. The hydroxy lowered...

https://connect.mayoclinic.org/comment/1098871/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Follow your instincts! Continue to search for solutions. Try the resources that Lori gave you. My...

https://connect.mayoclinic.org/comment/1550163/

Discussion: Primary Myelofibrosis: so unsure of everything, need answers

Support Group: Blood Cancers & Disorders

Posted: Apr 14 7:44am

I am always so sad to hear stories from people who can't get a firm diagnosis...

https://connect.mayoclinic.org/comment/1002401/

Discussion: At my wits end. Not sure where to go from here.

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2024

I have bern on and off hydroxy for CMML which turned into AML I didn’t have...

https://connect.mayoclinic.org/comment/1352523/

Discussion: F/w PV- JAK2-pre-mylelofibrosis SCARED to start Hydroxyurea. Help!

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2025

I have only taken hydroxyurea and Jakafi. I was in a clinical study for a while...

https://connect.mayoclinic.org/comment/1368004/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

I have had CMML for over 10 years. I started initially on HU for a couple...

https://connect.mayoclinic.org/comment/1666894/

Discussion: Diagnosed with CMML. On HU for past 6 months. Considering BESREMi.

Support Group: Blood Cancers & Disorders

Posted: Sep 9 11:12am

Hi @trijacks and welcome to Mayo Connect. Good grief, so your family doctor kept putting off...

https://connect.mayoclinic.org/comment/1463280/

Discussion: They say I have CMML but bone marrow not there: What to do?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2025

This gives me hope. I have been diagnosed with CMML border line AML. I have 6...

https://connect.mayoclinic.org/comment/1098689/

Discussion: Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Lori always has a wealth of knowledge to share with us when we are first diagnosed...

https://connect.mayoclinic.org/comment/1183515/

Discussion: What treatment options for CMML2 with no detected mutations ?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024

Welcome to Connect, @lmoser325 Chronic Myelomonocytic Leukemia (CMML) is a type of leukemia disrupts the formation...

https://connect.mayoclinic.org/comment/1219683/

Discussion: They say I have CMML but bone marrow not there: What to do?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

My cardiologist finally decided after 2 years of 80,000 to 120,000 platelets and Hgb of 12.5...

https://connect.mayoclinic.org/comment/1367918/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

Hi Lori: I just got out of the hospital. I came down with COVID and it...

https://connect.mayoclinic.org/comment/1134099/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2024

I have been taking Hydroxyurea daily for nearly 10 months. I have Langerhans Cell Histiocytosis, skin...

https://connect.mayoclinic.org/comment/146313/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2020

2 weeks ago diagnosed with CMML 1 with Myelofibrosis 3+/3, after my 3rd Bone Marrow Aspiration...

https://connect.mayoclinic.org/comment/1509609/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 19 10:30am

Hi there. . I had breast cancer 18 yrs ago and I progressed from MDS for...

https://connect.mayoclinic.org/comment/1451060/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2025

Hi my name is Jacklyn and I have been diagnosed with AML progressing from CMMl. My...

https://connect.mayoclinic.org/comment/1337842/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

I was diagnosed with CMML 9 years ago, and after a BMB they added myelofibrosis to...

https://connect.mayoclinic.org/comment/1435240/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2025

I think steveduke is saying that the people on this forum are not doctors and you...

https://connect.mayoclinic.org/comment/1384972/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2025

Well I got my results back from my blood test and the hydroxyurea brought my white...

https://connect.mayoclinic.org/comment/1335937/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2025

I have CMML/MF and have been dealing with itching for ten years. Jakafi works to some...

https://connect.mayoclinic.org/comment/1431290/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2025

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