Blood Cancers & Disorders: Discussions | Page 5

Good Evening Justin! At this time no additional protocols are in place relative to Multiple Myeloma....

https://connect.mayoclinic.org/comment/282782/

Discussion: Does anyone have amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2019

@loribmt Thanks, Lori. Just had my first full dose yesterday; will share my experience with folks...

https://connect.mayoclinic.org/comment/1042514/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30 3:07am

Hello @tlcox49. You are facing a lot of symptoms and diagnoses. I am inspired by your...

https://connect.mayoclinic.org/comment/104733/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2018

I was diagnosed with MGUS about 4.5 years ago and now I have been Diagnosed with...

https://connect.mayoclinic.org/comment/1100052/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 5 11:53pm

I've just got my diagnosis of AL amyloidosis today after having a bunch of testing and...

https://connect.mayoclinic.org/comment/88311/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2019

Hi @suebridges123. From my understanding, Al Amyloidosis is caused by a bone marrow disorder. In AL...

https://connect.mayoclinic.org/comment/1107012/

Discussion: What is the current protocol for al Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 17 9:16am

Happy to hear you are doing well. My husband was diagnosed with Cardiac Amyloidosis this past...

https://connect.mayoclinic.org/comment/898862/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

@jstpeachy Thank you in advanced for including my husband in your prayers warriors. I will do...

https://connect.mayoclinic.org/comment/903397/

Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 28, 2023

@beckyoutlaw1115 Maybe you have heard or read something that interests me. I have been reading about...

https://connect.mayoclinic.org/comment/172294/

Discussion: Treatment for amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2018

I was diagnosed with mgus April 2023, just diagnosed with lymphocytic colitis with colonoscopy biopsy. Starting...

https://connect.mayoclinic.org/comment/1035480/

Discussion: MGUS, SMM or MM With Chronic Diarrhea Or Other GI Maladie?

Support Group: Blood Cancers & Disorders

Posted: Mar 17 9:53pm

Have not had a definitive answer to what type Amyloidosis I have . Had bone marrow...

https://connect.mayoclinic.org/comment/104722/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018

Just to update: my doctor lowered Velcade dosage and That has made heartburn and stomach pain...

https://connect.mayoclinic.org/comment/217298/

Discussion: Chemo side effects

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2018

The reason they suspected amyloids is I have trouble breathing, carpal tunnel, enlarged tongue, and neuropathy....

https://connect.mayoclinic.org/comment/842875/

Discussion: Amyloidosis symptoms, negative fat pad biopsy?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

Hello Anonymous, Multiple Myeloma is a cancer of the plasma cells of the bone marrow, while...

https://connect.mayoclinic.org/comment/50124/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2012

Good morning, @vmarra, the best thing that’s happened is that your mom is now in the...

https://connect.mayoclinic.org/comment/726680/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2022

Ibrutinib seems to be keeping my lab levels in check and will continue with it instead...

https://connect.mayoclinic.org/comment/663091/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

I am having amyloidosis on skin..Doctor told not to scrub but i don't even touch it...

https://connect.mayoclinic.org/comment/244391/

Discussion: Macular amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2019

If it is SMM then likely waiting to see if it morphs to MM. I don't...

https://connect.mayoclinic.org/comment/1151734/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 4 9:28am

I would love to connect with someone who has MM and amyloidosis like I do just...

https://connect.mayoclinic.org/comment/874406/

Discussion: Diagnosed with both multiple myeloma and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2023

Welcome to Connect, @dcp45. I'd like to introduce you to @azjulie whose husband has Waldenstrom's Macroglobulinemia....

https://connect.mayoclinic.org/comment/70600/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2017

Blood Cancers & Disorders Support Group