Blood Cancers & Disorders Support Group

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Comments (272)

As you might remember, I have Cancer>MM>Amyloidosis>Gelsolin, among other things. As you know, Gelsolin is a...

https://connect.mayoclinic.org/comment/621871/

Discussion: Want to help Mayo Clinic improve our Multiple Myeloma website?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2021

Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...

https://connect.mayoclinic.org/comment/169956/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

I'm tagging @robertreidrx @jam5 and others who have experience with Wild-type ATTR Amyloidosis (ATTRwt) to join...

https://connect.mayoclinic.org/comment/1265110/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Mar 23 4:20pm

Is anyone dealing with either of these cancers? My oncologist is currently trying to rule out...

https://connect.mayoclinic.org/comment/1276256/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 7 9:22am

My husband was recently diagnosed on May with Cardiac Amyloidosis in Mayo Clinic-Jacksonville FL His Kappa/Lambda,...

https://connect.mayoclinic.org/comment/898854/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

@oliviahutson My husband was suffering from the same symptoms except the bzck issues. He visited the...

https://connect.mayoclinic.org/comment/906775/

Discussion: Looking for advice: Could this be MGUS, because of low m-spike?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2023

Hi @jan52241. Welcome to Connect! I'm sorry to hear you have felt alone in this diagnosis...

https://connect.mayoclinic.org/comment/104684/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2016

Labs were done prior to the office visit Repeat labs and follow-up office visit in 3...

https://connect.mayoclinic.org/comment/753810/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2022

I have MGUS, diagnosed about 4 years ago, now I have also been diagnosed with Amyloidosis....

https://connect.mayoclinic.org/comment/1100049/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2024

Hello @tlcox49. You are facing a lot of symptoms and diagnoses. I am inspired by your...

https://connect.mayoclinic.org/comment/104733/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2018

@loribmt Thanks, Lori. Just had my first full dose yesterday; will share my experience with folks...

https://connect.mayoclinic.org/comment/1042514/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

I was diagnosed with MGUS about 4.5 years ago and now I have been Diagnosed with...

https://connect.mayoclinic.org/comment/1100052/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2024

I've just got my diagnosis of AL amyloidosis today after having a bunch of testing and...

https://connect.mayoclinic.org/comment/88311/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2019

Hi @suebridges123. From my understanding, Al Amyloidosis is caused by a bone marrow disorder. In AL...

https://connect.mayoclinic.org/comment/1107012/

Discussion: What is the current protocol for al Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2024

Happy to hear you are doing well. My husband was diagnosed with Cardiac Amyloidosis this past...

https://connect.mayoclinic.org/comment/898862/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

@jstpeachy Thank you in advanced for including my husband in your prayers warriors. I will do...

https://connect.mayoclinic.org/comment/903397/

Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 28, 2023

No, I have not had a bone marrow biopsy. I have been going to all kinds...

https://connect.mayoclinic.org/comment/1340784/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 4 6:55am

I was diagnosed with mgus April 2023, just diagnosed with lymphocytic colitis with colonoscopy biopsy. Starting...

https://connect.mayoclinic.org/comment/1035480/

Discussion: MGUS, SMM or MM With Chronic Diarrhea Or Other GI Maladie?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2024

Have not had a definitive answer to what type Amyloidosis I have . Had bone marrow...

https://connect.mayoclinic.org/comment/104722/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018

The reason they suspected amyloids is I have trouble breathing, carpal tunnel, enlarged tongue, and neuropathy....

https://connect.mayoclinic.org/comment/842875/

Discussion: Amyloidosis symptoms, negative fat pad biopsy?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023