Blood Cancers & Disorders Support Group

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Comments (307)

@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,...

https://connect.mayoclinic.org/comment/1041665/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

I’m trying to connect with someone who not only has multiple myeloma but also amyloidosis to...

https://connect.mayoclinic.org/comment/873112/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

ah. Are you concerned there could be other things happening like amyloidosis? I'm the worrier who...

https://connect.mayoclinic.org/comment/1118177/

Discussion: Paraprotein & Light chains

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2024

My husband was diagnosed with MGUS not long ago. He went to a cardiologist in Jacksonville...

https://connect.mayoclinic.org/comment/931005/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2023

Hi @marykatr, your post led me to do a bit of internet searching. I learned that...

https://connect.mayoclinic.org/comment/1183818/

Discussion: Anyone w/ both AL Amyloidosis & Acquired Von Willebrand Syndrome?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2024

An "easy" test for amyloidosis is a fat pad biopsy in which the doctor removes a...

https://connect.mayoclinic.org/comment/1450003/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2025

FLC is free light chains (kappa and lambda). Measurement of these is used to help diagnoses...

https://connect.mayoclinic.org/comment/1144049/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2024

@casey1329 My husband who is 80 yrs old has been suffering for months with the same...

https://connect.mayoclinic.org/comment/900586/

Discussion: Possible Al Amylodiois

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2023

Hi @honeymamabee, I expanded the title of your discussion to reflect your question and added it...

https://connect.mayoclinic.org/comment/1117967/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2024

My diagnosis is in. Negative for amyloidosis. A hypertrophic, asymmetrical heart wall septum, plus a slightly...

https://connect.mayoclinic.org/comment/1220047/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

Hi Becky, if you go to this site again that @colleenyoung posted, you’ll see a box...

https://connect.mayoclinic.org/comment/738621/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Hi @jan44, I'm sure @vmarra would appreciate connecting with you. I see AL amyloidosis is a...

https://connect.mayoclinic.org/comment/775150/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

@kayabbott I had the abdomen biopsy that came back negative. However, I had a spinal biopsy...

https://connect.mayoclinic.org/comment/1456295/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2025

Amyloidosis can be tested with a fat pad biopsy. They take a small bit of abdominal...

https://connect.mayoclinic.org/comment/1378108/

Discussion: Testing for Amyloids with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2025

I have had MGUS for 4.5 years. The strategy has been to monitor it with blood...

https://connect.mayoclinic.org/comment/1101928/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 8, 2024

Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...

https://connect.mayoclinic.org/comment/169956/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

@sigman I hope your amyloidosis treatment is effective. Amyloidosis is a hard. My bone marrow (MGUS),...

https://connect.mayoclinic.org/comment/1456324/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2025

Hi @jebcyn Welcome to Mayo Connect. It’s inspirational that you’re a 10 year survivor! Would you...

https://connect.mayoclinic.org/comment/782272/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Is anyone dealing with either of these cancers? My oncologist is currently trying to rule out...

https://connect.mayoclinic.org/comment/1276256/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025

I'm tagging @robertreidrx @jam5 and others who have experience with Wild-type ATTR Amyloidosis (ATTRwt) to join...

https://connect.mayoclinic.org/comment/1265110/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2025