Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

291 total results

Comments (257)

I, too, am interested in what feedback others have. My platelets are in the 500s and...

https://connect.mayoclinic.org/comment/941103/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Weclome @lwengel, as you likely already know, the most common treatment for polychythemia vera (PV) is...

https://connect.mayoclinic.org/comment/738023/

Discussion: When is hydroxurea usually added to treat polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2022

I have had MGUS, then smouldering myeloma since 2013 with very small increases. 2 years ago...

https://connect.mayoclinic.org/comment/746666/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

Hi @lwengel, this sounds like a really good question to ask your doctors. Sometimes you have...

https://connect.mayoclinic.org/comment/770258/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

I originally had a platelet count of 555 that started my journey. I was diagnosed with...

https://connect.mayoclinic.org/comment/780489/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2022

Hi @pennyhedgecoth, I'm tagging @stevehurlburt on this reply since I think your question about genetic testing...

https://connect.mayoclinic.org/comment/591406/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2021

Hi Keith, I moved your message to this existing discussion: - BESREMi anyone? https://connect.mayoclinic.org/discussion/besremi-anyone/ I did...

https://connect.mayoclinic.org/comment/911723/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

What was your Iron before the infusion? Mine has been between 4 and 6. And I...

https://connect.mayoclinic.org/comment/999945/

Discussion: Polycythemia and lack of iron

Support Group: Blood Cancers & Disorders

Posted: Jan 19 8:42am

Hi @cindyem I just read another comment you posted about having PV and anemia. From information...

https://connect.mayoclinic.org/comment/884148/

Discussion: Does anyone have information on PV with a low hemoglobin/ red count

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

Hi all. In December, I was diagnosed with a JAK2 mutation. Finally had my appointment with...

https://connect.mayoclinic.org/comment/231778/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2019

Hi @chella65 I found a relevant discussion for you with other members who have PV and...

https://connect.mayoclinic.org/comment/881483/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2023

Wow That’s a bit crazy especially being that that particular blood test is very expensive! Mine...

https://connect.mayoclinic.org/comment/1058604/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 28 6:41am

Hi @saucy, In this case PV is Polycythemia Vera. It’s A type of blood cancer where...

https://connect.mayoclinic.org/comment/818232/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2023

I have seen my family doctor who sent me for more bloodwork. I seen a specialist...

https://connect.mayoclinic.org/comment/780564/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2022

Welcome to Connect, @eferret. Polycythemia vera is from a group of blood conditions called myeloproliferative neoplasms....

https://connect.mayoclinic.org/comment/1125122/

Discussion: How much of a risk factor is high white blood cell count with pv?

Support Group: Blood Cancers & Disorders

Posted: Aug 16 8:56pm

Interesting, isn’t it? I never would have put together sleep apnea or lack of sleep together...

https://connect.mayoclinic.org/comment/781950/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

Welcome to Connect, @patpambern. Having itchy skin seems to be pretty common with Polycythemia Vera. There...

https://connect.mayoclinic.org/comment/1036922/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 20 8:31am

New here. Being tested for primary vs secondary polycythemia Vera. Trying to stay away from Google...

https://connect.mayoclinic.org/comment/875474/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

Hi @favy2. It would be great for someone who needs therapeutic blood draws to be able...

https://connect.mayoclinic.org/comment/851324/

Discussion: Is it safe to have a tattoo if you have Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

Welcome to Connect @mahmoudbakry. Diagnosis blood conditions can get a little tricky. It’s often like trying...

https://connect.mayoclinic.org/comment/1022164/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 25 9:10am