Blood Cancers & Disorders Support Group

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Comments (951)

My brother and I have the JAK 2 mutation. I take 500 mg of Hydrea but...

https://connect.mayoclinic.org/comment/981617/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

I too would like information on foods. I researched the foods not to eat and they...

https://connect.mayoclinic.org/comment/981634/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

I was diagnosed with PCV 3 months ago, but had itching symptoms since 2019. I tested...

https://connect.mayoclinic.org/comment/729287/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2022

I have a diagnosis of ET strictly on (slightly) elevated platelets and a positive JAK 2...

https://connect.mayoclinic.org/comment/728817/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

I have PCV and Jak 2 positive. At the moment I am seeing two oncologist one...

https://connect.mayoclinic.org/comment/1018723/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2024

I totally agree, I myself just started on Hydroxyurea , first, it was every day, but...

https://connect.mayoclinic.org/comment/993687/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

Hi, Vicky, I am 70, CALR+, have had ET for about 15 years. Doing OK, no...

https://connect.mayoclinic.org/comment/1103555/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2024

My platelets bounce between 57 to 600 then back down to 80. I was on hydroxyurea...

https://connect.mayoclinic.org/comment/1083471/

Discussion: Which specific kind of doctor looks into thrombocytopenia?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

I also questioned whether the vaccine had anything to do with my platelets increasing. I had...

https://connect.mayoclinic.org/comment/1123727/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2024

I can relate to the low adrenal function. I am 48, diagnosed with PV last year,...

https://connect.mayoclinic.org/comment/1126529/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2024

How to manage the itch related to Jak-2 Mutation

https://connect.mayoclinic.org/comment/1036859/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2024