Blood Cancers & Disorders: Discussions | Page 48

Hi @lavender28 Welcome to Mayo Connect. It helps to know you’re not alone in a diagnosis....

https://connect.mayoclinic.org/comment/858668/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023

Hi Rose, You were recently diagnosied with ET, which means your body is producing too many...

https://connect.mayoclinic.org/comment/1114556/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024

hello. I was diagnosed with ET over 25 years ago, while young and in the Service...

https://connect.mayoclinic.org/comment/890155/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Not sure I understand that question. About a yr and 1/2 ago. My Hgb/HCT was found...

https://connect.mayoclinic.org/comment/662436/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Hi chrisatwell I am 65 and was diagnosed with ET on January 10, 2025 which my...

https://connect.mayoclinic.org/comment/1267651/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 26 9:21pm

Hi @monarenae Welcome to Mayo Clinic Connect! In this community based forum, we’re not medical professionals...

https://connect.mayoclinic.org/comment/609161/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2021

Good morning, @chella65. Thank you for your kind words. I’m happy I can be that voice...

https://connect.mayoclinic.org/comment/912141/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Probably doesn't matter how I made my decision. Everyone has different ideas, fears, and circumstances. If...

https://connect.mayoclinic.org/comment/778790/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

Hi Lynne, I see @janemc's wise words about the lack of information. There are a couple...

https://connect.mayoclinic.org/comment/1282117/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Apr 14 10:25pm

Hello Lori. Thank you for your response and congratulations in apparently overcoming leukemia. My Wife has...

https://connect.mayoclinic.org/comment/912090/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Yes, sick stomach from Hydrea, massive hair loss after 2 years of taking the stuff, initially...

https://connect.mayoclinic.org/comment/951861/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2023

Hello, I'm sorry to hear of your challenges that sound quite to similar to my own....

https://connect.mayoclinic.org/comment/1264623/

Discussion: Anyone struggling with Polycythemia Vera, low iron and Hypothyroidism?

Support Group: Blood Cancers & Disorders

Posted: Mar 23 7:29am

Hi @sonja239. I understand your duress with having received news that you have two myeloproliferative blood...

https://connect.mayoclinic.org/comment/1097321/

Discussion: Why is a new bone marrow biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

Hi Lori, long time no talk! Wishing you a very happy & healthy 2024. Wanted to...

https://connect.mayoclinic.org/comment/1004117/

Discussion: Secondary polycythemia: What are the treatment options?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2024

Hi @mags17 I’m sorry if there was some confusion but my reply was written to @lostmonk...

https://connect.mayoclinic.org/comment/936391/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Hi Lori, I've been a forum slacker, thanks for reaching back out to check on me....

https://connect.mayoclinic.org/comment/919551/

Discussion: PV with high blood pressure and now edema??

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Good morning everyone! I am a 50 year old female and went to get my annual...

https://connect.mayoclinic.org/comment/756950/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2022

Hi @ruthiek519 , Happy belated Birthday despite getting the diagnosis none of us want. I think...

https://connect.mayoclinic.org/comment/1312721/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 25 3:50pm

@1pearl, I found another member diagnosed with MF with the CALR mutation and have put the...

https://connect.mayoclinic.org/comment/1256632/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 10:51pm

Not sure if this is the place to write a follow up note. I have written...

https://connect.mayoclinic.org/comment/194314/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2019

Blood Cancers & Disorders Support Group