Blood Cancers & Disorders Support Group

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Comments (2,273)

Our platelet count is constantly fluctuating—even people without ET. Your doctor is probably fine with it...

https://connect.mayoclinic.org/comment/1275514/

Discussion: My platelet count has increased after a year on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2025

Hi @bohobruja Welcome to Mayo Connect. The National Institute of Health defines chronic myeloproliferative disorders as...

https://connect.mayoclinic.org/comment/786594/

Discussion: Does anyone else have more than one myeloproliferative disorder?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

Normal platelets are 150 to 450 per LabCorp. Also, your other counts are normal. I would...

https://connect.mayoclinic.org/comment/942814/

Discussion: Pros and Cons of JAK2 testing

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

I have had ET for 10 years and take the same dosage as you. I have...

https://connect.mayoclinic.org/comment/913340/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023

"MPN" = myeloproliferative neoplasm! How's that for a tongue twister? MPNs are blood cancers, including ET....

https://connect.mayoclinic.org/comment/1202363/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2025

I was diagnosed. with ET 3 years ago. I have been taking hydrea since I first...

https://connect.mayoclinic.org/comment/865571/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 23, 2023

God, yes, the "migraine hangover" is the worst part of the visual distortions. You feel tired...

https://connect.mayoclinic.org/comment/832885/

Discussion: How does ET affect one’s vision?

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2023

@loribmt ET was discovered through an al physical. I had had no symptom and was shocked...

https://connect.mayoclinic.org/comment/1450121/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2025

I had a terrible, painful experience back in 2012..think th he young doc had only worked...

https://connect.mayoclinic.org/comment/1139600/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2024

I am 75 years old, have ET and am currently taking 1500mg of hydroxyurea daily with...

https://connect.mayoclinic.org/comment/1011625/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

It sounds like you mean Essential Thrombocytosis, often referred to on this form as ET. It...

https://connect.mayoclinic.org/comment/1066397/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024

My DNA was not done with bone marrow, just blood work, I think out of Florida....

https://connect.mayoclinic.org/comment/1051275/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

Yes, just to reiterate what was said above, patients with ET should never donate blood or...

https://connect.mayoclinic.org/comment/1047370/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2024

I'm still asking why anagrelide isn't suggested more often for ET...my platelets 18 years ago were...

https://connect.mayoclinic.org/comment/1324935/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2025

@alisam A diagnose of ET is confirmed by a bone marrow test. Thus, a second opinion...

https://connect.mayoclinic.org/comment/1448225/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2025

I moved to Jakafi 2 years ago after becoming intolerant to hydroxyurea after about 5 years...

https://connect.mayoclinic.org/comment/1244461/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2025

At 73, I've been traveling world wide since ET diagnosis some 20 years ago...I do wear...

https://connect.mayoclinic.org/comment/1090037/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2024

I am an 80 year old female with ET. I have been on hydrea for over...

https://connect.mayoclinic.org/comment/1104101/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2024

I am very sorry. I wasn't responding to your specific concern about B12, and I should...

https://connect.mayoclinic.org/comment/887346/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

with ET taking HU, I found my skin got very dry and itchy if I took...

https://connect.mayoclinic.org/comment/823071/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2023