Blood Cancers & Disorders Support Group

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Comments (2,234)

I have been diagnosed with mgus for a bit over a year. I also have lung...

https://connect.mayoclinic.org/comment/777875/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2022

@colleenyoung Thank you for tagging me in to this. My path to MGUS was a little...

https://connect.mayoclinic.org/comment/74595/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2020

I'm a patient at mayo clinic and I get tested every 6 mos to monitor my...

https://connect.mayoclinic.org/comment/296794/

Discussion: Leukopenia ( low white blood count)

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2020

Hi Dazln, My MGUS was discovered in 2012. To date my M protein has remained low,...

https://connect.mayoclinic.org/comment/292606/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2020

A wonderful myeloma researcher at Mayo once told us that not everyone who has MGUS gets...

https://connect.mayoclinic.org/comment/1431810/

Discussion: Starting MGUS journey: It feels like the "in limbo" disease

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2025

Thanks for the link. It appears that the study is using patients: 1043 persons with IgG,...

https://connect.mayoclinic.org/comment/1335774/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2025

To follow up on my post 3 days ago. I am the 70-year-old that was diagnosed...

https://connect.mayoclinic.org/comment/1250436/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2025

I have IgA kappa MGUS (8 years); kappa is almost 300 and kappa/lambda ratio is 29....

https://connect.mayoclinic.org/comment/1199260/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

I am 77 yrs old and was diagnosed with MGUS 2 1/2 yrs ago by a...

https://connect.mayoclinic.org/comment/1090559/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2024

I have some kind of immune disorder as well they havent figured out what i been...

https://connect.mayoclinic.org/comment/1076759/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

My kappa lambda ratio is 3.36. I was diagnosed with MGUS after chasing a diagnosis for...

https://connect.mayoclinic.org/comment/1038591/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2024

If it helps to know: I was diagnosed with MGUS last week and I presented with...

https://connect.mayoclinic.org/comment/1256130/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2025

@angk welcome to the forum. MGUS sometimes progresses to Smoldering Multiple Myeloma. I believe that to...

https://connect.mayoclinic.org/comment/958940/

Discussion: MGUS and understanding results

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

@karishmagupta Hello and welcome to Mayo clinics connect forum. I remember when I was diagnosed with...

https://connect.mayoclinic.org/comment/1191006/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

@laurinea greetings! I’m glad you found us. I don’t know why medical professionals don’t sit patients...

https://connect.mayoclinic.org/comment/944643/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2023

@ajbonett MGUS is often found while another health issue is being investigated. If we look at...

https://connect.mayoclinic.org/comment/930741/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

I also have MGUS diagnosed 12 years ago. Everything has been pretty good numbers increasing slowly...

https://connect.mayoclinic.org/comment/719801/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

CRISPR : Gene Therapy (Experimental/Research Stage)**: - While not yet mainstream, gene therapies aim to correct...

https://connect.mayoclinic.org/comment/1163052/

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

@psue4 Knowledge is power. and can make things less formidable. This I firmly believe! As with...

https://connect.mayoclinic.org/comment/827787/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

Good morning @brit1959 There are a number of members in the Mayo Connect forum who have...

https://connect.mayoclinic.org/comment/737261/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2022