Blood Cancers & Disorders Support Group

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Comments (888)

Hello Cindy; It sounds like you have a doctor that is doing a good job for...

https://connect.mayoclinic.org/comment/1167522/

Discussion: Primary Myelofibrosis with JAK2: Anyone have Ojjaara (momelotinib)?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2024

Hi @jps01, I have to admit one of the most difficult things for me is to...

https://connect.mayoclinic.org/comment/928548/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Yep... I'm in there with both of you. MDS and MF. There are a couple of...

https://connect.mayoclinic.org/comment/900672/

Discussion: MDS: How to improve my condition in watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2023

Updating, I am day 17 after transplant. I must say I do not dig into treatments...

https://connect.mayoclinic.org/comment/1058025/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Apr 26, 2024

Lori, I LOVE your post. My work has kept me so busy unpacking and sorting I...

https://connect.mayoclinic.org/comment/1301318/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 10 4:25pm

Good morning, and Welcome to Connect, @mary612 First, take a deep breath, hold it for 4...

https://connect.mayoclinic.org/comment/1033851/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 15, 2024

It has been a while on this thread. I had my 1-month appointment follow-up Friday the...

https://connect.mayoclinic.org/comment/1210207/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 12 9:29pm

Does anyone here have experience with 5q deletion? A little background: My age 77 husband was...

https://connect.mayoclinic.org/comment/226237/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2019

Howard, it’s really positive that your doctors now feel you might qualify for a stem cell...

https://connect.mayoclinic.org/comment/842806/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

I also was part of a research study to lessen the chance of GVHD. Tacrolimus was...

https://connect.mayoclinic.org/comment/1087079/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 15, 2024

I am a 76 yr old Man with both MDS and MF. It started out as...

https://connect.mayoclinic.org/comment/927487/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2023

Hi dear sweet Lori... You continue to blow me away with how much you know and...

https://connect.mayoclinic.org/comment/650867/

Discussion: Acute Myeloid Leukemia with Aberrant CD7

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2021

Hi @jrwilli1, if it’s any incentive at all for your husband to follow through with a...

https://connect.mayoclinic.org/comment/772966/

Discussion: Anyone have bone marrow transplant for aplastic anemia?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 14, 2022

Today was day 52 after transplant and i got to talk with the Doctor. Overall, he...

https://connect.mayoclinic.org/comment/1078702/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 31, 2024

@g4c I hope after reading some of the comments by fellow members who have had BMT...

https://connect.mayoclinic.org/comment/1220909/

Discussion: What are you doing to keep AML from relapse after transplant?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 24 9:40pm

You are correct, everyone is different. 16 year ago a routine physical showed that my platelets...

https://connect.mayoclinic.org/comment/957727/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 2, 2023

Hi @lmkmom, most of us whom have had a BMT are very willing to talk about...

https://connect.mayoclinic.org/comment/1368897/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 12 8:48am

I am day 89 past transplant. Crazy. Coming out of the hospital on April 29th, I...

https://connect.mayoclinic.org/comment/1101279/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 7, 2024

I didn't change from the Procrit until my HGB started dropping. As for other treatments, I...

https://connect.mayoclinic.org/comment/894875/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Hi, first, I was going to try to respond just to Audrey, but try as I...

https://connect.mayoclinic.org/comment/1138125/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2024