Blood Cancers & Disorders Support Group

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Comments (1,027)

Hi @girlmidget. My heart goes out to both you and your husband with this emotional MDS...

https://connect.mayoclinic.org/comment/1266821/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2025

Hi @drawlings0803 It’s a good thing you had the biopsy so that your doctor could get...

https://connect.mayoclinic.org/comment/1262609/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 20, 2025

@dancouclanel4 I’m seriously moved to tears reading these 3 replies from you of your life and...

https://connect.mayoclinic.org/comment/1240977/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2025

Thanks Lori. I should know by now not to try and control everything in my life...

https://connect.mayoclinic.org/comment/1120728/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

Does anyone have this blood disorder? Vidaza is the only treatment I know of. I take...

https://connect.mayoclinic.org/comment/226235/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2019

What a terrific post of info by roywalton. I cannot believe the journey i have been...

https://connect.mayoclinic.org/comment/1313366/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 26, 2025

Hi @bacher, Welcome to Connect. Congratulations on your SCT for AML. I’m happy to see you...

https://connect.mayoclinic.org/comment/1264969/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 23, 2025

Hi @sgt, I’m grateful @sueinmn brought me into this conversation. Oh gosh, believe me, I know...

https://connect.mayoclinic.org/comment/755932/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

Hi Debbie, I was diagnosed in January 2019 at Sloan after a bone marrow procedure and...

https://connect.mayoclinic.org/comment/328594/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021

This - and others who have posted similar - is quite helpful as it seems am...

https://connect.mayoclinic.org/comment/1335057/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2025

Yes I had a Bone Marrow Biopsy (my third) on July 10th, just as I was...

https://connect.mayoclinic.org/comment/1112723/

Discussion: 2 weeks for BMB results now Pathology is adding several weeks more

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

There are a series of genetic tests that can be performed to help determine mutations, as...

https://connect.mayoclinic.org/comment/252004/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

Day 106 post allogenic transplant for my beloved husband. It’s been quite a ride. His transplant...

https://connect.mayoclinic.org/comment/1185289/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Dec 6, 2024

I thought my husband just had the flu. He had a fever and some chest congestion...

https://connect.mayoclinic.org/comment/1134680/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2024

As I understand it, the SRSF2 mutation is worse than the SBF31 mutation as it relates...

https://connect.mayoclinic.org/comment/328556/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

I get it… within the last 3 years my father passed away so the concept of...

https://connect.mayoclinic.org/comment/1386754/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2025

Welcome, @terdor! MDS treatments aren’t “one size fits all” because there are variables with each person....

https://connect.mayoclinic.org/comment/1286328/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2025

Not yet; so far, only my platelets have gone down. The rest are still normal. I...

https://connect.mayoclinic.org/comment/1160042/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2024

To all of you. This road is not easy, and fear is waiting for you. Do...

https://connect.mayoclinic.org/comment/1098199/

Discussion: I am newly diagnosed with AML. with the inv(3) mutation,

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2024

Good morning, @vng I know what it’s like to plunge into the world of blood cancer...

https://connect.mayoclinic.org/comment/1524541/

Discussion: What disorders cause low red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 9:59am