Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,122 total results

Comments (1,035)

Hi everyone, I'm Bonnie and I have MDS/MPN with Myelofibrosis 3. I live in Southern Oregon...

https://connect.mayoclinic.org/comment/1322924/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 8, 2025

I am 80 yo as well. Blood disorder manifested into MDS/AML May 2023. Blasts 26%. By...

https://connect.mayoclinic.org/comment/1240547/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2025

Wow. caregiverx2- I started reading your post and felt sad. Oh no. Then on you went...

https://connect.mayoclinic.org/comment/1196045/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Dec 23, 2024

I have MF and MDS. My spleen was huge and the pain and discomfort were bad....

https://connect.mayoclinic.org/comment/1002865/

Discussion: What relieves pain from an enlarged spleen in leukemia?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2024

Hi Jacklyn, my husband was first diagnosed with MDS last Oct and recently progressed to AML....

https://connect.mayoclinic.org/comment/1337905/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

Hi all. My nausea only hit me in the 2nd and3rd week in the hospital. Started...

https://connect.mayoclinic.org/comment/1319647/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 3, 2025

What a terrific post of info by roywalton. I cannot believe the journey i have been...

https://connect.mayoclinic.org/comment/1313366/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 26, 2025

@anthoney Since 2020, I have continued on the roller coaster. My hgb has been as high...

https://connect.mayoclinic.org/comment/1524066/

Discussion: Anyone diagnosed with warm Autoimmune Hemolytic Anemia?

Support Group: Autoimmune Diseases

Posted: Mar 10 2:27pm

Hi @bacher, Welcome to Connect. Congratulations on your SCT for AML. I’m happy to see you...

https://connect.mayoclinic.org/comment/1264969/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 23, 2025

I have been diagnosed with MDS 2016. Now I have been diagnosed with CMML. 3 yrs...

https://connect.mayoclinic.org/comment/1328601/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

Hi @girlmidget. My heart goes out to both you and your husband with this emotional MDS...

https://connect.mayoclinic.org/comment/1266821/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2025

Hi @drawlings0803 It’s a good thing you had the biopsy so that your doctor could get...

https://connect.mayoclinic.org/comment/1262609/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 20, 2025

@dancouclanel4 I’m seriously moved to tears reading these 3 replies from you of your life and...

https://connect.mayoclinic.org/comment/1240977/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2025

Thanks Lori. I should know by now not to try and control everything in my life...

https://connect.mayoclinic.org/comment/1120728/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

Does anyone have this blood disorder? Vidaza is the only treatment I know of. I take...

https://connect.mayoclinic.org/comment/226235/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2019

Hi @sgt, I’m grateful @sueinmn brought me into this conversation. Oh gosh, believe me, I know...

https://connect.mayoclinic.org/comment/755932/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

Hi Debbie, I was diagnosed in January 2019 at Sloan after a bone marrow procedure and...

https://connect.mayoclinic.org/comment/328594/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021

This - and others who have posted similar - is quite helpful as it seems am...

https://connect.mayoclinic.org/comment/1335057/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2025

Yes I had a Bone Marrow Biopsy (my third) on July 10th, just as I was...

https://connect.mayoclinic.org/comment/1112723/

Discussion: 2 weeks for BMB results now Pathology is adding several weeks more

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

There are a series of genetic tests that can be performed to help determine mutations, as...

https://connect.mayoclinic.org/comment/252004/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019