Blood Cancers & Disorders Support Group

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Comments (905)

Hi @swansm50, and welcome to Mayo Clinic Connect. It looks like your diagnosis with multiple myeloma...

https://connect.mayoclinic.org/comment/754477/

Discussion: BMT for multiple myeloma and have questions about Caregiver

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 27, 2022

My mother has been ill with a variety of issues that no one could figure out...

https://connect.mayoclinic.org/comment/88324/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2019

@scnana, there is certainly a lot of information out there but so much of it is...

https://connect.mayoclinic.org/comment/1006285/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2024

Olivia, welcome. I read through your post a couple of times, and I was a little...

https://connect.mayoclinic.org/comment/938647/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2023

@frazer1 I was diagnosed with MGUS when in my early 50's and I just turned 69....

https://connect.mayoclinic.org/comment/820552/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

I have had it about the same time. MY GP tells me no worries as the...

https://connect.mayoclinic.org/comment/1353358/

Discussion: Long term MGUS: What changes have you had? Do's and Don'ts?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2025

@19lesterk I am so sorry to hear about your dad's diagnosis. My dad passed away and...

https://connect.mayoclinic.org/comment/1297251/

Discussion: Anyone with Plasma Cell Leukemia or family?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2025

Stanford diagnosed me with light chain amyloidosis and multiple myeloma. They recommended dara-CyBorD which consists of...

https://connect.mayoclinic.org/comment/1532424/

Discussion: What should I expect from Dara-CyBorD treatment for AL Amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 21 10:24pm

ABSOLUTELY get a second opinion from a specialist familiar with MGUS/SMM/MM. My story is long, but...

https://connect.mayoclinic.org/comment/932455/

Discussion: Kappa light ratio and beta 2 microglobin

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2023

Hi Meg, I have MM had and an about 19 months out from auto stem cell...

https://connect.mayoclinic.org/comment/1204294/

Discussion: Multiple Myeloma: why do light chain fluctuate?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2025

Hi Terry, I’m retired LEO also with smoldering multiple myeloma. I intentionally retired at 55 as...

https://connect.mayoclinic.org/comment/1387488/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2025

@amyboylan1 This is a good topic, and one you have already received solid responses to. While...

https://connect.mayoclinic.org/comment/1229426/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2025

Thank you, Susan. I too have a list (not as much as a grocery list). At...

https://connect.mayoclinic.org/comment/999349/

Discussion: MGUS I need help understanding my lab report.

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2024

Hi Tracy. I'm Amanda and I was diagnosed last spring at age 56. My MGUS was...

https://connect.mayoclinic.org/comment/793921/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

I am new to this group so please forgive my mistakes. I see a recurring theme...

https://connect.mayoclinic.org/comment/109715/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2019

I am sorry, MM is shorthand for the blood cancer, Multiple Myeloma. I too have neuropathy;...

https://connect.mayoclinic.org/comment/1062333/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

Hello. I had A great discussion with my rheumatologist regarding the MG US, etc. I asked...

https://connect.mayoclinic.org/comment/1115605/

Discussion: Diagnosed with MGUS and CHIP with M spike

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2024

Maria, I was looking at your numbers compared to mine. You see, I was born all...

https://connect.mayoclinic.org/comment/749524/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2022

Hi, I have not posted to this group before, as I have mainly been focusing on...

https://connect.mayoclinic.org/comment/817552/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

My brother-in-law died from multiple myeloma last year. My sister, her husband struggled with symptoms after...

https://connect.mayoclinic.org/comment/797572/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023