Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,122 total results

Comments (1,035)

Hi Lori - Wanted to update you on my visit with the new hematologist yesterday. Well...

https://connect.mayoclinic.org/comment/1263978/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 22, 2025

I’d like to ask any of you if you’ve had this happen. I apologize for not...

https://connect.mayoclinic.org/comment/1172169/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

I’m happy to hear you’re being seen by an AML specialist from Mayo-Rochester. It’s my home...

https://connect.mayoclinic.org/comment/1030654/

Discussion: Does anyone else have AML with ddx41 genetic mutation?

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

I can get no Vaccines of any kind at this time. But will not ever get...

https://connect.mayoclinic.org/comment/808310/

Discussion: Aplastic Anemia and vaccine influences

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

I was diagnosed with MDS/MPN-RS-T in 2018. I have three mutations -JAK2, SRFS2 and IDH1-R132H. My...

https://connect.mayoclinic.org/comment/1042552/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

I realize I’m replying to myself but I hope everyone can see this. I’m starting to...

https://connect.mayoclinic.org/comment/57943/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2020

Thanks! The 11.3 after starting Revlimid was a blessing since I was at 8.7 two days...

https://connect.mayoclinic.org/comment/1368902/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

Hi, Thank you for your very good information but I had already read it and it...

https://connect.mayoclinic.org/comment/1348639/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2025

Wow how brave of your husband and such incredible strength you have to be where you...

https://connect.mayoclinic.org/comment/926044/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2023

Good morning @twitt1949 Having MDS or any blood condition/blood cancer can affect blood cell levels, as...

https://connect.mayoclinic.org/comment/1541840/

Discussion: Flossing teeth and MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 3 9:27am

Hi, I saw this on the supraclavicular and finally looked it up. I have had a...

https://connect.mayoclinic.org/comment/1367865/

Discussion: What causes persistent swelling in the left supraclavicular?

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

Good afternoon, I am recently new to this support group as of today. I happened to...

https://connect.mayoclinic.org/comment/1254805/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2025

I am in the early stages of MDS and and looking for any help I can...

https://connect.mayoclinic.org/comment/1250678/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2025

This is so encouraging for me. I have been diagnosed with CMML however they are going...

https://connect.mayoclinic.org/comment/1096471/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2024

Hi @jelilien, I think right now your dad seems to be in good hands. Often oncologists...

https://connect.mayoclinic.org/comment/888310/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

Hi - One thing I learned early on is that there is no "normal" for MDS....

https://connect.mayoclinic.org/comment/924698/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2023

I thought I would share my experience which I am grateful that my only symptoms at...

https://connect.mayoclinic.org/comment/756572/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2022

Hi Lori, I had a bone marrow was biopsy in 2017 and was diagnosed with MDS...

https://connect.mayoclinic.org/comment/1248526/

Discussion: Curcumin and Turmeric causing anemia?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2025

Hi Hollie, thanks. That did make things clearer. I was getting the doctors mixed up.😉 Hm....

https://connect.mayoclinic.org/comment/1172518/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

How did you get your MDS diagnosis? I have had increasing dyspnea for decades. Plus severe...

https://connect.mayoclinic.org/comment/1471527/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2025