Blood Cancers & Disorders: Discussions | Page 41

I'm new to all of this. I am taking 500 mg HU for 5 days and...

https://connect.mayoclinic.org/comment/1308200/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 19 11:34pm

https://connect.mayoclinic.org/comment/746554/

Discussion: Polycythemia: Primary or Secondary?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

Hi Lisa. Hopefully you will get some definitive answers once you meet with your Hematologist in...

https://connect.mayoclinic.org/comment/1162384/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Yes it was positive medium Deterioration. Joe my husband was on Hydrea but his legs started...

https://connect.mayoclinic.org/comment/1051576/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2024

Hi. I also was diagnosed with polycythemia Vera JAK2. 2 years ago. I have never done...

https://connect.mayoclinic.org/comment/1013924/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024

Hello all! I am new to this forum and I am so glad I happened upon...

https://connect.mayoclinic.org/comment/1002607/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2024

I was diagnosed with ET at 27. I had been having unusual, extensive bruising and severe...

https://connect.mayoclinic.org/comment/792682/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Dx of MPN Myeloproliferative disorder ET Essential thrombocythemia JAK2 positive in June 2024. I am allergic...

https://connect.mayoclinic.org/comment/1270799/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 31 10:02am

My comment is an opinion based on conversations I had with hematologists whose credentials I respect...

https://connect.mayoclinic.org/comment/990628/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024

I have been taking 600mgs of HU(Droxia formulation) since PMF diagnosis in 2018. It has lowered...

https://connect.mayoclinic.org/comment/1087439/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

It’s a comfort to know you and others had the same initial experience when diagnosed. My...

https://connect.mayoclinic.org/comment/1280121/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 12 12:05pm

Excellent news that you consulted at the Mayo Clinic! That's a great plan for someone planning...

https://connect.mayoclinic.org/comment/1156324/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2024

Unfortunately I’m not a pilot 😂,you can say I’m an airline ground dispatcher pilot ,I don’t...

https://connect.mayoclinic.org/comment/1022506/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2024

Hi Jackt00, Welcome to the site, Given the fact you are taking another chemo med, I...

https://connect.mayoclinic.org/comment/830017/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

Lourdene, I'm in an almost identical position to you, having had high platelets for decades but...

https://connect.mayoclinic.org/comment/788501/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2022

The HU should help to bring down the high platelet level to a more normal level....

https://connect.mayoclinic.org/comment/1209073/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 11 11:43am

Hi @1pearl, I’m putting together pieces of your ET puzzle. When we first spoke the other...

https://connect.mayoclinic.org/comment/1231285/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 7 7:25am

After my JAK2 was found my O/H ordered a bone marrow biopsy which could be done...

https://connect.mayoclinic.org/comment/1270695/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 31 8:22am

I think I may be one of the people with the Jak2 mutation that lay dormant...

https://connect.mayoclinic.org/comment/978261/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2023

Hello @cgpak, I can understand your wanting to know about the experience of others with ET....

https://connect.mayoclinic.org/comment/337139/

Discussion: Spleen involvement in ET

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2021

Blood Cancers & Disorders Support Group