Blood Cancers & Disorders Support Group

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Comments (337)

Welcome to Connect, @thicksotropic. Blood conditons can surely create some challenges in our everyday lives. Do...

https://connect.mayoclinic.org/comment/986211/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 25, 2023

For me, the positive aspect of this drug is that it works well and my doctor...

https://connect.mayoclinic.org/comment/1319829/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2025

Here is the WSJ article. This is a way to read it without being a subscriber....

https://connect.mayoclinic.org/comment/1324979/

Discussion: New research seems to give hope of new treatment for PV

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2025

Blurred vision is not uncommon with Polycythemia Vera. Not sure if it’s from too high red...

https://connect.mayoclinic.org/comment/1092197/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2024

Hi @mirakrye Well, that’s a heckuva way to ring in the new year with a change...

https://connect.mayoclinic.org/comment/1479514/

Discussion: Are their support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 11 10:03am

I’m on my second month of Jakafi. I’ve had no side effects and so far my...

https://connect.mayoclinic.org/comment/1200841/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

If indeed polycythemia vera then I too have noticed shortness of breath esp walking “up hill”...

https://connect.mayoclinic.org/comment/791044/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2023

I have Polycythemia Vera Jak2. I all of a sudden have my platelets go up and...

https://connect.mayoclinic.org/comment/1087185/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

Did they do a JAK 2 blood test? This is what happened to me before I...

https://connect.mayoclinic.org/comment/926793/

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

I had Polycythemia Vera almost 20 years. Was taking Hydrea and it was working for me....

https://connect.mayoclinic.org/comment/1114732/

Discussion: Been struggling with Polycythemia Vera for 2 years

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024

Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...

https://connect.mayoclinic.org/comment/194373/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2021

@richmpv, welcome to Mayo Clinic Connect. How long have you been living with polycythemia vera? In...

https://connect.mayoclinic.org/comment/193907/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

I had a similar situation caused by taking prescribed testosterone. I am JAK2 negative. High hemoglobin...

https://connect.mayoclinic.org/comment/889816/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Hello! I am a 50 year old male and have polycythemia vera. I’m considering trying a...

https://connect.mayoclinic.org/comment/193890/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: May 15, 2018

Hello @lindaw123 I appreciate this thoughtful question. I did some research online and found the results...

https://connect.mayoclinic.org/comment/662346/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

I have researched virtually all experts in the field of Polycythemia vera and most agree that...

https://connect.mayoclinic.org/comment/911901/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

Hi @mags17 Unfortunately there is a professional registration necessary to get into the Medscape…however, I found...

https://connect.mayoclinic.org/comment/900855/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2023

Agreed. My oncologist/hematologist said Polycythemia Vera IS a blood cancer. You have to stay on top...

https://connect.mayoclinic.org/comment/993678/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

Welcome to Connect, @mcvorbs. Blood conditions such as Polycythemia Vera can develop so slowly, with few...

https://connect.mayoclinic.org/comment/985895/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

I have polycythemia Vera and was diagnosed in May of 2023. I had the itching 3...

https://connect.mayoclinic.org/comment/818912/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2023