Blood Cancers & Disorders Support Group

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Comments (361)

Good morning, @csgreetings and welcome to Mayo Connect. So many of us in this support group...

https://connect.mayoclinic.org/comment/836599/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2023

Also, can I ask? Since your blood is drawn regularly, can your blood be donated? Cause...

https://connect.mayoclinic.org/comment/851256/

Discussion: Is it safe to have a tattoo if you have Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

@sen1991 Welcome to Mayo Clinic Connect. Ow! Having pain in the big toe can be pretty...

https://connect.mayoclinic.org/comment/840862/

Discussion: Polycythemia and joint pain in big toe

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

While waiting for other members to respond to your question about upper body pain associated with...

https://connect.mayoclinic.org/comment/1364893/

Discussion: Chronic upper body pain-Is it PV related?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2025

Welcome to Connect, @thicksotropic. Blood conditons can surely create some challenges in our everyday lives. Do...

https://connect.mayoclinic.org/comment/986211/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 25, 2023

For me, the positive aspect of this drug is that it works well and my doctor...

https://connect.mayoclinic.org/comment/1319829/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2025

Welcome to Connect @krag1949 As owner of a greenhouse, this is your super busy season! I'm...

https://connect.mayoclinic.org/comment/1572903/

Discussion: Hydrea and joint pain

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

Blurred vision is not uncommon with Polycythemia Vera. Not sure if it’s from too high red...

https://connect.mayoclinic.org/comment/1092197/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2024

Here is the WSJ article. This is a way to read it without being a subscriber....

https://connect.mayoclinic.org/comment/1324979/

Discussion: New research seems to give hope of new treatment for PV

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2025

Hi, @sandrahill Would you mind sharing a little more with me? I'm not sure what you...

https://connect.mayoclinic.org/comment/1541863/

Discussion: Contracting/developing polycythemia vera

Support Group: Blood Cancers & Disorders

Posted: Apr 3 9:52am

I’m on my second month of Jakafi. I’ve had no side effects and so far my...

https://connect.mayoclinic.org/comment/1200841/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

If indeed polycythemia vera then I too have noticed shortness of breath esp walking “up hill”...

https://connect.mayoclinic.org/comment/791044/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2023

Did they do a JAK 2 blood test? This is what happened to me before I...

https://connect.mayoclinic.org/comment/926793/

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

I have Polycythemia Vera Jak2. I all of a sudden have my platelets go up and...

https://connect.mayoclinic.org/comment/1087185/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

@kellysc, your deduction sounds reasonable that there would be invisible (occult) blood present in the GI...

https://connect.mayoclinic.org/comment/1509192/

Discussion: Could polycythemia vera cause a positive Cologuard test?

Support Group: Blood Cancers & Disorders

Posted: Feb 18 6:15pm

I had Polycythemia Vera almost 20 years. Was taking Hydrea and it was working for me....

https://connect.mayoclinic.org/comment/1114732/

Discussion: Been struggling with Polycythemia Vera for 2 years

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024

I had a similar situation caused by taking prescribed testosterone. I am JAK2 negative. High hemoglobin...

https://connect.mayoclinic.org/comment/889816/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

@richmpv, welcome to Mayo Clinic Connect. How long have you been living with polycythemia vera? In...

https://connect.mayoclinic.org/comment/193907/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...

https://connect.mayoclinic.org/comment/194373/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2021

Hello! I am a 50 year old male and have polycythemia vera. I’m considering trying a...

https://connect.mayoclinic.org/comment/193890/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: May 15, 2018

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