Blood Cancers & Disorders Support Group

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Comments (902)

Hi @mehz4802 - your doctor should have discussed the stage of your MM with you. If...

https://connect.mayoclinic.org/comment/109624/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2016

Hello @rayofhope I love your @name. It’s important to always have hope. Believe me I understand...

https://connect.mayoclinic.org/comment/839405/

Discussion: MGUS to myeloma: How can it be detected sooner?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2023

Welcome to Connect, @mycuppajava (love your @name! ☺️) With a new diagnosis of Multiple Myeloma (MM)...

https://connect.mayoclinic.org/comment/1425172/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2025

@ericgray, you're right that POEMS often is misdiagnosed or delayed in diagnosis because of a wide-range...

https://connect.mayoclinic.org/comment/1542704/

Discussion: Husband with POEMS Syndrome

Support Group: Caregivers

Posted: Apr 4 12:38pm

@puzzled211 It is confusing and there is a lot of literature out there to read. This...

https://connect.mayoclinic.org/comment/1353207/

Discussion: Insurance denied petscan? All research shows it sb done, what next?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2025

@loribmt Yes- I have Multiple Myeloma and Amyloidosis and they returned now. Next step Mayo.

https://connect.mayoclinic.org/comment/1436425/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2025

@hsminc Website describing the Sloan study: https://www.mskcc.org/news/diets-for-mgus-smoldering-myeloma-and-multiple-myeloma-q-with-msk-cancer-and-nutrition-experts

https://connect.mayoclinic.org/comment/1497898/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 4 10:34am

Follow Mayo Multiple Myeloma for correct and current information. There is other information on the web...

https://connect.mayoclinic.org/comment/994352/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

Hi @larryfairtax, Here is a list of the currently open clinical trials for multiple myeloma at...

https://connect.mayoclinic.org/comment/73348/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2016

Hi @beepoop and welcome to Connect. You may have noticed that I moved your post to...

https://connect.mayoclinic.org/comment/81200/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2019

@mitten Please understand that less than 10% of SMM patients evolve in to multiple myeloma in...

https://connect.mayoclinic.org/comment/695419/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2022

@mguspixi25 You're absolutely right. There is research that indicates most people do not progress further, but...

https://connect.mayoclinic.org/comment/930064/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2023

Welcome, @wanettra. I expanded the title of your discussion to connect you with members like @tally9004...

https://connect.mayoclinic.org/comment/1406853/

Discussion: Anyone have experience with daratumumab (Darzalex) to treat Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2025

I add my welcome, @treinbold. I moved your questions to this active discussion: - I have...

https://connect.mayoclinic.org/comment/915055/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2023

Hi @yusbe, Welcome to Mayo Connect where you’ll be able to talk with other members who...

https://connect.mayoclinic.org/comment/842690/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

Hi @mkempson42, Welcome to Mayo Connect where members come together to offer support and encouragement to...

https://connect.mayoclinic.org/comment/869204/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

New MGUSers like me may find this of interest: Via the Multiple Myeloma Research Foundation newsletter,...

https://connect.mayoclinic.org/comment/835247/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2023

From the National Library of Medicine - National Center for Biotechnology Information https://pubmed.ncbi.nlm.nih.gov/21509678/ From the link:...

https://connect.mayoclinic.org/comment/1094504/

Discussion: Does Anyone Know When Multiple Myeloma Was First Diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

@smithsuzanne404, multiple myeloma is such a beast when it comes to fearing relapse. The fear can...

https://connect.mayoclinic.org/comment/770082/

Discussion: Multiple myeloma survivor: How do you live without fear of relapse?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2022

@bobweller It’s estimated that 3% of people under 70 and 5% of those over 70 (if...

https://connect.mayoclinic.org/comment/1121534/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2024