Blood Cancers & Disorders Support Group

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Comments (228)

@jacklyn . I am on same meds as you..I take 3shots of vidaza per month and...

https://connect.mayoclinic.org/comment/1408831/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2025

@shoch1957 My husband was on Reblozyl when first diagnosed MDS . It only worked for him...

https://connect.mayoclinic.org/comment/1463904/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

Hi @justmeb5 Recently, in another discussion you’d asked about Vidaza (Azacitidine) and if there were other...

https://connect.mayoclinic.org/comment/1301625/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2025

Hi @tawakol, It’s been several months since we’ve spoken. I just wanted to check in with...

https://connect.mayoclinic.org/comment/1364812/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2025

Good health to you, brother..I have been on Vidaza for 40 cycles ..so over three years...

https://connect.mayoclinic.org/comment/1356298/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2025

I am 80 yo as well. Blood disorder manifested into MDS/AML May 2023. Blasts 26%. By...

https://connect.mayoclinic.org/comment/1240547/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2025

I was diagnosed in Jan 22 but had been having issues related to this diagnosis since...

https://connect.mayoclinic.org/comment/801203/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

@loribmt My husband is on Vidaza IV not Decitibine IV. His is currently off Venetoclax (took...

https://connect.mayoclinic.org/comment/933981/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2023

I know this was an older post but I would like to know how you are...

https://connect.mayoclinic.org/comment/1488999/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jan 22 3:32pm

@timt347 My husband is no longer taking venetoclax now that they have identified a targetable mutation....

https://connect.mayoclinic.org/comment/918440/

Discussion: Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

I have aml..have taken four cycles of vidaza and oral pill daily..will get a bone biopsy...

https://connect.mayoclinic.org/comment/1316850/

Discussion: Who is living with AML and how do you handle each day with chemo?

Support Group: Blood Cancers & Disorders

Posted: May 30, 2025

They gave me nausea medication that I took initially. Obviously did not help. Diagnosis is myelodysplasia...

https://connect.mayoclinic.org/comment/1275078/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2025

Welcome to Connect, @rjperk633 This is a tough decision for you and your mom. It sounds...

https://connect.mayoclinic.org/comment/1185547/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

@You are always so helpful to this website . Thank you ! My husband was on...

https://connect.mayoclinic.org/comment/1524494/

Discussion: What disorders cause low red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 9:15am

My husband finishes his 2nd round of vidaza tomorrow, our cancer specialist at Levine cancer, Charlotte...

https://connect.mayoclinic.org/comment/1287553/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2025

I am on 28 Cycles now. It took about 5 or 6 cycles for my hemoglobin...

https://connect.mayoclinic.org/comment/1090328/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2024

@vng As far as the type “ patient underwent bone marrow biopsy for the macrocytosis. This...

https://connect.mayoclinic.org/comment/1464064/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

Hi @bettersleep, it is always scary (and hopeful) to start a new treatment regimen. I moved...

https://connect.mayoclinic.org/comment/1233674/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2025

Lori, I’m amazed at your dedication in helping answer question and concerns. You have messaged me...

https://connect.mayoclinic.org/comment/1253836/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2025

Now retaking Revlimid. Tried it 6months ago with no effect, then tried Vidaza with no effect....

https://connect.mayoclinic.org/comment/1397447/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2025

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