Blood Cancers & Disorders Support Group

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Comments (236)

I take vidaza 3 injections per 28 days(was 5 times )...I take venetoclax 100mg daily....my blasts...

https://connect.mayoclinic.org/comment/1425393/

Discussion: Anyone take Vidaza and Venetoclax for Acute Myeloid Leukemia (AML)?

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2025

@jacklyn . I am on same meds as you..I take 3shots of vidaza per month and...

https://connect.mayoclinic.org/comment/1408831/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2025

Good health to you, brother..I have been on Vidaza for 40 cycles ..so over three years...

https://connect.mayoclinic.org/comment/1356298/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2025

My husband has this mutation for his MDS plus others . He is 83 years old...

https://connect.mayoclinic.org/comment/1493275/

Discussion: Does anyone have MDS with the SF3B1 mutation?

Support Group: Blood Cancers & Disorders

Posted: Jan 29 10:15am

We're going to start with what the doctor advises: 1 week of the Vidaza, then 3...

https://connect.mayoclinic.org/comment/1385949/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2025

@loribmt My husband is on Vidaza IV not Decitibine IV. His is currently off Venetoclax (took...

https://connect.mayoclinic.org/comment/933981/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2023

Hi @tawakol, It’s been several months since we’ve spoken. I just wanted to check in with...

https://connect.mayoclinic.org/comment/1364812/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2025

I know this was an older post but I would like to know how you are...

https://connect.mayoclinic.org/comment/1488999/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jan 22 3:32pm

I am 80 yo as well. Blood disorder manifested into MDS/AML May 2023. Blasts 26%. By...

https://connect.mayoclinic.org/comment/1240547/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2025

I have aml..have taken four cycles of vidaza and oral pill daily..will get a bone biopsy...

https://connect.mayoclinic.org/comment/1316850/

Discussion: Who is living with AML and how do you handle each day with chemo?

Support Group: Blood Cancers & Disorders

Posted: May 30, 2025

They gave me nausea medication that I took initially. Obviously did not help. Diagnosis is myelodysplasia...

https://connect.mayoclinic.org/comment/1275078/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2025

I was diagnosed in Jan 22 but had been having issues related to this diagnosis since...

https://connect.mayoclinic.org/comment/801203/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

Welcome to Connect, @rjperk633 This is a tough decision for you and your mom. It sounds...

https://connect.mayoclinic.org/comment/1185547/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

@timt347 My husband is no longer taking venetoclax now that they have identified a targetable mutation....

https://connect.mayoclinic.org/comment/918440/

Discussion: Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

I have the bumps, rash, and itching - these were the first signs (before the blood...

https://connect.mayoclinic.org/comment/1609638/

Discussion: MDS and thin skin, bruising, etc.: What else to watch out for?

Support Group: Blood Cancers & Disorders

Posted: Jun 30 9:34am

Hi @bettersleep, it is always scary (and hopeful) to start a new treatment regimen. I moved...

https://connect.mayoclinic.org/comment/1233674/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2025

My husband finishes his 2nd round of vidaza tomorrow, our cancer specialist at Levine cancer, Charlotte...

https://connect.mayoclinic.org/comment/1287553/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2025

I am on 28 Cycles now. It took about 5 or 6 cycles for my hemoglobin...

https://connect.mayoclinic.org/comment/1090328/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2024

@vng As far as the type “ patient underwent bone marrow biopsy for the macrocytosis. This...

https://connect.mayoclinic.org/comment/1464064/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

Lori, I’m amazed at your dedication in helping answer question and concerns. You have messaged me...

https://connect.mayoclinic.org/comment/1253836/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2025

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