Blood Cancers & Disorders Support Group

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Comments (257)

I have researched virtually all experts in the field of Polycythemia vera and most agree that...

https://connect.mayoclinic.org/comment/911901/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

I had Polycythemia Vera almost 20 years. Was taking Hydrea and it was working for me....

https://connect.mayoclinic.org/comment/1114732/

Discussion: Been struggling with Polycythemia Vera for 2 years

Support Group: Blood Cancers & Disorders

Posted: Jul 30 2:47pm

Hi @mags17 Unfortunately there is a professional registration necessary to get into the Medscape…however, I found...

https://connect.mayoclinic.org/comment/900855/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2023

Welcome to Connect, @mcvorbs. Blood conditions such as Polycythemia Vera can develop so slowly, with few...

https://connect.mayoclinic.org/comment/985895/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

I had a similar situation caused by taking prescribed testosterone. I am JAK2 negative. High hemoglobin...

https://connect.mayoclinic.org/comment/889816/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

I have polycythemia Vera and was diagnosed in May of 2023. I had the itching 3...

https://connect.mayoclinic.org/comment/818912/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2023

Agreed. My oncologist/hematologist said Polycythemia Vera IS a blood cancer. You have to stay on top...

https://connect.mayoclinic.org/comment/993678/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 8 9:14am

Hopefully good news! Could be just Polycythemia, not PV. If so they’ll do tests to see...

https://connect.mayoclinic.org/comment/852367/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: May 1, 2023

Hello @atir, welcome to Connect. I'd like to invite @chadknudson, @mwear, and @juiceinjc to this discussion...

https://connect.mayoclinic.org/comment/231772/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2018

Hi, @clarissa37, and welcome to Mayo Clinic Connect. It sounds like your mom has been through...

https://connect.mayoclinic.org/comment/231804/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2020

In regards to your question #3, I have yet to find anywhere that has a use...

https://connect.mayoclinic.org/comment/194257/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2018

Good morning, @serenity55 I love your @name of Serenity. It’s a word in my morning affirmations…and...

https://connect.mayoclinic.org/comment/828909/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

To determine if I still had polycythemia vera or myelofibrosis a bone marrow biopsy was done...

https://connect.mayoclinic.org/comment/876362/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023

Hi @margrethe, I can imagine with such a new diagnosis, yet to be confirmed you have...

https://connect.mayoclinic.org/comment/873136/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Hi @onthejoedock Polycythemia vera is a type of cancer that causes red blood cells to multiply....

https://connect.mayoclinic.org/comment/1009341/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Feb 4 9:50am

I was diagnosed at age 46 with Polycythemia Vera and am JAK-2 positive. My treatments have...

https://connect.mayoclinic.org/comment/194278/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2019

I'm 19 years old, male. I have noted my elevated Hb level since three years ago,...

https://connect.mayoclinic.org/comment/1008041/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Feb 1 8:13pm

@lwengel, as you likely already know, the USA Food and Drug Administration (FDA) approved December, 2014...

https://connect.mayoclinic.org/comment/751307/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2022

Hello, @upnorth94 Hydroxyurea is the classic medication for PV. But it’s not for everyone. You mentioned...

https://connect.mayoclinic.org/comment/893496/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Further research into my hematocrit problem revealed that if you have polycythemia vera long enough it...

https://connect.mayoclinic.org/comment/843456/

Discussion: Hematocrit Continues to Drop After Stopping Hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2023