Blood Cancers & Disorders Support Group

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Comments (941)

It’s perfectly understandable to get a little freaked out when someone you love is going through...

https://connect.mayoclinic.org/comment/970920/

Discussion: Bone Marrow Transplant: Need help with place to stay in Rochester, Mn

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 26, 2023

There are a lot of groups on the Internet where members share their experience with MGUS...

https://connect.mayoclinic.org/comment/950769/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2023

I met with a Cancer PA. I asked questions but there are always more that pop...

https://connect.mayoclinic.org/comment/1155891/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2024

In 2020 I started having different health problems - shortness of breath, swelling in legs. Primary...

https://connect.mayoclinic.org/comment/1466775/

Discussion: Looking for guidance...possible amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2025

@lisal64 You just had your 1st transplant birthday this month! That’s awesome! A hearty congratulations and...

https://connect.mayoclinic.org/comment/611736/

Discussion: Low Iron Levels and Weakness

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2021

@tatajess Greetings from Arkansas. I am glad to hear that your MRI results were “unremarkable” as...

https://connect.mayoclinic.org/comment/970078/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2023

Hi @hopefuldaughter! Welcome to Mayo Clinic Connect! I’m happy you’ve found this forum too! We have...

https://connect.mayoclinic.org/comment/731489/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 27, 2022

Hi @sofaramnotdead, CAR-T cell therapy is one of the most promising areas of cancer treatment, especially...

https://connect.mayoclinic.org/comment/622500/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2021

@jonyb I’m glad to meet everyone who has joined this group, as it’s so hard to...

https://connect.mayoclinic.org/comment/1496854/

Discussion: Lymphoplasmacytic Lymphoma that is not WM?

Support Group: Blood Cancers & Disorders

Posted: Feb 2 10:23pm

Hello and thank you for your patience as I am new to this site unsure of...

https://connect.mayoclinic.org/comment/1170119/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2024

@amyboylan1 First of all hugs. You’re not alone. It is unnerving to receive a diagnosis like...

https://connect.mayoclinic.org/comment/1229261/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2025

Angie, I'm 66, diagnosed with IgA Kappa MGUS 2/15/23, husband died of Multiple Myeloma 7/24/22. Mine...

https://connect.mayoclinic.org/comment/1053450/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024

Hi again. Since you are getting a lot of suggestions from others I thought I would...

https://connect.mayoclinic.org/comment/966106/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

Hello! I’m glad you are going to search around for a more attentive physician. The medical...

https://connect.mayoclinic.org/comment/903456/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2023

Hello everyone, I just wanted to check back in and let everyone know that I had...

https://connect.mayoclinic.org/comment/1428544/

Discussion: Diagnosed with MGUS and CHIP with M spike

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2025

@dondi2101 Hi Dianna! All good questions. The chance of progression to MM or SMM is low,...

https://connect.mayoclinic.org/comment/1176717/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

I was diagnosed with MGUS in 2021. My symptoms were severe right rib pains on my...

https://connect.mayoclinic.org/comment/1351898/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2025

@sandramgus Hello! Welcome to Mayo connect. We have quite a few members diagnosed with MGUS, myself...

https://connect.mayoclinic.org/comment/1114029/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2024

@sportedgee You’ve certainly had a lot to deal with medically over a short period of time....

https://connect.mayoclinic.org/comment/1056940/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2024

@allstaedt57 that must be disheartening to feel as though your husband was misdiagnosed. It makes so...

https://connect.mayoclinic.org/comment/1020475/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2024

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