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Comments (2,234)

@dmdinapoli81 hey there. I’ve just been diagnosed with MGUS at 41. How is your journey going...

https://connect.mayoclinic.org/comment/1489238/

Discussion: People diagnosed with MGUS under 45

Support Group: Blood Cancers & Disorders

Posted: Jan 23 7:52am

I have light chain only so they test the urine (UPEP) in addition to blood (SPEP)...

https://connect.mayoclinic.org/comment/1554722/

Discussion: MGUS Diagnosis Criteria

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

@jdm02 you hit the nail on the head when you question symptom etiology. “Normal” aging vs...

https://connect.mayoclinic.org/comment/1424784/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2025

@rhody89 welcome to the forum. I can certainly echo the recommendations that have been voiced here....

https://connect.mayoclinic.org/comment/976317/

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2023

Yes. Dealing with lame drs now as I search for a new specialist (care follow ups-no...

https://connect.mayoclinic.org/comment/1036755/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2024

@eulo Thank you for your kind words! Something your wife might try, is to use a...

https://connect.mayoclinic.org/comment/795490/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2023

MGUS can have all sorts of associated translocations and mutations. I also have gains on chromosomes...

https://connect.mayoclinic.org/comment/1206817/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2025

My oncologist called me yesterday and said that I still have MGUS and it won't have...

https://connect.mayoclinic.org/comment/1161336/

Discussion: Newly diagnosed CLL How to interpret FISH results?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2024

Hi all. Could anyone recommend a hematologist/oncologist in the Washington DC/Northern Virginia area who specializes in...

https://connect.mayoclinic.org/comment/980171/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

I am so glad you have no sign of it turning. That is a hopeful reminder...

https://connect.mayoclinic.org/comment/626231/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2021

Thank you Ill look into it yes I'll ask my Dr because I have MGUS and...

https://connect.mayoclinic.org/comment/1132124/

Discussion: MGUS Bloodwork Frequency

Support Group: Blood Cancers & Disorders

Posted: Aug 28, 2024

ABSOLUTELY get a second opinion from a specialist familiar with MGUS/SMM/MM. My story is long, but...

https://connect.mayoclinic.org/comment/932455/

Discussion: Kappa light ratio and beta 2 microglobin

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2023

This MGUS is insidious disease. So my BM had 15% PC. That is the only indication...

https://connect.mayoclinic.org/comment/1310135/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 22, 2025

I have had MGUS for 20 years, I was diagnosed at the age of around 45...

https://connect.mayoclinic.org/comment/1198099/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

As I have posted before, I have had MGUS since 2002 - maybe longer - I...

https://connect.mayoclinic.org/comment/1184145/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2024

My MGUS was diagnosed 8 years ago. I also have celiac and collagenous colitis that are...

https://connect.mayoclinic.org/comment/1037541/

Discussion: MGUS, SMM or MM With Chronic Diarrhea Or Other GI Maladie?

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2024

Sure does! Thank you!!!! After we figure out my husband's next course of treatment/monitoring for his...

https://connect.mayoclinic.org/comment/1422452/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

@chawkins Welcome to Mayo Clinic Connect. It looks like you have a great regimen set up...

https://connect.mayoclinic.org/comment/1089236/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

Steffiney, I was diagnosed with MGUS via a blood test for another medical issue. I was...

https://connect.mayoclinic.org/comment/889695/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2023

Just got diagnosed with MGUS. Found it doing blood work for liver biopsy since I have...

https://connect.mayoclinic.org/comment/804923/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2023