Blood Cancers & Disorders Support Group

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Comments (1,103)

I recently learned pterostilbene from blueberries offers greater quercetin absorption than resveratrol. Going in that direction...

https://connect.mayoclinic.org/comment/132654/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2020

Hi @mlmk0601 Whether you have ET or not, pesticides and products containing Benzene should be avoided...

https://connect.mayoclinic.org/comment/946353/

Discussion: ET and chemical pre-cautions?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2023

@misty45, Thank you for replying and telling me your story. Having a positive JAK2 result, I'm...

https://connect.mayoclinic.org/comment/194261/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018

I've had ET w/JAK2 since 4/21/21. I've taken HU ever since. I had pallets as high...

https://connect.mayoclinic.org/comment/1301340/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 10 5:01pm

Hydrea is an oral chemotherapy medicine that is not likely to cause hair loss with the...

https://connect.mayoclinic.org/comment/1243652/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 23 10:14am

Ok, symptoms no worse and they don’t interfere with my life but unfortunately my platelets have...

https://connect.mayoclinic.org/comment/1043121/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2024

Hi, I was Jak2 neg and had a hunch I may not have PV and kept...

https://connect.mayoclinic.org/comment/1024191/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2024

yeah i'm home now recovering. the JAK2 was negative as was the calr and mpl the...

https://connect.mayoclinic.org/comment/298979/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2020

I get annual labs with my physical so we know it's new for me. PLUS I...

https://connect.mayoclinic.org/comment/843149/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

Hi @themyth, with Polycythemia Vera, too many red blood cells are produced resulting in the high...

https://connect.mayoclinic.org/comment/821819/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

I was diagnosed with MDS/MPN-RS-T in 2018. I have three mutations -JAK2, SRFS2 and IDH1-R132H. My...

https://connect.mayoclinic.org/comment/1042552/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

Sorry to here he joined our band of rare misfits....I have had Primary MF for two...

https://connect.mayoclinic.org/comment/132655/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2020

My hematologist about 6 yrs ago diagnosed me with primary myelofibrosis at 71 yrs old, after...

https://connect.mayoclinic.org/comment/1217600/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 20 3:50pm

Hang in there. I went undiagnosed for nearly a year. I have had blood work and...

https://connect.mayoclinic.org/comment/1060466/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 1, 2024

Hi, my name is Carlavan and I to have ET with JAK2 mutation, my initial complaint...

https://connect.mayoclinic.org/comment/276870/

Discussion: Anyone have CALR mutation with constitutional symptoms?

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2019

Yes, JAK2 ET. After experiencing shortness of breath (my only symptom), and some alarming blood work,...

https://connect.mayoclinic.org/comment/1202773/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 2 10:32pm

I am 65 years old and seem to be a rare male here. Not surprising since...

https://connect.mayoclinic.org/comment/1117080/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

Thanks for your comment. So Pegasus is about $1200 before insurance? Do they accept all insurances?...

https://connect.mayoclinic.org/comment/1010342/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Hi Steve, Becky has the JAK2 mutation which, from my understanding, makes primary ET more likely,...

https://connect.mayoclinic.org/comment/1154236/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2024