Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

989 total results

Comments (925)

Hi @cindyem, I’m just double checking your reference to PMDS. Do you possibly mean myelofibrosis (MF)...

https://connect.mayoclinic.org/comment/1043541/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 1 9:35am

Hi Tom, There are quite a few members in the Connect forum who have been diagnosed...

https://connect.mayoclinic.org/comment/1076631/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: May 28 4:39pm

Hi bikalydy973, I have seen my GP every six months because I have hypertension. I have...

https://connect.mayoclinic.org/comment/797885/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2023

Good morning, @csgreetings and welcome to Mayo Connect. So many of us in this support group...

https://connect.mayoclinic.org/comment/836599/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2023

Welcome to Mayo Connect, @ausableriver I’m happy you found us and decided to bypass Dr Google....

https://connect.mayoclinic.org/comment/875590/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

I was diagnosed with JAK2 positive in 12/21. My platelets rose to high 700's and I...

https://connect.mayoclinic.org/comment/798458/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

Good morning, @serenity55 I love your @name of Serenity. It’s a word in my morning affirmations…and...

https://connect.mayoclinic.org/comment/828909/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

I have ET, spleen is normal, but it is a side effect of ET. Serms like...

https://connect.mayoclinic.org/comment/815617/

Discussion: Elevated platelets and enlarged spleen

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

I am 73 year old, widow. No family near my location. Two years ago I had...

https://connect.mayoclinic.org/comment/985499/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2023

Hi @rch552320 Your mom was recently diagnosed with thrombocytosis which is an excess of platelets in...

https://connect.mayoclinic.org/comment/1067044/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 13 8:49am

Hi Everyone.....Wishing you all the warmest, family filled holidays. Since my platelet count has dropped back...

https://connect.mayoclinic.org/comment/978074/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2023

If you decide to take HU, try it a couple of times per week for a...

https://connect.mayoclinic.org/comment/1022375/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 25 1:00pm

I was diagnosed with ET in November after my platelet count had been rising slowly for...

https://connect.mayoclinic.org/comment/1039616/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 24 5:45pm

Mtnlife, I too had no symptoms of anything prior to a routine blood test. in March...

https://connect.mayoclinic.org/comment/783874/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2022

Hi Tammy, I have MDS/MPN overlap with Thrombocytosis and MF. My platelet count was about 800,000...

https://connect.mayoclinic.org/comment/146305/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2020

My Naturopathic Physician suggested I see a Oncologist or Hemotologist in 2013 because my Platelets were...

https://connect.mayoclinic.org/comment/194297/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2019

After asymptomatic high platelets in the 600 range, a bone marrow biopsy revealed JAK2 and I...

https://connect.mayoclinic.org/comment/940348/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

I also read the pamphlet and freaked out but did my research. This drug has been...

https://connect.mayoclinic.org/comment/1026291/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 2 6:25pm

I was first alerted in May 2022 that all red blood count were high. No one...

https://connect.mayoclinic.org/comment/825133/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Today diagnosed with ET/JAK 2 mutation. Hello ~ I have been reading other posts and recognize...

https://connect.mayoclinic.org/comment/782169/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022