Blood Cancers & Disorders Support Group | Page 36

Actually think it's the ET, I have this going on for a few years, seems to...

https://connect.mayoclinic.org/comment/1086882/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2024

Hi, I have had ET for over 17 years now I am 73, and was on...

https://connect.mayoclinic.org/comment/1244169/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

When we have ET, our blood marrow produces excessive and misshapen platelets. In most cases, this...

https://connect.mayoclinic.org/comment/1238055/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2025

@misty45 Thank you so very much for sharing your ET experience. My daughter ( age 39)...

https://connect.mayoclinic.org/comment/194272/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2019

@sonieaml When I was diagnosed with MDS/MPN/sMF in 2017 my Oncologist at Sloan said the life...

https://connect.mayoclinic.org/comment/1551466/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 15 6:28pm

@ksyren I am so sorry for what you're experiencing. Time isn't kind to our skeletons. Paradoxically,...

https://connect.mayoclinic.org/comment/1513289/

Discussion: What vitamins to avoid when taking Hydrea (hydroxyurea) for ET JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 6:42am

Hi, @rosew1969 Welcome to Connect…I’m so happy to see you here! Your positivity is infectious with...

https://connect.mayoclinic.org/comment/1411805/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2025

Good morning, @tessa. Thirteen years have flown by since you first posted this new discussion about...

https://connect.mayoclinic.org/comment/1149077/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

Hi @cindy, Welcome to Connect. It sounds like you have experience with ET. We have several...

https://connect.mayoclinic.org/comment/1086258/

Discussion: Why is a new bone marrow biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

@janemc hehe. We need to have a 😂 emoji added to our reactions. Thanks for posting...

https://connect.mayoclinic.org/comment/1553431/

Discussion: ET CALR looking at heart surgery

Support Group: Blood Cancers & Disorders

Posted: Apr 18 9:20am

I would also appreciate more info. I have ET for over 8 years and have been...

https://connect.mayoclinic.org/comment/795166/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2023

@esperanzam thank you so much for this information. I pray you get good results from your...

https://connect.mayoclinic.org/comment/194283/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2019

The first aspirin you took immediately started protecting your cardiovascular system. This must be a stressful...

https://connect.mayoclinic.org/comment/1064624/

Discussion: Essential Thrombocythemia and relationship to stroke

Support Group: Blood Cancers & Disorders

Posted: May 9, 2024

@janemc You beat me to it! Not sure where this is in testing, and my guess...

https://connect.mayoclinic.org/comment/1470527/

Discussion: Summary of 2025 meeting of American Society of Hematologists

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2025

MPN has at least 3 sub-groups, ET. PV and MF.......with sub-groups in each of these sub-groups....

https://connect.mayoclinic.org/comment/1306752/

Discussion: Myeloproliferative neoplasm Anyone else have a similar diagnoses?

Support Group: Blood Cancers & Disorders

Posted: May 18, 2025

I am 51 and have been taking Hydrea and baby ASA daily for 5 months. I...

https://connect.mayoclinic.org/comment/1104985/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2024

A hematologist should follow IPSET guidelines for ET clot prevention: JAK2+ and over 60 = platelet...

https://connect.mayoclinic.org/comment/796537/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2023

Hi Shenriq, I was diagnosed with ET in 2013. I have been on hydroxyurea 500mg along...

https://connect.mayoclinic.org/comment/337925/

Discussion: ET symptom of neuropathy

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2021

I don’t know why comments about insurance got included with this thread -?? Anyway, anytime your...

https://connect.mayoclinic.org/comment/1418445/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2025

Allele burden is a measure of how prevalent the mutation is in your system. I've had...

https://connect.mayoclinic.org/comment/1221953/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025