Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,001 total results

Comments (1,895)

I was diagnosed few years ago with MGUS also. I go to a hematologist/oncologist for labs...

https://connect.mayoclinic.org/comment/905091/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2023

Maria, I was looking at your numbers compared to mine. You see, I was born all...

https://connect.mayoclinic.org/comment/749524/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2022

What is a mgus! My generalist doctor had done an analysis with an electrophorese with immunoelectrophorese!...

https://connect.mayoclinic.org/comment/1198188/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

@amyboylan1 I was diagnosed with MGUS in 2017. In 2018 it advanced to Smoldering Myeloma, and...

https://connect.mayoclinic.org/comment/1141675/

Discussion: Resources for MGUS: What reading is helpful for the newly diagnosed?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2024

I take full spectrum curcumin with organic curcumin tea every morning. Full spectrum because it has...

https://connect.mayoclinic.org/comment/836203/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

@amyboylan1 If I have to cut out coffee I'm doomed. Seriously, I haven't seen any recommendation...

https://connect.mayoclinic.org/comment/1235361/

Discussion: Coffee and MGUS progression.

Support Group: Blood Cancers & Disorders

Posted: Feb 12 2:20pm

Diagnosed with MGUS December 2022. I'm very low on the light chains and ratio between the...

https://connect.mayoclinic.org/comment/916408/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2023

Thanks for the reply. I think MGUS is too complex a condition for a non specialist...

https://connect.mayoclinic.org/comment/895178/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

I have had MGUS for about 5 years which is low but slowly increasing. I have...

https://connect.mayoclinic.org/comment/859461/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023

Thanks! I was diagnosed with mgus last fall and I feel so much stress and depression...

https://connect.mayoclinic.org/comment/771246/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2022

I have been diagnosed with MGUS this last month. I also have diabetes, heart failure, pulmonary...

https://connect.mayoclinic.org/comment/1010746/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2024

I was diagnosed with IgA kappa light chain MGUS 8 years ago (69 yo woman) and...

https://connect.mayoclinic.org/comment/1008159/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2024

@pcb Just as @pmm mentioned, tell your doctor you are anxious about your situation, that you...

https://connect.mayoclinic.org/comment/771755/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2022

Connections between MGUS and Peripheral Neuropathy: Direct Antibody Activity**: The monoclonal protein (M protein) produced in...

https://connect.mayoclinic.org/comment/1163047/

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

This sounds very frustrating for you. Have you gotten second opinions and thought about going to...

https://connect.mayoclinic.org/comment/882900/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2023

Hi Ginger, Sorry to hear about the progression to SMM. I was curious do they consider...

https://connect.mayoclinic.org/comment/695365/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2022

Good morning @fayeraye . I was diagnosed with IgA Kappa MGUS on 15 February 2023 -...

https://connect.mayoclinic.org/comment/931766/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2023

I am newly diagnosed as well by having a fluke appt. And my neurologist wanted to...

https://connect.mayoclinic.org/comment/904774/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2023

Thank you for replying back so quickly...no I wasn't given a type classification for my MGUS,...

https://connect.mayoclinic.org/comment/902869/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2023

Greetings. So sorry you are having trouble finding a clinical home. I don’t know Scottsdale but...

https://connect.mayoclinic.org/comment/821204/

Discussion: Monoclonal Gammopathy & Granulatomus Disease + new ANA+ in AZ

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023