Blood Cancers & Disorders Support Group

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Comments (696)

Hi dear sweet Lori... You continue to blow me away with how much you know and...

https://connect.mayoclinic.org/comment/650867/

Discussion: Acute Myeloid Leukemia with Aberrant CD7

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2021

I am a 76 yr old Man with both MDS and MF. It started out as...

https://connect.mayoclinic.org/comment/927487/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2023

Today was day 52 after transplant and i got to talk with the Doctor. Overall, he...

https://connect.mayoclinic.org/comment/1078702/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 31, 2024

Hi @jrwilli1, if it’s any incentive at all for your husband to follow through with a...

https://connect.mayoclinic.org/comment/772966/

Discussion: Anyone have bone marrow transplant for aplastic anemia?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 14, 2022

You are correct, everyone is different. 16 year ago a routine physical showed that my platelets...

https://connect.mayoclinic.org/comment/957727/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 2, 2023

@g4c I hope after reading some of the comments by fellow members who have had BMT...

https://connect.mayoclinic.org/comment/1220909/

Discussion: What are you doing to keep AML from relapse after transplant?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 24 9:40pm

I am day 89 past transplant. Crazy. Coming out of the hospital on April 29th, I...

https://connect.mayoclinic.org/comment/1101279/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 7, 2024

Hi, first, I was going to try to respond just to Audrey, but try as I...

https://connect.mayoclinic.org/comment/1138125/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2024

I didn't change from the Procrit until my HGB started dropping. As for other treatments, I...

https://connect.mayoclinic.org/comment/894875/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

I just came across this wonderful topic through another search of topics i relate to. As...

https://connect.mayoclinic.org/comment/1139667/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2024

Hi @loribmt and @pixiesusan. First, thank you, Lori, for being willing to share your story and...

https://connect.mayoclinic.org/comment/1138649/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2024

Plenty of info here including questions to ask your Dr. https://www.mds-foundation.org/resources/materials/

https://connect.mayoclinic.org/comment/1276206/

Discussion: I have recently been diagnosed with MDS, and have so many questions.

Support Group: Blood Cancers & Disorders

Posted: Apr 7 8:31am

I wanted to update that I got a call from the nurse in the transplant unit...

https://connect.mayoclinic.org/comment/1020416/

Discussion: Bone marrow transplants for CMML

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Feb 22, 2024

Yes, I have MDS5q- and I did not want to have a bone marrow transplant, etc....

https://connect.mayoclinic.org/comment/1221246/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 9:58am

Brenda: my preferred tool is https://www.mds-foundation.org/calculator/advanced/ Most of the values that you enter are from blood...

https://connect.mayoclinic.org/comment/991863/

Discussion: IPSS Scores for MDS

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2024

My symptoms are about the same as everyone else. Was sent to oncologist found out my...

https://connect.mayoclinic.org/comment/926400/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2023