Blood Cancers & Disorders Support Group

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Comments (1,023)

I have MDS, diagnosed last summer. My ferratin levels are consistently 800-1000. By January of this...

https://connect.mayoclinic.org/comment/898261/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

Hi @littlebluebird I’m so sorry your mom is having the nasty itchiness associated with MDS. As...

https://connect.mayoclinic.org/comment/1202303/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2025

Yes recently diaganosed with MDS and having a bine biopsy this week. Its my platletelets that...

https://connect.mayoclinic.org/comment/1055059/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2024

Hi @bdglass Welcome to Mayo Connect. You jumped right into the perfect conversation to ‘connect’ with...

https://connect.mayoclinic.org/comment/833583/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2023

You are a perfect example of the power of positivity. When I was first diagnosed with...

https://connect.mayoclinic.org/comment/1364327/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2025

My husband was diagnosed with MDS 6 months ago. He has had 2 rounds of chemo...

https://connect.mayoclinic.org/comment/1260623/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2025

@bromlj1 - Clinical trials targeting TP53 mutations are ongoing, focusing on cancers where this tumor suppressor...

https://connect.mayoclinic.org/comment/1322689/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 8, 2025

I am 53, wife, and mother of 4. I was diagnosed with Lupus in 2006 after...

https://connect.mayoclinic.org/comment/1382912/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2025

I am stressed. I don’t like the “watch and wait”. I now get blood checked monthly....

https://connect.mayoclinic.org/comment/1025891/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

We visited a specialist in San Antonio, Tx, and he raised her risk from low to...

https://connect.mayoclinic.org/comment/235271/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

I was wondering if your mom was on any other meds besides the Vidaza. So thank...

https://connect.mayoclinic.org/comment/1400460/

Discussion: Vidaza, keep going or stop

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2025

My wife was diagnosed with MDS 10 years ago. In the last year she’s had to...

https://connect.mayoclinic.org/comment/1210717/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2025

Hi everyone. Today is Day 91 post allogenic transplant for my dear husband. We have had...

https://connect.mayoclinic.org/comment/1177750/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 21, 2024

My husband was 69 at the time of his diagnosis for MDS and after his first...

https://connect.mayoclinic.org/comment/1267584/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2025

I don't really understand MDS. I get awfully tired almost every day and fall asleep reading...

https://connect.mayoclinic.org/comment/925576/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2023

Good morning Lori, I don't know for sure when the blood clots formed. About three weeks...

https://connect.mayoclinic.org/comment/921563/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2023

We live in New York State. My husband, Mike, has received two injections of Reblozyl, which...

https://connect.mayoclinic.org/comment/1445818/

Discussion: Severe Iron Overload caused by too many IV Iron infusions

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2025

@desertjulie, Welcome to Mayo Clinic Connect. You will see that I moved your discussion to a...

https://connect.mayoclinic.org/comment/88392/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2017

My mom got MDS since 5/2024, normal RBC, very high WBC, over 100, and very low...

https://connect.mayoclinic.org/comment/1202081/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2025

Just found this forum. Not sure how to participate except to say that I'm in my...

https://connect.mayoclinic.org/comment/833564/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2023