Blood Cancers & Disorders Support Group

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Comments (771)

Even if you are very determined and have strong will power, there are time you may...

https://connect.mayoclinic.org/comment/850751/

Discussion: New to CLL-no treatment-what to eat?

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2023

Hi eoconnor, good for you being proactive and seeking an answer to a health issue that...

https://connect.mayoclinic.org/comment/298972/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2020

Hi Phyllis, I'm sorry I found your post here so late (and sorry that you have...

https://connect.mayoclinic.org/comment/612615/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2021

I was diagnosed with CLL, stage 2 in May 2014, accompanied by very frequent infections requiring...

https://connect.mayoclinic.org/comment/113593/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2017

I was diagnosed in November 2023 and had a fall in December 2023. Broke my humerus...

https://connect.mayoclinic.org/comment/1326647/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Jun 13 6:58pm

Hi @kabue9, I moved your question about WM and treatment with zanubrutinib (Brukinsa) to this relevant...

https://connect.mayoclinic.org/comment/1347391/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Jul 13 2:31pm

Just to let you know I've had Cll for about seven years now and have been...

https://connect.mayoclinic.org/comment/770424/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

Hi Ron, it’s great to hear from you! I was wondering how you’ve been feeling. Previously...

https://connect.mayoclinic.org/comment/594587/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2021

I was diagnosed with CLL 2011. Started decaffeinated mega green tea extract 725mg (std to 98%...

https://connect.mayoclinic.org/comment/1251185/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Mar 5 3:29pm

Hi Lori and everyone. It has been a while since I checked in and thought I...

https://connect.mayoclinic.org/comment/864101/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2023

@lila1 Hi Lila, I have SMZL (and WM and CLL) and just started treatment (after being...

https://connect.mayoclinic.org/comment/1099116/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

My husband has had CLL for ten years (he is 64) . Two years ago he...

https://connect.mayoclinic.org/comment/1014720/

Discussion: CLL - Symptoms at Stage 0

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

My diagnosis is CLL/SLL , Hashimoto and Hypogammaglobulinemia. Having frequent infections. I don’t have any treatment...

https://connect.mayoclinic.org/comment/164147/

Discussion: Did anyone undergo Car-T therapy for B cell lymphoma?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 17, 2020

@gingerw OMG what a GREAT link!!! Thank you so much!! I've printed out the info and...

https://connect.mayoclinic.org/comment/934511/

Discussion: Anemic due to kidney problem: How to increase hemoglobin?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2023

Hi @marymoreau1948 I don’t think anyone is fond of chemo treatments but they can be absolutely...

https://connect.mayoclinic.org/comment/863831/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2023

EVUSHELD QUESTION WHETHER TO KEEP GETTING INJECTIONS: Not certain where I should jump in to the...

https://connect.mayoclinic.org/comment/782506/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Hi @marynoelle. I truly know feelings that come from a diagnosis with leukemia. We fear the...

https://connect.mayoclinic.org/comment/1011800/

Discussion: CLL - Blood work Completed IGVA Mutation Analysis

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

Hi, @jvertalka - I can imagine it would be very unpleasant news to suddenly have your...

https://connect.mayoclinic.org/comment/238062/

Discussion: CLL - Referral to CLL Specialist

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2019

My belief is not that CLL morph into B cell,but there was a more thorough diagnosis...

https://connect.mayoclinic.org/comment/211043/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2018

Thank you Lori. I have been receiving IVIG, or Privigen infusions every 4-6 weeks since 2010....

https://connect.mayoclinic.org/comment/1076581/

Discussion: What is the prognosis of living with CLL beyond 20 years?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024