Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

986 total results

Comments (896)

Patients received 2000mg EGCG twice daily for 6 months. Following a case series publication by Dr....

https://connect.mayoclinic.org/comment/803562/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2023

My husband was diagnosed with CLL at the end of 2019, through his first trial he...

https://connect.mayoclinic.org/comment/793277/

Discussion: Richter's Syndrome: Is anyone else dealing with this disease?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2023

Welcome, @jns. I moved your message about Calquence (acalabrutinib) and decreasing white blood cells to this...

https://connect.mayoclinic.org/comment/773986/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2022

I have the JAK2 and SRSF2 mutations. I was diagnosed with MDS/MPN overlap with Thrombocytosis. Extremely...

https://connect.mayoclinic.org/comment/194316/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: May 9, 2019

I was diagnosed with CLL in October 2017 with WBC of 32,000 and lower platelet counts....

https://connect.mayoclinic.org/comment/113614/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2017

CC: after 5 blood tests showed a high WBC with no simple explanation found, I was...

https://connect.mayoclinic.org/comment/843633/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2023

I found your post to be very interesting. I also have CLL and would like to...

https://connect.mayoclinic.org/comment/1326817/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2025

Hi there...I am 53, and was diagnosed with CLL this week. I got the news while...

https://connect.mayoclinic.org/comment/1098411/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Hi Tina, you’ve had a heck of a day. I know this isn’t the news you...

https://connect.mayoclinic.org/comment/633908/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2021

Hi @rubles. To keep this discussion about CLL, I’m going to nudge you and @catherine1290 over...

https://connect.mayoclinic.org/comment/1025885/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Hi Chuck216, I've received BR treatment twice [ 6 cycles each time] for CLL and have...

https://connect.mayoclinic.org/comment/266264/

Discussion: Treatment for NHL: Rituximab & Bendamustine

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2019

Re: connection between PAD and PV....I have been diagnosed recently with both PAD and PV. I...

https://connect.mayoclinic.org/comment/928250/

Discussion: PV and peripheral artery disease PAD

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Hi my partner has been diagnosed with CLL the unmuted strain on the 22nd of April....

https://connect.mayoclinic.org/comment/715991/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2022

My husband has been diagnosed with myeloid Metaplasia with Myelofibrosis . White count was 30,000 and...

https://connect.mayoclinic.org/comment/101832/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 21, 2016

Hi @nellieblue. Welcome to Connect! I'm glad you found our community. What course of action did...

https://connect.mayoclinic.org/comment/101824/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 7, 2016

Greetings. Appreciate having this forum for comment and assistance. My initial CLL diagnosis was in 2014...

https://connect.mayoclinic.org/comment/848335/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

That’s very encouraging news from the hematologist. I know ‘watch and wait’ can feel like something...

https://connect.mayoclinic.org/comment/714976/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2022

Hi @mygirl. It’s important for you to follow the guidelines from your ophthalmologist at the time...

https://connect.mayoclinic.org/comment/1312043/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 24, 2025

God bless you and surround you with a long healthy life to come; fellow CLL Member;...

https://connect.mayoclinic.org/comment/113635/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2018

Hi @lynnstefanik89, Welcome to the community! (and sorry you need to be here) I started my...

https://connect.mayoclinic.org/comment/1203242/

Discussion: Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2025