Blood Cancers & Disorders Support Group

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Comments (2,270)

Hi Kevin -- Recently diagnosed with ET with numbers close to yours. Have you had genetic...

https://connect.mayoclinic.org/comment/1039634/

Discussion: Im 64 and my blood platelets have been in the low 530-550 range for yr

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2024

Good morning, @taisaint. Welcome you to Mayo Connect. You’ve recently been diagnosed Essential thrombocythemia and Polycythemia...

https://connect.mayoclinic.org/comment/967884/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2023

Christinele, There are also a lot of ET JAK2 discussions on healthunlocked.com. It originates in the...

https://connect.mayoclinic.org/comment/845595/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Sorry. I forget to write out abbreviations sometimes. HU=Hydroxyurea, aka hydroxycarbamide in the UK. Trade name...

https://connect.mayoclinic.org/comment/1311158/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 23, 2025

The International Myeloma Foundation is at myeloma.org. Your link took me to the International Monetary Fund....

https://connect.mayoclinic.org/comment/740005/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2022

Kudos to you for being active! ET does not work the same in everyone, of course....

https://connect.mayoclinic.org/comment/892029/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 8, 2023

I’ve had ET for several years with a lot of itching like you. I was prescribed...

https://connect.mayoclinic.org/comment/817021/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

Does not have to be ET would have been better. I met a person at a...

https://connect.mayoclinic.org/comment/1280415/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2025

I was diagnosed with ET Jak2 over a year ago my PLTS range from 450 -...

https://connect.mayoclinic.org/comment/1146979/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

@janeto1357 Hello, I was diagnosed with ET/JAK2 in 2023. I was prescribed HU 500 mg and...

https://connect.mayoclinic.org/comment/1448765/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2025

Hello Lynnevb, I was diagnosed in 2008 with ET and have been on Anagrelide for that...

https://connect.mayoclinic.org/comment/1205470/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2025

I don't wish anybody ill here, but I have had ET for many years, and I...

https://connect.mayoclinic.org/comment/951835/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2023

I have ET with JAK2. Please see my post: https://connect.mayoclinic.org/discussion/essential-thrombocythemia-treatment-with-besremi/?pg=3#comment-1321409 I am happy to answer any...

https://connect.mayoclinic.org/comment/1321411/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

I've had shin bone pain (and toes) for at least 6 years now. The only thing...

https://connect.mayoclinic.org/comment/879604/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

I was newly diagnosed with ET with the JAK2 mutation. I do have the red feet....

https://connect.mayoclinic.org/comment/785397/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2022

I know that some ET patients who can't tolerate aspirin take clopidogrel/Plavix. I have occasional GERD,...

https://connect.mayoclinic.org/comment/1153907/

Discussion: Prescribed Aspirin for ET with Jak2 mutation and have GERD

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2024

I checked with my hemo/oncologist and taking B12 as advised by my PCP is ok with...

https://connect.mayoclinic.org/comment/1091499/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

I was diagnosed with ET in May 2023 with a platlet count of 556. I am...

https://connect.mayoclinic.org/comment/928982/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2023

The ET diagnosis can be scary. Even though my blood pressure is normal at home, it...

https://connect.mayoclinic.org/comment/1490130/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 9:41am

Hi eloise999, I also have ET and I am triple negative. I take hydrea since age...

https://connect.mayoclinic.org/comment/1216682/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025