Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

994 total results

Comments (903)

I also had a rash in 2015 that they couldn’t explain. Just it me on mega...

https://connect.mayoclinic.org/comment/996650/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Hi @layala, welcome. That does sound confounding to hear that you are in the early stages...

https://connect.mayoclinic.org/comment/801580/

Discussion: Concerned: CLL in remission, but feel lousy, what to do?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

I was recently diagnosed with CLL. I haven't had any treatment yet. However, in the last...

https://connect.mayoclinic.org/comment/1094480/

Discussion: Is possible to know how long ago I got CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

Hi @sofaramnotdead, CAR-T cell therapy is one of the most promising areas of cancer treatment, especially...

https://connect.mayoclinic.org/comment/622500/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2021

All I can say is that I was never treated for CLL, My CLL turned into...

https://connect.mayoclinic.org/comment/101825/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 7, 2016

Good morning. Brand new to this forum. Was diagnosed with CLL a year and a half...

https://connect.mayoclinic.org/comment/769624/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2022

@sveta25 It sounds like you’re very frustrated with your husband’s hematologist that they are not doing...

https://connect.mayoclinic.org/comment/1456815/

Discussion: To continue or stop Venclexta treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2025

I was just diagnosed with CLL through a flow test ordered from my doctor after a...

https://connect.mayoclinic.org/comment/765441/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

Welcome to Connect @adkmitch. CLL is one of the more treatable forms of leukemia so it’s...

https://connect.mayoclinic.org/comment/1342914/

Discussion: Chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2025

I do hope you remain stable and I also hope the NP knows when to refer...

https://connect.mayoclinic.org/comment/1177169/

Discussion: CLL Watch and Wait: Can supplements and diet help?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

Good to hear you all. I have been on wait and watch since diagnosis of CLL...

https://connect.mayoclinic.org/comment/205933/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2019

This sounds rather frustrating Cindy. I am tagging @vonbaron36, @gmack, @7626, @sofaramnotdead, @dougmann, and @gerryk, some...

https://connect.mayoclinic.org/comment/113609/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2017

@elissams143 and @linepa2002 Since CLL is very slow to develop. In all likelihood, it had been...

https://connect.mayoclinic.org/comment/848483/

Discussion: CLL with lambda monoclonal gammopathy

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

I'm happy for those who report little or no pain- times have changed it seems. I'm...

https://connect.mayoclinic.org/comment/1152995/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2024

Good morning, @nana120. As a blood cancer patient myself and as a mother, I worry about...

https://connect.mayoclinic.org/comment/1321378/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

@loribmt Hi, your response to @joeeduffy is so encouraging. I was recently diagnosed with CLL. It...

https://connect.mayoclinic.org/comment/1011750/

Discussion: CLL - Blood work Completed IGVA Mutation Analysis

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

Hi, @bobby2014. Since I am not a medical professional personally, I don't have access to patients...

https://connect.mayoclinic.org/comment/153889/

Discussion: Did anyone go through a stem cell transplant? Lymphoma

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 6, 2017

I’ve had it for approximately 3+ years. Had a flare up low hemoglobin (6) 4 infusions...

https://connect.mayoclinic.org/comment/1509457/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Feb 19 7:45am

Hi @anniehall12. While you’re waiting for other members who take Brukinsa to pop into the conversation...

https://connect.mayoclinic.org/comment/1365621/

Discussion: Treatment for CLL: Any experiences with Brukinsa (zanobrutinib)?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

Welcome to our CLL/CML group on Connect, @jzier. You can easily search for open clinical trials...

https://connect.mayoclinic.org/comment/101836/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 22, 2016