Blood Cancers & Disorders Support Group

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Comments (941)

Hi @tlgreen12605 You’re at a crossroad in your MM treatment now that everything has stabilized in...

https://connect.mayoclinic.org/comment/892255/

Discussion: MM Stage 6 done, any thoughts--BMT or monthly treatment?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 8, 2023

Dear mgusPixi25, I have heard a little bit about your health care system over there. Ours...

https://connect.mayoclinic.org/comment/884013/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

You do not have cancer. MGUS is not cancer. Now if it progresses that’s a different...

https://connect.mayoclinic.org/comment/794425/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2023

Good morning, @dkandalec! It’s wonderful to hear you’re doing so well after your transplant! That’s the...

https://connect.mayoclinic.org/comment/777542/

Discussion: Myeloma: Revlimid and steroids: How quickly do side effects subside?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2022

Thank you for the "tag in" @colleenyoung @sstillwell First of all, welcome to Mayo Clinic Connect....

https://connect.mayoclinic.org/comment/626114/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2021

I believe it is from the MGUS. The community medical establishment does discount these symptoms in...

https://connect.mayoclinic.org/comment/1454421/

Discussion: Wooziness and MGUS

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2025

I just received some very alarming lab results, as was expected. I have given HealthTree, a...

https://connect.mayoclinic.org/comment/986399/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 25, 2023

I have had MGUS since about 2009, with no conversion to Multiple Myeloma. I had high...

https://connect.mayoclinic.org/comment/770102/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2022

It does make one so anxious to be in diagnostic Limbo. When I first heard Multiple...

https://connect.mayoclinic.org/comment/722918/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2022

Unfortunately my sister died of multiple myeloma 5 years ago and protein was found in my...

https://connect.mayoclinic.org/comment/708987/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 17, 2022

Read and study all you can before deciding to do a bone marrow transplant. The deciding...

https://connect.mayoclinic.org/comment/1120978/

Discussion: Should all multiple myeloma patients look into stem cell transplant?

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2024

@dazlin For now, we are just doing lab work every 3 months. Because I have kidney...

https://connect.mayoclinic.org/comment/292609/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2020

@dazlin My MGUS advanced into smoldering multiple myeloma officially in Nov 2019, so I am on...

https://connect.mayoclinic.org/comment/292603/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2020

@kappaking Starting treatment may need to be coordinated with other health concerns. My experience is this,...

https://connect.mayoclinic.org/comment/1045754/

Discussion: Blood Test: Numbers are up, will doctor not start me on treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2024

@gracie1976 Welcome to Mayo Clinic Connect! I’m so happy you’re heading to Mayo. Do you already...

https://connect.mayoclinic.org/comment/1436574/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2025

@4kleo Here is a link to the page that speaks about MGUS, from myeloma.org: https://www.myeloma.org/what-are-mgus-smm-mm As...

https://connect.mayoclinic.org/comment/1246905/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2025

Hi Oregongirl, Looks like you have not a definite diagnosis of Multiple Myeloma. It is important...

https://connect.mayoclinic.org/comment/209502/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Oct 17, 2018

A small amount of a kappa-type monoclonal protein was also found, but it's too little to...

https://connect.mayoclinic.org/comment/1429498/

Discussion: What to think when only free light chain ratio is abnormally high?

Support Group: Blood Cancers & Disorders

Posted: Nov 2, 2025

It's been a process for me. First comes lab results for tests done for a totally...

https://connect.mayoclinic.org/comment/811292/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

@pmm You took the words right out of my mouth! Absolutely right, a small percentage of...

https://connect.mayoclinic.org/comment/732393/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2022

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