Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,408 total results

Comments (2,270)

@birgitr I'll tell you what works for me . . . it's always best to consult...

https://connect.mayoclinic.org/comment/1559005/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

Hi Meg and others, I have ET and I am also a triple negative. I have...

https://connect.mayoclinic.org/comment/1512303/

Discussion: Anyone else have ET (thrombocytosis) with no gene mutation?

Support Group: Blood Cancers & Disorders

Posted: Feb 22 6:02pm

I have been right where you are. Yes, the words "cancer" and "biopsy" are frightening. Please...

https://connect.mayoclinic.org/comment/995912/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

ET is not necessarily a cancer. My heme doc says there are 4 types and the...

https://connect.mayoclinic.org/comment/917569/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2023

Many of us have gotten the ET diagnosis with almost no explanation or guidance. It IS...

https://connect.mayoclinic.org/comment/995883/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

I was diagnosed with ET and Jak 2 I was taking a baby aspirin daily though...

https://connect.mayoclinic.org/comment/598589/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 1, 2021

Your hemo/oncologist may need to explain to yr insurance co why you need Besremi vs HU....

https://connect.mayoclinic.org/comment/1322851/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2025

That is reassuring. I am still waiting for my genetic testing results but hematologist very sure...

https://connect.mayoclinic.org/comment/1209699/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2025

I'm afraid the answer may be that nobody knows! My MPN, ET, was identified 100+ years...

https://connect.mayoclinic.org/comment/1186672/

Discussion: Blood Donor: Is it safe to donate blood if you have a blood condition?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2024

Is anyone on this list serve taking any of the new weight loss drugs along with...

https://connect.mayoclinic.org/comment/1179909/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

In the past 3 months I’ve had a sore throat / bad cold twice, each lasting...

https://connect.mayoclinic.org/comment/979532/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2023

I would like info on EPO value and how that relates to ET and JAk 2....

https://connect.mayoclinic.org/comment/594544/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2021

Triple negative! You are a unicorn among unicorns, eloise999. You are asking great questions. My ET...

https://connect.mayoclinic.org/comment/1216159/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

I have been living with ET for over 10 years. Also taking hydroxyurea for most of...

https://connect.mayoclinic.org/comment/1102012/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

Hi @lyno29, You posted: “I’m choosing not to do chemo, even though my doctor recommends it....

https://connect.mayoclinic.org/comment/1230545/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2025

@mmkennedy mm -- you are in a really tough spot right now. Of course you feel...

https://connect.mayoclinic.org/comment/1457642/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2025

@writernana I am 71 with ET CALR. Big believer in hydration! I started drinking 64 oz...

https://connect.mayoclinic.org/comment/1525120/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 8:00am

Thanks all. This is a great group! I have been on the MNP listserv but didn't...

https://connect.mayoclinic.org/comment/1269613/

Discussion: ET progression if all blood cells are increasing?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

I think we all have theories about what caused our ET. My onset was age 55....

https://connect.mayoclinic.org/comment/1044606/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

@gohde13 I have had ET since 2002 and on Hydrea for 11 years. My nails also...

https://connect.mayoclinic.org/comment/1501698/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 9 11:46am