Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

958 total results

Comments (867)

Hi Lori, Thank for your answer. Three years ago the Hematologist diagnosed muy wife whith MGUS,...

https://connect.mayoclinic.org/comment/798001/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2023

@evoxmas I just found out about this forum yesterday, so I am sure a lot has...

https://connect.mayoclinic.org/comment/1041695/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

@1oldsoul Yes! You and I are on the same wave length as far as your reasoning...

https://connect.mayoclinic.org/comment/968213/

Discussion: Best Medicare Insurance for MGUS and Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2023

I am a 66 year old male and newly introduced to the MGUS journey. Started with...

https://connect.mayoclinic.org/comment/1206554/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2025

Just had my labs this morning. My platelet count was 421. Doc says not to worry...

https://connect.mayoclinic.org/comment/1276461/

Discussion: My platelet count has increased after a year on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025

I was also diagnosed with MGUS approximately one year ago. This was found by routine lab...

https://connect.mayoclinic.org/comment/1207240/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2025

Hello everyone, I just wanted to check back in and let everyone know that I had...

https://connect.mayoclinic.org/comment/1428544/

Discussion: Diagnosed with MGUS and CHIP with M spike

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2025

@dev1970 First let me welcome you to our Blood Cancers and Disorders Community. We have ebb...

https://connect.mayoclinic.org/comment/1392132/

Discussion: MGUS and pain

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2025

Two years ago I was diagnosed with Stage 1 Multiple Myeloma. I started targeted treatment one...

https://connect.mayoclinic.org/comment/998862/

Discussion: Multiple myeloma: When to treat? When not to treat?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2024

I’m so sorry that happened but it got you an early diagnosis-somewhat similarly, I fractured 2...

https://connect.mayoclinic.org/comment/898146/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

I’m so terribly sorry to hear that your wife passed away. Blood cancers can be so...

https://connect.mayoclinic.org/comment/839483/

Discussion: MGUS to myeloma: How can it be detected sooner?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2023

@psue4 Oh, diet and kidney function! A topic those of us who deal with chronic kidney...

https://connect.mayoclinic.org/comment/826995/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2023

@1oldsoul I had a first dose of Evusheld in February. In two weeks I will get...

https://connect.mayoclinic.org/comment/739021/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2022

Hi, Patrick. My name is Millicent and I live in STL. I've been on Revlimid since...

https://connect.mayoclinic.org/comment/1236270/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2025

@tristram Let me echo the welcome to Mayo Clinic Connect that @johnbishop extended! As you do...

https://connect.mayoclinic.org/comment/784794/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2022

Hi @flightdeckjohnn, first I have to ask about your name, FlightDeckJohnn! Did you serve on a...

https://connect.mayoclinic.org/comment/663124/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

Thank you to everyone who participated in this project to improve Mayo Clinic's Multiple Myeloma website...

https://connect.mayoclinic.org/comment/648224/

Discussion: Want to help Mayo Clinic improve our Multiple Myeloma website?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2021

Hello Mel. So glad you are comfortable reaching out early in this medical journey. I am...

https://connect.mayoclinic.org/comment/318848/

Discussion: Nodular sclerosing Hodgkin lymphoma (NSHL): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 22, 2020

@milkweed I am a multiple myeloma patient. I am on Bactrim 3x a week, plus baby...

https://connect.mayoclinic.org/comment/974108/

Discussion: Complications MOHS surgery while having ET and Von Willebrand's?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

I'm 70 and my Kappa is about 300 and Kappa/Lambda is 29. Still in the asymptomatic...

https://connect.mayoclinic.org/comment/1175389/

Discussion: Kappa light chains: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2024