Blood Cancers & Disorders Support Group | Page 32

@nohrt4me Hi, I have ET with CALR exon 9 mutation. What do you mean by "no...

https://connect.mayoclinic.org/comment/1481597/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 13 5:03pm

I just got diagnosed with ET and am 65 years old. I am nervous about taking...

https://connect.mayoclinic.org/comment/57932/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2013

Hi @blondie65. Blood conditions can get a little confusing. It is possible to have both PV...

https://connect.mayoclinic.org/comment/1016652/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2024

ET, JAK2617F diagnosed 7 months ago. I have been on 325mg aspirin daily when it was...

https://connect.mayoclinic.org/comment/896128/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2023

This may make you feel a little better. I was diagnosed with ET in 2011. Platelets...

https://connect.mayoclinic.org/comment/848013/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2023

@lindakay55 "And I'm worried that I am near dying." Been there, done that! I felt doomed...

https://connect.mayoclinic.org/comment/1464368/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

Welcome @lindamarie63. I hope you saw the helpful replies from several members living with ET with...

https://connect.mayoclinic.org/comment/1191118/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

I am dealing with my feet. They feel tingly and numb. I am so afraid it...

https://connect.mayoclinic.org/comment/1127228/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2024

On HU since October 2023, I also take a multivitamin, an AREDS vitamin to protect vision,...

https://connect.mayoclinic.org/comment/1510934/

Discussion: What vitamins to avoid when taking Hydrea (hydroxyurea) for ET JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 7:11am

I'm 69 years old and had a bone marrow biopsy last November after a blood test...

https://connect.mayoclinic.org/comment/1031862/

Discussion: What is doc looking for with a Bone Marrow Biopsy?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

Yes, I believe that the same thing happened to me. My high platelets were discovered in...

https://connect.mayoclinic.org/comment/800142/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2023

Welcome @create. I'm tagging a few members who may be familiar with your unique combination of...

https://connect.mayoclinic.org/comment/761571/

Discussion: Myeloproliferative neoplasm Anyone else have a similar diagnoses?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2022

@janemc Thank you for your kind words and reassurances as always. My tiredness really isn't much...

https://connect.mayoclinic.org/comment/1417205/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2025

I (75 yr) was diagnosed with ET a couple of weeks ago and was started on...

https://connect.mayoclinic.org/comment/1395975/

Discussion: Living with ET

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2025

I also have ET JAK2. I am taking Hydroxyurea. I do not take aspirin because I...

https://connect.mayoclinic.org/comment/1017787/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2024

ET, 3 years on Hydroxy, my B12 is very high, two hematologists have told me not...

https://connect.mayoclinic.org/comment/892621/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2023

More than likely ET, that’s what I have. It is a rare blood cancer, but is...

https://connect.mayoclinic.org/comment/1407482/

Discussion: My wife tested positive for jak2 and has high platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2025

Hello lrkiesling@lrkiesling. I am so sorry for your feelings of uncertainty. I share your frustration. I...

https://connect.mayoclinic.org/comment/1549673/

Discussion: Primary Myelofibrosis: so unsure of everything, need answers

Support Group: Blood Cancers & Disorders

Posted: Apr 13 12:07pm

@birgitr I'll tell you what works for me . . . it's always best to consult...

https://connect.mayoclinic.org/comment/1559005/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

Hi Meg and others, I have ET and I am also a triple negative. I have...

https://connect.mayoclinic.org/comment/1512303/

Discussion: Anyone else have ET (thrombocytosis) with no gene mutation?

Support Group: Blood Cancers & Disorders

Posted: Feb 22 6:02pm