Blood Cancers & Disorders Support Group

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Comments (947)

I am have ET (JAK2+). I have been using bio identical hormones for 17 years with...

https://connect.mayoclinic.org/comment/1151761/

Discussion: Thoughts on bio identical hormones and ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2024

Hi @kbc. It’s understandable how some events can feel more than coincidental. From my research over...

https://connect.mayoclinic.org/comment/1020755/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2024

Good morning Pumpkin.....I posted a message to you the other day but I think I touched...

https://connect.mayoclinic.org/comment/774152/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2022

Welcome to Connect, @pearly, and thank you for sharing your history. Essential thrombocythaemia (ET) is indeed...

https://connect.mayoclinic.org/comment/146291/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2017

I am on it for almost a year. I read it takes about six months or...

https://connect.mayoclinic.org/comment/993710/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

Hi Steve, Becky has the JAK2 mutation which, from my understanding, makes primary ET more likely,...

https://connect.mayoclinic.org/comment/1154236/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2024

I traveled as usual and flew places in 2020 and enjoyed many wonderful experiences with family...

https://connect.mayoclinic.org/comment/194376/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2021

My husband was dx with Jak2 about 10 months go when his WBC was high on...

https://connect.mayoclinic.org/comment/599791/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 6, 2021

A GP is not going to have any answers for you. They do not specialize in...

https://connect.mayoclinic.org/comment/328574/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2020

Welcome to Connect, @johngrudnowski. I’m a little envious to see you’re in Costa Rica…sunshine and warmth!...

https://connect.mayoclinic.org/comment/999949/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2024

Hi, Thanks for your input. I have JAK2 mutation too, just found out in April. How...

https://connect.mayoclinic.org/comment/987914/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

Hi Vicky58, There’s a large network of members in Connect who also have ET and share...

https://connect.mayoclinic.org/comment/1102781/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Hi Steve, Welcome to Connect. ET, or essential thrombocythemia is one of a group of blood...

https://connect.mayoclinic.org/comment/1145659/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2024

My father passed away from a battle of myelofibrosis (MF), over 10 years after being diagnosed...

https://connect.mayoclinic.org/comment/646343/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2021

I am 72, have ET with JAK2, and been on Droxia for 10 years. My dosage...

https://connect.mayoclinic.org/comment/1119845/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

Sounds like Becky has been through quite a lot. I am looking at mitral valve repair,...

https://connect.mayoclinic.org/comment/1154916/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Oct 10, 2024

My platelets have increased over the past few months, now seeing a hematologist who just confirmed...

https://connect.mayoclinic.org/comment/833990/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

I have ET Jak2 and I understand that we all react differently to medications....I have seen...

https://connect.mayoclinic.org/comment/966274/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2023

I've been taking 600mgs of hydroxyurea (Droxia formulation) daily for myelofibrosis for the past 6 yrs....

https://connect.mayoclinic.org/comment/1080798/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

It's my understanding that PV IS a blood cancer, it's a progressive disease with no cure..There...

https://connect.mayoclinic.org/comment/1086347/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024