Blood Cancers & Disorders: Discussions | Page 31

Recent update: I was diagnosed 3 years ago/ Jak2 mutation. I had already had a small...

https://connect.mayoclinic.org/comment/982523/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

Hi, I was diagnosed with ET January 2025 after routine physical from high platelets in lab...

https://connect.mayoclinic.org/comment/1347917/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

Cristinia, I also feel lucky that of all cancers I could I acquired PV. My husband...

https://connect.mayoclinic.org/comment/1278598/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 10 11:02am

Good morning, @paisleyshakell. From my personal experience of having an aggressive form of leukemia with three...

https://connect.mayoclinic.org/comment/1122731/

Discussion: Thrombocythemia JAK2 - is it ok to have an MRI with dye?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2024

I’m 56 and started in Nov with one pill a day. When I reached 842 that...

https://connect.mayoclinic.org/comment/1014323/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

My husband was just told by the hematologist he was referred to that he has Jak2...

https://connect.mayoclinic.org/comment/328590/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

@misty45 Thank you so very much for sharing your ET experience. My daughter ( age 39)...

https://connect.mayoclinic.org/comment/194272/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2019

My doctor says platelets should be between 140 - 450. I have heard different ranges but...

https://connect.mayoclinic.org/comment/1029002/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2024

I’m female, 63, with MPL mutation. My platelets were 1073 in February 2022, now 453. Pretty...

https://connect.mayoclinic.org/comment/1007243/

Discussion: Anyone else with ET have mutation in MPL gene?

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2024

About 6 months ago a blood test showed very high platelet counts. Next, I tested positive...

https://connect.mayoclinic.org/comment/1236870/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 1:32pm

I was 75 and noticed severe itching after swim/bath. PC was uninterested in elevated hematocrit(57), but...

https://connect.mayoclinic.org/comment/885884/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

Hi @leanne1 Thank you so much for sharing your hemoglobin tester info with us! There are...

https://connect.mayoclinic.org/comment/878222/

Discussion: Diagnosed with PV: Anyone used a home hemoglobin testing kit?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

JAK2 Myelofibrosis I have been on Ojjarra for almost three months. It is a half dose...

https://connect.mayoclinic.org/comment/1210536/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 10:06am

Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...

https://connect.mayoclinic.org/comment/1050553/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

Hi, I found your post and was just wondering how you got to have bone marrow...

https://connect.mayoclinic.org/comment/1219760/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 12:44pm

I don't live in a big city, but when I got my PV diagnosis I got...

https://connect.mayoclinic.org/comment/870438/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

My platelets have been increasing since 2018 and are currently at 610. My bloodwork confirmed the...

https://connect.mayoclinic.org/comment/829902/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

Recently diagnosed in November with pv/et, jak2+. Originally on hydrox 1000 daily with phlebotomy x 3...

https://connect.mayoclinic.org/comment/821163/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

Jackt00, To answer your question…when the headaches started I had some dizziness and a first ever...

https://connect.mayoclinic.org/comment/830153/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

Hello, I have had PV with JAK2 for about 5 years. I work and live a...

https://connect.mayoclinic.org/comment/812063/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2023

Blood Cancers & Disorders Support Group