Blood Cancers & Disorders Support Group

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Comments (1,397)

Hi @taisaint, All of this information can be found in National Institute of Health, Pub Med...

https://connect.mayoclinic.org/comment/1023272/

Discussion: Contolling Hydroxyurea fatigue by time of day you take the medication

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2024

Welcome to Connect, Jean! As you’ve discovered, there are a number of members in the forum...

https://connect.mayoclinic.org/comment/1039680/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2024

@dragonflylynda Oh, i’m sorry, I must have mis-read a reply…nothing wrong with my brain! LOL Well,...

https://connect.mayoclinic.org/comment/1464788/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

Good morning, @irishgoff82. It’s always so jarring when we get news about our health that we...

https://connect.mayoclinic.org/comment/1195805/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2024

Sorry for rambling, but by sharing my experience I hope to provide some insight and respond...

https://connect.mayoclinic.org/comment/684686/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2022

Hi there I'm Jola 67 I have just been diagnosed with ET JAK2 have just started...

https://connect.mayoclinic.org/comment/887506/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023

Thank you for responding…after about a month of fighting with h the insurance company to approve...

https://connect.mayoclinic.org/comment/886301/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

I think in the United States some insurance companies make you do step therapy…hydroxyurea first before...

https://connect.mayoclinic.org/comment/790422/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2022

@ettap , Great comment. Most importantly, because it pertains to me, as well!(!) Anyway, I have...

https://connect.mayoclinic.org/comment/652790/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2021

When they do the bone marrow (BM) procedure they should do a molecular panel which looks...

https://connect.mayoclinic.org/comment/328591/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

Hi all.having been diagnosed with two mutations jak2 and calf ihave been on double dosage of...

https://connect.mayoclinic.org/comment/1288834/

Discussion: How long you can live taking Hydrea (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2025

Your "acceptable" number may vary depending on age, clot history, and driver mutation. If you are...

https://connect.mayoclinic.org/comment/1134086/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2024

I am suspecting I'll be soon officially diagnosed with PV. I'm JAK2 and blood numbers trending...

https://connect.mayoclinic.org/comment/193900/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2019

I was diagnosed with ET Jak2 in 2021, my platelets went over 1,000, with HU and...

https://connect.mayoclinic.org/comment/930012/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2023

My functional medicine doc has me taking 10,000 IU Vit D daily to keep my levels...

https://connect.mayoclinic.org/comment/845564/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Hi Lynn. I was having tingling and numbness in my lips. It felt weird when I...

https://connect.mayoclinic.org/comment/839738/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2023

Hello. I'm 62 and was diagnosed a month ago with Jak2 and ET. Had my bone...

https://connect.mayoclinic.org/comment/774273/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2022

I had bone pain in big toes 3 years before being diagnosed with ET Jak2. I've...

https://connect.mayoclinic.org/comment/1391430/

Discussion: Is foot/toe pain a symptom of increasing platelets in ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2025

Hello and thank you very much for responding and for all of the useful articles and...

https://connect.mayoclinic.org/comment/820592/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

@toste I was also diagnosed with myelofibrosis and the JAK2 mutation about a year ago. I...

https://connect.mayoclinic.org/comment/1494172/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 30 11:32am

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