Blood Cancers & Disorders Support Group

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Comments (897)

Welcome to Connect, @gabadoo24. I also had to look up NXG as I’m not familiar with...

https://connect.mayoclinic.org/comment/991300/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2024

@elissams143 I had a right lymph node biopsy in jan/23 giving me the CLL/SLL diagnosis; im...

https://connect.mayoclinic.org/comment/847596/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

I had a fast moving version of CLL. I was told I would die if I...

https://connect.mayoclinic.org/comment/113628/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2018

I 67 years old and live in Canada. I was diagnosed with CLL in December 2021,...

https://connect.mayoclinic.org/comment/1095599/

Discussion: Anybody on Treatment for CLL? What kind of treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2024

Yes I have had three “provoked” DVTs in my lower legs, so nothing too scary. My...

https://connect.mayoclinic.org/comment/913960/

Discussion: Factor ll prothrombin mutation

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Welcome, @ksandusky86. I’m just blown away with the callousness of your oncologist with regards to your...

https://connect.mayoclinic.org/comment/1294093/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 1, 2025

Hi everyone, it has been 2 days short of a year since I found this group....

https://connect.mayoclinic.org/comment/1106316/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2024

It is unsettling to have a ‘watchful waiting’ situation, isn’t it? Feels like a ticking time-bomb...

https://connect.mayoclinic.org/comment/848459/

Discussion: CLL with lambda monoclonal gammopathy

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

Good morning, @jerrysgirl3. Let’s get you in contact with Mayo. Here’s a link to get you...

https://connect.mayoclinic.org/comment/925030/

Discussion: Haptoglobin RBC major issues

Support Group: Blood Cancers & Disorders

Posted: Sep 6, 2023

I have a different feeling about wanting to know what caused me to get cll. Often...

https://connect.mayoclinic.org/comment/846264/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

My husband had extremely low T levels post allogenic stem cell transplant (and levels had been...

https://connect.mayoclinic.org/comment/1435039/

Discussion: Has anyone experienced Testosterone Levels that are extremely low?

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2025

Hi @jerrysgirl3. EEGs and their results are way out of my area of experience. I think...

https://connect.mayoclinic.org/comment/927681/

Discussion: Haptoglobin RBC major issues

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2023

Hi @lynnstefanik89 While you’re waiting for replies from members who may have both CLL and MZL,...

https://connect.mayoclinic.org/comment/1192826/

Discussion: Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

I can appreciate your comment on "not comfortable, but tolerable" and wanted to add that it...

https://connect.mayoclinic.org/comment/654578/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2021

Hi Justin, Thank you for the links. I will read them right away. Yes, I am...

https://connect.mayoclinic.org/comment/296623/

Discussion: Can CLL be hereditary?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2020

@loribmt My blood pressure was very low so my daughter took me to the doctor and...

https://connect.mayoclinic.org/comment/1407332/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2025

@loribmt I find your words very encouraging. I was diagnosed with CLL in November of 2023....

https://connect.mayoclinic.org/comment/1401650/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2025

Hi @aleeab! I just spoke to another member this morning who has a different blood condition...

https://connect.mayoclinic.org/comment/864146/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2023

@dani349. I’m a firm believer that knowledge is power. The article I recommended is a good...

https://connect.mayoclinic.org/comment/1043133/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2024

diagnosed with cll in april 2016- age 62- began immediate green tea extract supplement of 5,000...

https://connect.mayoclinic.org/comment/719405/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2022