Blood Cancers & Disorders Support Group

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Comments (634)

Just had labs and 3rd infusion of Rituxin. My absolute doubling time was 3 months. The...

https://connect.mayoclinic.org/comment/1098553/

Discussion: Anybody on Treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Hi Justine, Just checking in to see how the extraction site is healing now. I’m not...

https://connect.mayoclinic.org/comment/1121306/

Discussion: CLL and slow healing following dental work

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2024

Hi, I was diagnosed with PMF CALR + Int. 2 back in March 2021. It took...

https://connect.mayoclinic.org/comment/1045170/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2024

Barbara - I never heard that stem cell treatments aren't right for B-Pll. That's interesting. If...

https://connect.mayoclinic.org/comment/211084/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2019

Welcome to Connect, @lancaster1963. CLL is generally a slowly developing type of leukemia and from my...

https://connect.mayoclinic.org/comment/1080587/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

I was diagnosed in 2008. I had high lymphocytes identified with a routine CBC, with CLL...

https://connect.mayoclinic.org/comment/965807/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

Hi Kathy, I am very sorry to hear about your husband. It sounds like he is...

https://connect.mayoclinic.org/comment/962371/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

Hello Elaine. My name is Sherri and it seems as though we have a similar path....

https://connect.mayoclinic.org/comment/813526/

Discussion: What foods or supplements help increase Low platelets?

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2023

Having gone through many rounds of chemo myself, I can tell you It’s quite normal for...

https://connect.mayoclinic.org/comment/323208/

Discussion: WBC bottomed after first chemo for CLL: Postpone treatment?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2020

Hello all. I have CLL and thus had a very enlarged spleen because of it. The...

https://connect.mayoclinic.org/comment/273080/

Discussion: CLL and Managing an Enlarged Spleen

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2019

Good morning, @marnix! I remember about 25? years ago, a close friend’s mother was diagnosed with...

https://connect.mayoclinic.org/comment/1072120/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2024

Hi @rivermaya34. So sorry to hear you have been diagnosed with HNPP. This is such a...

https://connect.mayoclinic.org/comment/1070799/

Discussion: Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsy

Support Group: Blood Cancers & Disorders

Posted: May 19, 2024

When I started treatment for CLL, my spleen was slightly swollen, but I had a huge...

https://connect.mayoclinic.org/comment/101844/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 31, 2016

Hi @artymarty, welcome to Connect. It’s not as cool as the old treehouse club when we...

https://connect.mayoclinic.org/comment/909989/

Discussion: Had CLL for about 2 years, Dr is now thinking of treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023

Oh golly, you and your family are working through a lot of uncertainties right now. I’m...

https://connect.mayoclinic.org/comment/814276/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2023

@rip. Good morning. I just read over some of your previous postings to see that you...

https://connect.mayoclinic.org/comment/337534/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021

I am convinced neuropathy can be related to free light chains and antibodies(in my case igM)...

https://connect.mayoclinic.org/comment/987941/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

Hi @reneebarber77, A few months ago we had a discussion about smudge cells showing up in...

https://connect.mayoclinic.org/comment/781922/

Discussion: Lymphoma or Not? Watch and wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

Hi @donnarichterssyndrome I’m so sorry your CLL has decided to take things up a notch. Most...

https://connect.mayoclinic.org/comment/684456/

Discussion: Richter's Syndrome: Is anyone else dealing with this disease?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2022

Sorry for rambling, but by sharing my experience I hope to provide some insight and respond...

https://connect.mayoclinic.org/comment/684686/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2022