Blood Cancers & Disorders Support Group

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Comments (486)

Actually think it's the ET, I have this going on for a few years, seems to...

https://connect.mayoclinic.org/comment/1086882/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2024

Good morning, @jacklyn. Itching…I swear that can be worse than pain. Unfortunately it’s a lovely side...

https://connect.mayoclinic.org/comment/1329004/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2025

Jakafi stopped the itching plus other symptoms for me.

https://connect.mayoclinic.org/comment/1363470/

Discussion: Severe itching with PV

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2025

My MDS-CMML-1 will be five years in July 2025. I see my oncologist every 90 days...

https://connect.mayoclinic.org/comment/1242288/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2025

@carolgk Thank you, Carol. I'm doing much better with the Jakafi medication because my MF is...

https://connect.mayoclinic.org/comment/1538801/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: 20 hours ago

Ocular migraines, itching after shower or bath and night sweats.

https://connect.mayoclinic.org/comment/872208/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

see another doctor. The itching is petaechia which signals a blood disorder, or bone marrow disorder...

https://connect.mayoclinic.org/comment/1515466/

Discussion: I think I have Immune thrombocytopenia (ITP)

Support Group: Blood Cancers & Disorders

Posted: Feb 27 5:47am

An ice pack on the itching area stops the itch for me.

https://connect.mayoclinic.org/comment/898585/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2023

Thank you for sharing the scripts that helped lessen your itching.

https://connect.mayoclinic.org/comment/1432240/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2025

I have MGUS was diagnosed last October as well by a bone marrow biopsy. Before diagnosis...

https://connect.mayoclinic.org/comment/1514061/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 25 6:37am

@emaddox how are you doing? Has your hematologist suggested anything for the itching?

https://connect.mayoclinic.org/comment/906440/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2023

Good Morning. Are you sure there is no correlation between itching, hives and essential thrombocytosis? I...

https://connect.mayoclinic.org/comment/817435/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

Hi. Same here. Itching is gone, but the fatigue is here. Hemoglobin level is +/- 11,...

https://connect.mayoclinic.org/comment/875420/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

Welcome Christine, I moved your "just diagnosed" message to this existing discussion of the same name:...

https://connect.mayoclinic.org/comment/749672/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2022

@carolgk Oh gosh, Carol, my heart goes out to you with the relentless itching! @rogelling had...

https://connect.mayoclinic.org/comment/1510338/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 20 10:11am

Jakafi stopped the itching for me as well as many other PV side effects.

https://connect.mayoclinic.org/comment/943008/

Discussion: PV: terrible itching after shower or bath

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

What are you doing for the itching? I have the same t-cell lymphoma and MGUS.

https://connect.mayoclinic.org/comment/886704/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

Started with horrible itching after bathing. Elevated hematocrit (57) led to biopsy to confirm. Now, 2...

https://connect.mayoclinic.org/comment/875363/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

sandy1959 @sandy1959, Itch (also known as pruritus) Yes! Itching is 100% sign of cancer look under...

https://connect.mayoclinic.org/comment/817590/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

My mum had stage IV CTCL and by far for her the itching was the worst....

https://connect.mayoclinic.org/comment/1361930/

Discussion: Cutaneous T-cell lymphoma consistent with mycosis fungoides

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2025