Blood Cancers & Disorders Support Group

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Comments (242)

Hi @blondie65. Blood conditions can get a little confusing. It is possible to have both PV...

https://connect.mayoclinic.org/comment/1016652/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2024

I was confused by this also. My hematologist told me I have Essential Thrombocytosis but my...

https://connect.mayoclinic.org/comment/805735/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2023

@1pearl Since you’re new to the diagnosis of ET, you might want to look through some...

https://connect.mayoclinic.org/comment/1211379/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 14 1:24pm

I have been recently diagnosed with Essential Thrombocythemia. My platelet count before the Moderna Covid vaccine...

https://connect.mayoclinic.org/comment/949987/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2023

ET is essential thrombocythemia it is a chronic blood cancer, it is not as a result...

https://connect.mayoclinic.org/comment/1142418/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2024

I was diagnosed with Essential Thrombocythemia, JAK2 mutation, earlier this year. My hematologist (who was also...

https://connect.mayoclinic.org/comment/877333/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2023

I also have Essential Thrombocythemia. My hospital has oncology dieticians and I have requested an appointment...

https://connect.mayoclinic.org/comment/995429/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2024

Hi everyone, hope all is well. My name is Claire and I also have essential thrombocythemia...

https://connect.mayoclinic.org/comment/194319/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

I was recently diagnosed with Essential Thrombocythemia. My platelets were up to 700,000. I am taking...

https://connect.mayoclinic.org/comment/783337/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

Hello!I am 46 years old and was diagnosed with jk2 positive essential thrombocythemia 3 years ago.What...

https://connect.mayoclinic.org/comment/1237185/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 15 5:01am

I was diagnosed with essential thrombocythemia Dec 2016, platelets in the millions, put on hydroxyurea, started...

https://connect.mayoclinic.org/comment/50531/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2017

Hello @lindaw123 I appreciate this thoughtful question. I did some research online and found the results...

https://connect.mayoclinic.org/comment/662346/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Welcome to Connect, @pearly, and thank you for sharing your history. Essential thrombocythaemia (ET) is indeed...

https://connect.mayoclinic.org/comment/146291/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2017

A high platelet count typically is indicative of Essential Thrombocythemia. The normal treatment is Hydroxyurea which...

https://connect.mayoclinic.org/comment/328578/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2021

I Googled why was essential thrombocythemia reclassified from a blood disorder to blood cancer ? I...

https://connect.mayoclinic.org/comment/1301793/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 11 11:39am

Hi @beccak, Welcome to Connect. From the numbers you mentioned I’m expecting you were diagnosed with...

https://connect.mayoclinic.org/comment/1072291/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2024

Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...

https://connect.mayoclinic.org/comment/194373/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2021

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

Welcome, @as86. when getting a new diagnosis, it can be hard to even know what questions...

https://connect.mayoclinic.org/comment/1099256/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Hi Lynn, welcome. Both @nohrt4me @huronshores have ET and have had joint replacement therapies. They may...

https://connect.mayoclinic.org/comment/851903/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023