Blood Cancers & Disorders Support Group

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Comments (253)

I have ET with JAK2. Please see my post: https://connect.mayoclinic.org/discussion/essential-thrombocythemia-treatment-with-besremi/?pg=3#comment-1321409 I am happy to answer any...

https://connect.mayoclinic.org/comment/1321411/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 6 8:59am

Welcome @emcobb76. To help you connect with others who have essential thrombocythemia (ET), I moved your...

https://connect.mayoclinic.org/comment/776741/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2022

Hi Terry @terese7 Essential Thrombocythemia is a blood condition where your bone marrow is producing too...

https://connect.mayoclinic.org/comment/1091025/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

Good morning, @cweible19782006 Let’s get you Connected with some fellow members who also have Essential Thrombocythemia....

https://connect.mayoclinic.org/comment/820581/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

Hi @blondie65. Blood conditions can get a little confusing. It is possible to have both PV...

https://connect.mayoclinic.org/comment/1016652/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2024

Hi Rose. This is a great community where members come together to offer hope, encouragement and...

https://connect.mayoclinic.org/comment/1113637/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024

I was confused by this also. My hematologist told me I have Essential Thrombocytosis but my...

https://connect.mayoclinic.org/comment/805735/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2023

@1pearl Since you’re new to the diagnosis of ET, you might want to look through some...

https://connect.mayoclinic.org/comment/1211379/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 14 1:24pm

I have been recently diagnosed with Essential Thrombocythemia. My platelet count before the Moderna Covid vaccine...

https://connect.mayoclinic.org/comment/949987/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2023

I also have Essential Thrombocythemia. My hospital has oncology dieticians and I have requested an appointment...

https://connect.mayoclinic.org/comment/995429/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2024

Hi everyone, hope all is well. My name is Claire and I also have essential thrombocythemia...

https://connect.mayoclinic.org/comment/194319/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

ET is essential thrombocythemia it is a chronic blood cancer, it is not as a result...

https://connect.mayoclinic.org/comment/1142418/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2024

I was diagnosed with Essential Thrombocythemia, JAK2 mutation, earlier this year. My hematologist (who was also...

https://connect.mayoclinic.org/comment/877333/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2023

I was recently diagnosed with Essential Thrombocythemia. My platelets were up to 700,000. I am taking...

https://connect.mayoclinic.org/comment/783337/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

I was diagnosed with essential thrombocythemia Dec 2016, platelets in the millions, put on hydroxyurea, started...

https://connect.mayoclinic.org/comment/50531/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2017

Hello!I am 46 years old and was diagnosed with jk2 positive essential thrombocythemia 3 years ago.What...

https://connect.mayoclinic.org/comment/1237185/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 15 5:01am

Hello @lindaw123 I appreciate this thoughtful question. I did some research online and found the results...

https://connect.mayoclinic.org/comment/662346/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Welcome to Connect, @pearly, and thank you for sharing your history. Essential thrombocythaemia (ET) is indeed...

https://connect.mayoclinic.org/comment/146291/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2017

Today I saw the hem/onc at UCLA. I will be having a guided Bone Marrow Biopsy...

https://connect.mayoclinic.org/comment/1319791/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 3 9:38pm

A high platelet count typically is indicative of Essential Thrombocythemia. The normal treatment is Hydroxyurea which...

https://connect.mayoclinic.org/comment/328578/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2021