Blood Cancers & Disorders Support Group

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Comments (208)

Hello @sunnyside17. Mayo Clinic does discuss some of the diseases and disorders that the Myeloproliferative Group...

https://connect.mayoclinic.org/comment/272989/

Discussion: Myelproliferative Neoplasms-Blood cancer info missing

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2019

I was diagnosed with Essential Thrombocythemia, JAK2 mutation, earlier this year. My hematologist (who was also...

https://connect.mayoclinic.org/comment/877333/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2023

I was recently diagnosed with Essential Thrombocythemia. My platelets were up to 700,000. I am taking...

https://connect.mayoclinic.org/comment/783337/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

Hi everyone, hope all is well. My name is Claire and I also have essential thrombocythemia...

https://connect.mayoclinic.org/comment/194319/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

I also have Essential Thrombocythemia. My hospital has oncology dieticians and I have requested an appointment...

https://connect.mayoclinic.org/comment/995429/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jan 11 8:25am

I was diagnosed with essential thrombocythemia Dec 2016, platelets in the millions, put on hydroxyurea, started...

https://connect.mayoclinic.org/comment/50531/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2017

A recently diagnosis of Essential Thrombocythemia, I am interested in knowing whether stem cell therapy is...

https://connect.mayoclinic.org/comment/196674/

Discussion: New Blood Cancers & Disorders Blog Posts

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2018

Welcome to Connect, @pearly, and thank you for sharing your history. Essential thrombocythaemia (ET) is indeed...

https://connect.mayoclinic.org/comment/146291/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2017

Hello @lindaw123 I appreciate this thoughtful question. I did some research online and found the results...

https://connect.mayoclinic.org/comment/662346/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...

https://connect.mayoclinic.org/comment/194373/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2021

Hi @beccak, Welcome to Connect. From the numbers you mentioned I’m expecting you were diagnosed with...

https://connect.mayoclinic.org/comment/1072291/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 21 1:15pm

A high platelet count typically is indicative of Essential Thrombocythemia. The normal treatment is Hydroxyurea which...

https://connect.mayoclinic.org/comment/328578/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2021

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

Hi Lynn, welcome. Both @nohrt4me @huronshores have ET and have had joint replacement therapies. They may...

https://connect.mayoclinic.org/comment/851903/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

I too noticed that my platelet count went up at the time of the Covid vaccines....

https://connect.mayoclinic.org/comment/934248/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2023

Welcome, @as86. when getting a new diagnosis, it can be hard to even know what questions...

https://connect.mayoclinic.org/comment/1099256/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4 1:29pm

@jsslmt53, welcome. We have many members who are living with Essential Thrombocythemia and talk about JAK2...

https://connect.mayoclinic.org/comment/782514/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Hi @shenriq According to the NIH there are several patients with essential thrombocythemia that complain of...

https://connect.mayoclinic.org/comment/337924/

Discussion: ET symptom of neuropathy

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2021

I have essential thrombocythemia, a liver mutation resulting in overproduction of platelets. My B is off...

https://connect.mayoclinic.org/comment/198919/

Discussion: High Levels of Vitamin B12 and Ferritin: Any pointers?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2020

@lydaneedsadvice, You mentioned you have your next CBC on June 28th. Hopefully, your hematologist can shed...

https://connect.mayoclinic.org/comment/265149/

Discussion: Persistent immature grans/left shift on CBCs

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2019